Posted By Posting
Aug 30, 2008
munchi's mom
Mom of 6 week old little girl (my first child). Diagnosed with GERD and Allergic Collitis at 4 weeks of age. On Prevacid 15 mg daily and Acidophilus
New to Forum - looking for suggestions
Hi! I am a first time mother of a 7 week old little girl. My husband and I are at the end of our ropes! At 3 weeks of age, my daughter Zoe was diagnosed with Allergic Collitis. At that time, I cut all milk products and by products out of my diet and we put her on VSL3 (probiotics/acidophilus). A couple of days later I called the pediatrician back and we also started Prevacid 15 mg. daily. (I have since reading your postings cut it in half and am giving it twice a day). We have been giving her maalox as needed but I have started giving it to her 3 times a day (she hates it, any suggestions for getting it in her easier?). Despite all of these changes and interventions she is still miserable. Waking up crying inconsolably out of a sound sleep. Only will sleep being help upright in our arms. Her stools are so forceful and "packed" with so much gas! You can't even touch her belly without her crying. One positive is that she is really not a spitter. She spits up a little bit after feeds but no great vomitting. She is gaining weight well. The latest suggestion from my pedi after she consulted with pedi GI (we are waiting for a referral to see them in person) is to stop breast feeding her for the weekend and only give her Alimentum or Nutramigen. She seems more miserable to me as she loves to breastfeed and I am feeling so guilty depriving her of this even though I know it is probably better. I am hoping it is also short term. I guess that is enough history and rambling. I guess I am just looking for suggestions from anybody. Thanks for your help! . . Janell
Aug 30, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Looking for suggestions
Did anyone suggest you thicken the formula? Baby cereals never worked for Meggy and stopped up the nipples. We got Maalox flavored with Cherry and Meggy loved it. There is a prescription called Carafate. It works the same way as Maalox but is much stronger. You have to give either 1 hour before a meal or 2 hours after. Elevating Meggy's bed never has worked, she just rolls to the bottom. I was given a fisher price take along swing. I love it as she still uses it at 15 months old. It has just the right elevation for her. We can get her to sleep swinging and then stop the swinging while she is sleeping. There is something called a carrier that is similar to a car seat but you use it at home not in the car. There is not much padding in them so we put a egg crate mattress topper under the cover of the seat and buckled her in. We used a knife and stuck it through the holes of the carrier to get holes in the right place for the seat belt in the egg crate. This is to make the seat more comfy and prevent a flat head in the back. The carrier is useful because it has different levels of elevation. PPI's and H2 blockers have never helped with Meggy's pain as she has more spasms than anything. Levsin however did. I am sorry your little one is miserable and lack of sleep for every one makes it harder. Write back if you need more encouragement or suggestions. It is hard to have a little one that hurts so much and can bring feelings of helplessness. I don't know where you live but I will try to help in any way I can. The levsin may help with the gas but not sure. You would have to ask your pedi as it is a prescription anyway. Anise is a spice that I had a hard time finding but look it up as it also helps with gas and I feel it is safe for Meggy. Most peds do not advise to do so, but sometimes the only thing that helped Meggy with her tummy was a warm pack. You have to be extremely careful though as baby's skin burns so much easier than ours. For some children swings and rocking makes matters worse, especially if they have GERD. The swinging and rocking just sloshes everything around and hurts them more. Also how do you dress Zoe for sleep. Keeping her warmer may help with the wake up calls. Just keep a check on the back of her head and her back to make sure she is not too warm. If her head or back is wet, she is over dressed. Hopefully something I said will be helpful. Engi
Aug 30, 2008
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
hi there... sorry you are here but WELCOME!!! My DH and I are first time parents with a daughter too. Joslyn is 4.5 months old. Has your dd been dx with reflux? How about silent reflux? Joslyn is not a spitter but a silent refluxer... she refluxes up and then swallows it back down. I breastfeed as well and sometimes it is a challenge. How are you giving her the maalox? we use a small dropper that goes by little ml. it is a one ml dropper. any pharmacy has them. Joslyn takes her meds out of that dropper better than another one. You could try to get a reference to a gi spec from her pedi. Where are you from? there is a great place in ATL we go to. I hope something helps......let us know.
Aug 30, 2008
munchi's mom
Mom of 6 week old little girl (my first child). Diagnosed with GERD and Allergic Collitis at 4 weeks of age. On Prevacid 15 mg daily and Acidophilus
thank you for your quick responses. We currently have the cherry maalox but somebody said mylanta supreme tastes the best. We are going to try that and also I saw that some people suggested adding nestle strawberry quick to the med. I am going to try this also. Up until now, she has only been breastfed. This weekend we are trying formula only to see if she is better. Thanks for the idea of the levisin, I never thought of that and it truly does seem as she is spasming. We have been able to get some relief by putting her in her car seat but some GI's suggest against this as that type of position causes tension on the belly. She does like to lay on her belly, at times and I bought a movement monitor to monitor when she is sleeping this way. Have any of you been able to continue breastfeeding with a baby that has MPI?
Aug 30, 2008
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
My kids were milk/soy intolerant and then some. I had to cut many foods from my diet, but I successfully nursed them for 3 years each. If you need support while nursing and eliminating foods, I HIGHLY recommend HTH.
Aug 30, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
woah!! allergic colitus don't add nestle quick to med!!! my older dd had allergic colitus and the best thing is to keep her diet as simple as possible. Instead try adding the maloxx or mylanta to her bottles. I would love to write more but my 8 week old refluxer is unhappy in my arms... one more quick thing check out the elmination diet at and keep pumping while you give her formula. it takes 2 or less weeks for all offending proteins to leave yours and babies system when you get on the elmination diet, good luck and welcome, my e-mail is if you need more info!
Aug 30, 2008
munchi's mom
Mom of 6 week old little girl (my first child). Diagnosed with GERD and Allergic Collitis at 4 weeks of age. On Prevacid 15 mg daily and Acidophilus
thank you all so much for the support and comments. the website is great! your suggestions and feedback is wonderful. I am not optimistic that I will even go for 24 hours with the formula as she seems to be even worse and it has only been 8 hours! Have any of you ever had your child on sterroids to resolve a bad collitis? Zoe is definitely a silent refluxer and it is thought that she is refluxing due to the severity of her collitis. I am thinking the only way to resolve her collitis is with sterroids and/or antibiotics at this point. Any input?
Aug 30, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
Welcome to the message boards here. I am sorry to hear that you guys are having so much trouble. I think everyone else has covered any suggestion that I would have, except one.
For our little guy, swaddling works wonders to help him sleep. I'm not sure if you are doing this or not. Basically it doesn't do anything to help the reflux, but it helps to keep him from waking himself up once he falls asleep. Since your little one is a little older, I'd get a blanket that is at least 40x40, which I found at Target. I am mostly breastfeeding, though we do one bottle of Nutramigen per day, because sometimes he breastfeeds so fitfully that I am worn out at the end of the day. Like others have advised, I'd try what the pedi recommended for the weekend, but make sure that you pump for each feeding, just to keep your supply up.
Hope this helps,
Check with your
doctor first!