Posted By Posting
Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Weight Loss
I'e written on this board briefly before. My son is 7 months old and has reflux on prevacid. We were at the doctor today because he's had a persistent fever and my son had lost weight. This is the second month in a row and I'm growing concerned. He's down to the 9th percentile from above the 50th. He eats about 40oz of pumped milk a day and two meals of solids plus snacks. He crawls, but I don't know where it's all going. (Although it does explain why he's waking up all night to eat!)

Is there something wrong with my milk? Should I switch him to formula? He has his first GI appt later in September and an appt with the allergist (also his first) Oct 1. Nothing any sooner. I'm worried to not do anything and worried that I'll do the wrong thing if I do try something. His doctor didn't have a lot of suggestions and just tried to reassure me and then asked "when does he get to see the GI doc again?" I've been trying to avoid milk in my diet, but I'm bad at this. Dairy was such a huge part of my diet that it's been hard to maintain my milk suppy between chasing a crawler, being up all night feeding him and having missed meals because I can't think of anything to eat. Any ideas what I should do?

Aug 30, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
hi, i remember you! your son has the same name as my husband... anyhow, to answer you quetions this all depends. my first question would be how big of a baby was he @ birth? many times big babies start out huge and level off around 6 mo and then start growing again. when did the weight loss start? in conjuction with this fever or before? by persistent fever what do you mean? he's had one for 2 months? did they do any cultures or anything?

br>
if they are concerned about FTT they may want to may want to do some endrocrinology tests to test his thyroid.. etc. etc. what state do you live in? do you have a newborn screen done? if so, do you know the results?

i don't think there could be anything wrong with your milk. it is supposed to be the best nutritionally unless he is having a malabsorption issue with foods in your diet. how are his stools? oily? normal? bloody? by all night how often are you nursing him? may i ask why he gets pumped milk? do you work? mabye he is nursing @ night for comfort?
Aug 30, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(

Hello! God, I am so sorry to hear you are feeling so frustrated. It is strange how some kids eat so much and don't gain and others don't eat much and pack on the pounds. Sebastian drinks 35oz of Neocate in a 24-hour period on average and eats NO solids, and he is huge. The Striderite salesperson actually called him fat today, and I did NOT appreciate it. Anyway, I'm off topic. I'm sorry!!!

Well, I certainly can relate when you say you can't think of anything to eat! I can't eat anything my son is allergic to when he is awake because he runs around like a madman and I need to be able to grab him at a moment's notice...and I can't do that with wheat on my hands! He also is a huge fan of putting his fingers in my mouth and biting my nose, so I have to be VERY careful during the day. So needless to say, my diet is limited...and it SUCKS. There are tons of foods without dairy in them...even Duncan Hines (or wait - it might be Betty Crocker...I have to check my pantry) cake mix is dairy free! Here are just a few dairy-free foods you can eat: Stroheman's breads with lunchmeat, bean burritos, pasta with marinara sauce or even with sausage and peppers or meatballs, Pillsbury breadsticks dipped in marinara sauce, frozen french fries, cut-up fruits and vegetables, canned chicken or tuna on pitas, burgers...there are actually tons fo dairy-free foods out there. I know how hard it is to figure the out, though, when you love dairy! I became lactose intolerant when I was pregnant and now I cannot even eat hard aged cheeses like they say I should be able to without paying a price! It just takes a little getting used to, you know? By the way, it probably wouldn't hurt to avoid soy, but then you get into some pretty tricky territory.

Do you have any other reasons to suspect allergies beyond the weight loss? Every case is different, but you'd probably notice other symptoms if an allergy were present - skin problems, screaming, vomiting, constipation, diarrhea, etc. I really hope it is NOT an allergy.

Thinking of you!

Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Thanks - you were of help last time. He's just had a fever every day this week. Just a respiratory thing it turns out. I don't think the fevers related. He was 8lb 6oz at birth, which I think is higher, but fairly average. He gained weight fantastically until I'd say around month 5 or so. When it slowed I didn't think much of it, but for the last two months he's lost weight. FIrst he was 18lb10oz at his 6 month visit, then a few weeks ago it was 18lb 1oz and now 17lb 3oz. (I guess he's almost 8 months, in another week or so). He did learn how to crawl a couple weeks ago, so that probably didn't help, he's always on the move.

We live in Washington and I believe they have extensive newborn screening and all of it was normal. His stools are irregular. He often gets constipated and then has multiple looser stools, but nothing oily or bloody. We just give him some juice/water to get things moving and this usually works.

Unfortunately, my little boy doesn't nurse anymore. He refused the breast at 6 weeks old and I couldn't ever get him back to it despite enormous effort. It was the reflux. I've pumped since. He used to BF at night in his sleep, but in the last few weeks he started refusing that and will only take a bottle of pumped milk, even at night. He's been eating up to half of his intake at night. He eats during the day a fair bit, but is still starving at night. He eats between 10 and 15 oz at night. We have bottle refusal issues when he's fully awake and so it's hard to get more into him during the daytime. He wont eat unless he's tired or REALLY hungry.

