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Aug 30, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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A mild vent and good stuff too
What gives....? Elyse has been spitting up fairly regularly in her carseat lately and it is STRONGLY acidic. When will we kick this, I wonder? Don't get me wrong, I am LOVING the fact that she hardly ever spits/throws up and that she can eat real food now.

She is down to an average of 9 oz of formula a day now and will go as low as 5, but has a couple small cups of water/juice. I have been avoiding calling the pedi bc he usually makes light of my concerns regarding her feeding, preferring to leave it up to the GI. When I mentioned to the GI last week that she barely drinks any formula, he didn't really respond...??? Is it normal for kids her age to drink only about 8 oz or so of "milk" a day?

Now its time to make some of you verrrrry jealous...Bedtime has been a dream for about 4 days now, including naps. I have been able to put her in her bed wide awake and she will go to sleep on her own. Sometimes she will play for 30 minutes, but usually she is asleep in 5 minutes flat with little to no crying. HALLELUJAH! This after all the time of incessant crying, vomiting over the side of the crib, sleeping on the floor with her so I could get some rest, sleeping sitting up in a chiar, etc....soooo excited

Aug 30, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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I just did a little research and am still seeing the standard 16-24 oz a day of milk or formula. So true to form, my dd is still taking in half or less of what she should, as has been the case her whole life. The other day I ordered her elecare and the home health lady said, "is she still drinking 900 mls a day?" bc that is what her rx is written for and I was silent for a moment...she has NEVER drank that much in her whole life. I keep letting them send 2 cases a month so that when we lose our insurance we will have a safety net of stockpiled formula! shhhh!

We were also supposed to switch to the vanilla elecare and make it to 30 cal, but the home health was giving me a hard time about the way the rx was written, so I think I am not going to rock the boat, and just mix her regular flavor to 30 cal (GI said its fine and she doesn't drink the vanilla flavor any better)...I am afraid if I pursue it, the insurance co will review it and decide not to cover it or something! I freak out about stuff like that, the what ifs....

Aug 30, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
You might try flavouring it with strawberry Quick :-) Many kids really like it. I can't remember if Elyse has wheat issues, but I believe NesQuick is dairy free but has wheat. There are flavouring packets available on ebay but they are all being discontinued. Is she eating any REAL food?
Aug 30, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
What about that Ovaltine stuff? Can she have that? I hear it's healthy and it tastes like chocolate.

Great about her bed time. Isn't that nice? We are trying to eliminate the paci so bed time has been interesting. We let him have it at night if he asks for it but not for nap. He was just whining for 15 minutes for it. He doesn't use it 5 days a week at daycare so he isn't using it here either.

Aug 30, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I can't believe you're taking the chance of the jinx fairy visiting you at bedtime, lol. Love the pic!
Aug 30, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I was worried about switching to Elecare 1+ too because my insurance has been paying for my formula this whole time too. Luckily, mine doesn't seem to give a crap what I give him as we have switched 4 times now. I keep waiting for the day when they say my kiddo doesn't need it anymore and he is almost 20 months now. The elecare 1+ does have a better balance of nutrients for an older more active baby then the regular elecare does so you might want to give it a try. We aren't making ours to 30 cal/oz anymore but that is because my over-eater would eat 48 oz a day if I let him so we are back to making it 20-24 cal/oz. I would say as long as Elyse is eating a good balance of solids and doesn't seem dehydrated I wouldn't worry about the number of ounces she is getting anymore. And BIG CONGRATS on the good sleeping. Isn't it amazing how much better everyone feels when you are getting quality sleep! I hope that continues for you.
Aug 30, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I forgot to say I won't tell your insurance company if you won't tell mine that I have been stockpiling the Elecare too for the day they say enough is enough. We get two cases every month and he is maybe drinking 4 cans a month right now. Sometimes more and sometimes less depending on how much he is eating. So I totally understand. Luckily my insurance company doesn't ask me how much he is eating and really haven't asked since he was little.
Aug 30, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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LOL Mary, we are in the same boat. I will try the flavoring for milk and see how it goes. I am a little reluctant because of the sugar, but we can always wean her off the flavoring I guess! Sara, she does eat real food, but mostly fruits/vegs. We joke that she knows what the low calorie foods are bcause she will choose applesauce or squash over mac n cheese, chicken, crackers, etc.

She will taste meat now finally, and loves mozzarella cheese so she gets a cheese stick everyday. most foods that she eats she will only taste and then she's done, although we can ALWAYS count on the cheese stick. She will love something for a week and then she won't eat it again.

This morning she ate a few bites of yogurt and she had been off yogurt for a long time. I keep throwing stuff away bc it expires since she stops eating it....it's getting expensive, not to mention all the elecare that gets tossed.

Aug 30, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I'm sorry about the spitting up. I understand your frustrations :( coy is still puking too and it seems to be more lately since he's asking for more bottles & less formula possibly due to teething.. does she have those molars yet? maybe that is what's up?

Wow, i'm super jealous that the sleep fairy has visited your house! it's been so rough over here!! what good news.

you are right about the intake. in fact, my friend was 'counseled' if you will by her pedi about her non-refluxer who was not drinking enough milk.. however, i think if she gets a good amount of calcium & fat from other places then don't worry too much about the amount of formula..

you know, if she loves mozzarella so much you could try making a cheese sandwhich out of it and hiding some chicken inside. i did it for coy @ lunch today and he ate it!
Aug 31, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sharon, did you read my jinx post? I hope you are still safe after playing with fire by sharing your good sleep news!!!

Seriously, though, that is GREAT about the sleep...but I don't know much about the formula. It doesn't sound like quite enough to me. But maybe she just isn't thirsty. She is eating, so that's good. I would say as long as she is healthy, try not to stress. Ha! Easier said than done, right?

Check with your
doctor first!