Posted By Posting
Sep 03, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Should I cancel the feeding clinic appt?
I'm thinking about cancelling Rory's feeding clinic appt on Sept. 19th. She is eating without any real behavioural issues. I know her limits and accept them. She is eating, in small quantities, cereal, yogurt, cheerios, KD, soup, potatoes, fries, some baby food, ice cream, toast, etc.

She still won't eat pieces of vegetables, fruit, or meat. Is this pretty normal for 17 months?? I just feel like they can't do anything else for her. No amount of positive reinforcement can get her to eat these things.

My other concern is the cup training and milk/toddler formula refusal, and her failure to gain weight, but I don't agree with their "cold turkey" approach. I try everyday and she BEGS for her "baba".

I'll also have to pull her from daycare and take a day off of work. ( I turned down the phone company job, they wanted me to work shifts but the agency says she will find me something else).

Should I cancel? Thoughts?

Sep 03, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
My personal opinion? I wouldn't cancel. You never know what they may have to suggest. Maggie isn't big on meat yet either, but she will eat some veggies and has always loved fruit. Kids are different though. It may just be her preferences. Who knows...
Sep 03, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
i'd cancel. jmho but it always stresses you out more, kwim. she is doing so well.. i know non-refluxers who won't eat anything but grilled cheese. i'd just think of ways to get those foods in to her diet in sneaky ways. does she like bread? i make this awesome zucchinni, apple, & carrot bread that coyle actually eats. he only takes a few bites (as with everything) but he does eat it. if she likes cream cheese you can puree in some fruit to taht as well. and the soup has veggies too, right? it might be a texture thing she will grow out of @ two maybe?

i can't help you with the formula refusal.. as you know, but if you don't agree with their cold turkey approach i doubt they will give you other suggestions.
Sep 03, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
IMO-I would keep the appt. Then if something changes btwn then and now you still have the appt. plus they may have some suggestions for you. Even tho she is doing good now, you never know. What can it hurt?
Sep 03, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'd keep it. Jedd sees the clinic every 2 months even though he is eating well now. Well, well for him...LOL

They could give pointers on how to get more clas in if they have a dietician.

Also if you go that way you know exactly how her weight is progressing because she will be weighed on the same scale each time. We only go by th eclinics scale now.

Sep 03, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
That's just it....the feeding clinic DOES stress me out because they think positive reinforcement is the only answer, and they don't think we need the dietician. The pediatrician is supposedly a nutritionist, but the only suggestion we've gotten from her is butter in food, which we do. And we use all of the suggestions from our PAGER friends for cals as well. They've already told me they can't help with cup training. I think she NEEDS the help of a feeding clinic for some progression in her food acceptance, but this clinic just thinks its behavioural and we only see the psychologist. I just feel like it's pointless if they aren't going to address her weight issues/texture issues, bottle issues, kwim? Plus, she's off prevacid now and I don't need the scolding. I think I will talk to the pediatrician and then give them a call to see what they think. I'd hate to have to take time off of work just for them to tell me to keep praising her....DUH! But then again, I'd like to have them as a fall back if she doesn't eat at daycare. I guess I will keep it, if for nothing else to have them as a support for the daycare. hmph. I just don't know. Thanks for your thoughts ladies. It's much appreciated!!!
Sep 03, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Michelle, is there a speech therapist or occupational therapist on the team? They can help with texture issues and advancing foods for her. AND cup drinking...if she has oral motor issues a SLP shuold be a big help if you get one who is trained in feeding disorders. Is she still doing that tongue thrusting thing? I can't remember what they said about that.
Sep 03, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Sharon, we don't see the OT, ST, or the dietician. Only the psychologist, the co-ordinator and a student. She still tongue thrusts, but the psychologist thinks it's just because of preference, which I have always disagreed with. The hospital is so overrun, because it serves three provinces I believe. Because she is healthy overall, I don't think they feel she needs the services of an OT or ST. I guess when she's 3 and still won't drink from a cup, maybe they'll reconsider, LOL! But seriously, I think time will tell, kwim? She's still pretty young and they are hoping she will just magically start eating these things and cup drinking. Frankly, that's what happened with her behaviour. Almost overnight, she began to eat pleasantly. And we're also going to test the positive peer pressure at daycare. If that doesn't get her to progress, we will have to re-evaluate. For now, I am satisfied that she's eating okay for a toddler and she takes her bottles willingly, I just want to see her gain some weight. Thanks so much for your input Sharon!!!
Sep 03, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I'd cancel - you're always so frustrated afterward. We don't have the same refusal issues as you have had, but we did have some issues with switching over to the cup. Switching H to a cup during the day was relatively easy, but we had some trouble getting rid of the last couple of "babas". I finally pulled them one at a time and just dealt with her refusal/screaming for a couple of days. She came around pretty quickly. We took the last of her bottles last week and now that she's over the "trauma" of it, she seems to be doing fine. I know you don't want to go cold turkey, but if Rory's stubborn, it may be worth a try for 3 or 4 days (maybe do a cup during the day and keep the bottle for nighttime for now). This won't be the last time you'll have a battle of wills ;-)
Sep 03, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i would keep it, you fought so hard for these appointments, what if later down the road Rory turns out to still not do so good, the Drs may looks at you not showing up at this clinic as a missed opportunity and may think you are not trying to do everything, i would keep it just so you can have the "professionals, however unprofessional they are..." tell you you don't need their services so that way in the future you can say that didn't work, cross out that option and hopefully move on to something more helpful. BUT on the other hand if it stresses you out too much and you REALLY truly believe Rory is okay and does not need that appt, call them up and tell them your concerns before you cancel to see if they agree or disagree. i know your decision will be the best one for you and rory :)
Sep 03, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
After hearing WHO you see I'd cancel. If your NOT seeing a medical therapy DR, an ST, OT, and PT while there or a dietician. YOu're NOT getting your time's worth out of it.

Is there a multi-disciplinary team in Canada for you to see???

Sep 04, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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After hearing what your "feeding team" consists of, I can now understand why the only approach they are using is a behavioral one, with positive reinforcement. I am sorry, but I think that is a bunch of hooey. A feeding team should have someone on it who is trained in MEDICAL feeding disorders, not just behavioral,a nd they don't even sound qualified to treat behavioral disorders!

I still think there is something to Rory's tongue thrust. It looks to me, from a video I saw, that it is NOT a behavioral thing, it looks like she can't help it! What do you think?

Sorry, but IMO, a feeding team should have an ST or at least an OT who is very comfortable with a realm of feeding issues. They don't sound like they are looking at the child as a whole, and they should have more than one approach up their sleeve for treatment....treatment is not a cookie cutter thing, everyone is different!

But like Kat said, if you want help down the line, it might be best to just go so you can show you consistently tried to help her in every way possible.

Sep 04, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Thanks gals! I am going to keep the appt until I speak with her pediatrician on the 15th. We have weights logged on both scales, so if she still hasn't gained, I'll see about them bringing in the dietician at the feeding clinic. I've voiced my concern here numerous times about the clinic and TRULY they aren't offering any other approaches to help with what I feel are her MAJOR issues, i.e. completely boycotting whole food groups, refusing anything but formula, and only drinking from her bottle. I use positive reinforcement all the time, but how to you reinforce something she is not willing to do, kwim? Anyway, I agree with you, Jess and Sharon, it's a bunch of hooey!!!! I'm done fighting though, for now. Like I said, her progression over time will be the indicator as to how we will proceed. Keeping the clinic as an option is my only option I guess. :(
Check with your
doctor first!