Aug 30, 2008
carmarhal
Adoptive mommy to Micah (Feb 2006), Caleb (Mar 2007; 26 wk preemie, subglottic stenosis, BPD, GERD, dysphagia, FTT, in PT, OT, ST, feeding therapy, 30 mg Prevacid daily, mostly pureed foods, shakes & Pediasure) and Ethan (Feb 2008; 28 wk preemie, BPD, GERD, 15 mg Prevacid daily, Similac Sensitive/Alimentum)
Does he ever cough or choke when he's drinking? Sometimes a persistent low-grade fever and URIs can be caused by aspiration. From what I understand it's very common in babies with reflux. Caleb wasn't diagnosed until 13 months (10 months adjusted).
Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Choking
He does cough and choke with the sippy cup. Not so much with the bottle unless he falls deeply asleep while he's still drinking, which I suppose happens about once every day or every other day.
Aug 30, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I hope I didn't seem insensitive when I talked about Sebastian's weight gain. I didn't mean to! I'm sorry if I upset you at all!
Aug 30, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
ok, that is a pretty average birthweight. i was 8 2. while crawling may help him thin out a bit that much of a weight loss would concern me as well. this is coming from a mom with a 16 lb 10.5 mo. old though and i'm constantly worried about weight.... mine and his, lol! the pedi doesn't seem concerned? with him drinking 40 oz a day and eating solid food you would definitely think that he continue to gain-minimally maybe-but not lose. i'd ask to be put on a wait list to see GI sooner .. or i'd even call your pedi and ask for a referral to endo/geneticist and see if you can get into them sooner... just a thought.. you can even get the ball rolling @ your pedi's office as far as blood work is concerned. they should be able to atleast send him for the thyroid workup

i commend you for pumping. in fact, i'm in adoration. i could not do it :( my son refused from the beginning and i tried so hard to pump. i even tried relacating but the stress just got to me... good for you!

is his reflux painful still or does the prevacid help?
Aug 30, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
melissa... you were'nt being insesitive.. just stating how it can be for some and not others. i understood where you were coming from! i got into an argument with dh last night because i was like "he can't live on formula alone" and pete so dearly remembered how wonderfully healthy bassy is on just 35 oz of formula a day... guess he shot my fears down.. lol..
Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Absolutely no offense taken about your kid's weight gain. That's great!
Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
His reflux seems under control pain wise. Although this is always tenuous. He still spits up on occassion and I see him swallow reflux when he burps. I don't much indication he has allergies. He had a high eosinophil count on a blood test. (He was also slightly anemic). I have allergies/asthma/eczema myself and have a strong family history. My husband's family is allergy free. We're seeing the allergist in a month just to make sure.
Aug 30, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Also, as for pumping - thanks for your support, but it hasn't been that bad. I had over-produciton problems which aggravated his reflux, causing him to quit nursing, but this made it pretty easy to pump. I commend you for trying to relactate etc. We went through all that because we couldn't figure out why he wouldn't nurse. I eventually had to just give up and switch to pumping because trying to nurse him was ruining me. I never did anything else!

Now I'm getting really tired of pumping because I have to pump more to make up for what he used to nurse at night and with giving him solids and having him mobile it's a chore to get it all in in one day, but I keep at it - mostly because I'm scared to give him the wrong formula and make his reflux worse/incur the cost of formula. But I think I'm going to talk to the GI about switching him because I can't keep pumping forever.

Aug 31, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Have you considered " beefing " your milk with formula powder? It does negate some of the wonderful things of breastmilk ( like not needing to be refridgerated right away ) but it can get extra calories into him. Your breastmilk, especially if you are pumping, may be thin because pumping often does not get the hindmilk. Hindmilk has WAY more calories... think of it as a bottle of fresh from the cow milk. The first stuff you get is skim - bluish watery milk. The very very last stuff out of the breast is thick, yellowish, and creamy. I don't know if you do breast compression while pumping, but it may help ooze out some of the fattier hindmilk.

Another concern would be that 40 oz of milk is a LOT. If he's losing weight on that ( if the milk is of the right caloric content... ) is that there is an underlying medical problem that is causing him to burn extra calories. Off the top of my head : CF, Mitocondrial Disorders, Heart Defects, and Lung disease can all cause extra calories to be burned.

If he's choking occasionally on his bottles, you might try thickening them. If he doesn't have any issue with rice cereal, you could try whizzing it into a fine dusty powder in the blender and adding it to his bottle. It will both thicken and add extra calories. If he can't do any cereals do to allergies, there is a product called " Simply Thick " that works wonders. While it is HORRIBLY expensive, it helps with aspiration. Many times, children can aspirate without coughing, turning blue, or having any other symptoms. Mila's only symptom of aspiration was the occasional cough and a bit of milk dribble.

Much love going out to you, as well.. I was SO THERE with you for MONTHS AND MONTHS. I'm surprised I made it.. I wanted to throw myself off a bridge because of lack of sleep!

Sep 07, 2008
babymomma1
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
I was out of town for a couple days. Thanks for your responses. I took my son to the baby center the day before yesterday and he had gained weight! Actually, he'd gained from his highest weight. I think the doctor's scale is wrong! This is such good news! It means that he's at least gaining, although it's slow (6 oz in 2 months). I'm going to take him back again in a few more days and see if he's gained any more or what. It's really hard to tell what's going on with the scales all being different. I don't know if he's weighed more than now or lost some or if this is his peak weight, etc. But at least I worry a little less. :)

It turns out he really is eating between 35 and 40 oz of milk a day. I kept track all week. It just seems crazy! He's a very active baby (he's just now 8 months old and he already has started cruising and he crawls everywhere and has for weeks), so maybe that explains part of it? I'm not sure. I'm still thinking of trying him on some formula later this week to see if it changes his intake. Trying to get that much food into him a day cuts into his sleep, etc and is very time consuming. Plus, I just can't pump that much. I'm having to dip into my freezer stash! Thanks for all the help everyone!

Check with your
doctor first!