Posted By Posting
Aug 31, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
scope coming up
Well, after a very long 3 months it is finally time for Katie's scope next week. Now that it is here we are very nervous and DH is trying to think of every reason not to do it. She has been doing much better since the ped GI visit in June when we added a second prevacid dose before dinner and removed lactose from her diet.

Would you absolutely go through with the scope no matter what. I would like to because we went through such a tough time when she was sick and we had to wait so long for the appt.

Then again, if she is managing O.K. should we put her through it?

Any thoughts?

Aug 31, 2008
engin117
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My previous drivers license was also stolen. The new one has extra security features on it.
I think you have to go on your mommie instinct here. If you do the scope ask for biopsies to check for everything: celiac, h.pylori, allergy cells, eosophils, ect.
Aug 31, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
It's scary, but I'm so glad we did it. I agree with engin117 - go with your instinct. If you've been dealing with it for 3 years, IMHO I'd want to check for damage and any other causes, and if nothing's there, at least there's peace of mind. We'll be thinking and praying for you!
Aug 31, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
I am w/ the pp's. If it were me tho, I would go through with it. You would hate to have a flare up and then wish you would have done it. This way you can see from this angle what is going on. Good luck. What day is the scope?
Aug 31, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
she is scheduled for next tues. You are all right. I need to get it done because when she gets another flare up I would be really upset to have missed the opportunity.

you all know how scary it is but I just need to get through it.

Aug 31, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
hmm. i don't know what i would do honestly. if you've seen a change with the milk removal then maybe she is one of those kids that does not outgrow it until 5 or 6? i know it is scary but maybe you should keep the appt. like all the pps said...sorry i'm not much help but will be thinking of you :)
Aug 31, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Do the scope. I won't lie - it is terrifying and for me, it was HORRIBLE because I was there watching when they put him under. I lost it and was running around the hospital crying. But if we hadn't done it, Sebastian would be so much worse off than now because we might not have stopped solids. Do it, do it, do it. He doesn't remember it at all now.
Aug 31, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
We just went thru it 3 days ago. It was scarey, but Jazzy is just about back to normal. And you definately don't want to miss this opportunity. It is in my opinion the best way that you can know for sure. As said above, if nothing else comes of it, you'll at least know if the Prevacid is helping to heal her esophagus. IMO...do it cuz you'll be kicking yourself if she starts to flare up again...
Aug 31, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Do it! Our Katie's scope is supposed to be next week too but we don't have a definite date yet. Our Katie doesn't seem to be in as much pain but I know she is uncomfortable and solids make it worse so I want to know what is going on. I have read they are only under for a short amount of time so I don't think they are under too deep; knowing that helps me.
Sep 01, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I agree with the pps - I'd do it. Best case scenario, you'll know that the changes you made were the key. If not, then hopefully you'll be able to get some answers. Good luck.
Check with your
doctor first!