Posted By Posting
Sep 02, 2008
bellamomma2
Maria (27), mommy of 2 beautiful boys with spwcial needs. Raymond (2) born preemie NICU stay. Diagnosed with mild CP, Severe Reflux, and Trachealmalasia. Currently off all meds and doing excellent!!! William (11 mos) Full term suffered from Apnea episodes, on heart monitor for 4 months. Diagnosed with Severe Reflux, Trachialmalasia, milk sensitivity and other foor allergies. Currently on Prevacid and Nutramigen formula, trying milk slowly...Off thickened liquids now and doing well.
Update on Us!
Hi Ladies! Its Maria (BellaRia) for some reason the site doesn't recognize my old ID so I had to make a new one. I wanted to update you guys on the boys! Ray is doing excellent! Rx free for 4 months + now and doing awsome! No sign of any allergies or refluxand his CP doesn't seem to be holding him back at all. Hes going to be turning 3 next month, hard to believe!!! I'll try to post a couple pics... [IMG]http://img.photobucket.com/albums/v457/BellaTopia/7608Hug.jpg[/IMG] Hug Will is 11 months now, turning 1 on the 14th. My baby grew up soooooo fast! :o( He is now off thickened liquids and doing pretty good....still puking, but keep most down. We are slooooowly trying to introduce dairy and milk....baby steps.lol So far so good (fingers crossed) Will is still on the stupid liquid Prevacid (I hate that stuff). Hes almost walking and getting so big! YAY! [IMG]http://img.photobucket.com/albums/v457/BellaTopia/random008.jpg[/IMG] Photobucket We are finally back online, thank goodness. Its been horrible being cut off from everyone this summer. I have a laptop now with WiFi, so I'm 'borrowing' my neighbors signal.lol I'll be starting med school this January so life is getting busy!
Sep 02, 2008
bellamomma2
Maria (27), mommy of 2 beautiful boys with spwcial needs. Raymond (2) born preemie NICU stay. Diagnosed with mild CP, Severe Reflux, and Trachealmalasia. Currently off all meds and doing excellent!!! William (11 mos) Full term suffered from Apnea episodes, on heart monitor for 4 months. Diagnosed with Severe Reflux, Trachialmalasia, milk sensitivity and other foor allergies. Currently on Prevacid and Nutramigen formula, trying milk slowly...Off thickened liquids now and doing well.
Ray Photobucket
Sep 02, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Thanks for the update. So glad the boys are doing well. If you have any tips on weaning off dairy, let me know. Megan still has the yogurt she demands. It is amazing that you have gotten Ray RX free. It is nice to have encouraging news.
Sep 02, 2008
amber f
Wow, They are getting so big. Thanks for updating it is good to hear from you. The site was down for almost a week, a couple weeks ago and some lost their accts.
Sep 02, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Thank you for the update! so glad to hear your little men are doing so well. I LOVE the pics, too -they look so cute hugging!!!
Sep 02, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
HI there! we've missed ya. They look great! we are doing well with dairy (aside from stinky gas) but no vomiting. hope the trial continues to go well for you!
Sep 02, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
The boys look great! Excellent news about the med wean :-). Did you say you're going to MED SCHOOL? OMGosh - I thought my life was busy...
Sep 02, 2008
bellamomma2
Maria (27), mommy of 2 beautiful boys with spwcial needs. Raymond (2) born preemie NICU stay. Diagnosed with mild CP, Severe Reflux, and Trachealmalasia. Currently off all meds and doing excellent!!! William (11 mos) Full term suffered from Apnea episodes, on heart monitor for 4 months. Diagnosed with Severe Reflux, Trachialmalasia, milk sensitivity and other foor allergies. Currently on Prevacid and Nutramigen formula, trying milk slowly...Off thickened liquids now and doing well.
Yep, I start classes in January! I'm excited, but what was I thinking!lol
Check with your
doctor first!