Posted By Posting
Aug 29, 2008
Adoptive mommy to Micah (Feb 2006), Caleb (Mar 2007; 26 wk preemie, subglottic stenosis, BPD, GERD, dysphagia, FTT, in PT, OT, ST, feeding therapy, 30 mg Prevacid daily, mostly pureed foods, shakes & Pediasure) and Ethan (Feb 2008; 28 wk preemie, BPD, GERD, 15 mg Prevacid daily, Similac Sensitive/Alimentum)
Caleb GE study results... I guess
Well, I hadn't heard from the GI doc since the study was done on Tuesday, so I finally called his office and talked to a nurse. She pulled up the chart and said the doctor had reviewed the results but didn't leave any notes. She said if I haven't heard from him he must not have found anything he was worried about. Well, thanks for letting me know! Oh, well, I guess they don't understand we're on the edge of our seats waiting for the results? We have the upper GI on the 8th, so I guess I'll just hope we learn something then.
Aug 29, 2008
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
UGH, I hate that response! I hope you have a better outcome from it than we did with the pH probe -- it turned out they didn't call us with the results because there weren't any results, they'd placed the thing incorrectly (3 times) and botched the whole thing. It definitely seems to be that doctors don't understand the pins and needles we wait upon after these procedures...
Aug 29, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
that sucks!! Glad to hear that the results were likely negative, though. When Halley had her upper GI, we were able to have the radiologist walk us through what he saw during the exam. Hopefully you'll be as fortunate...much better than waiting!
Aug 30, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
What? that doesn't make any sense, really. They should still inform you of what they did find. i'd call back tuesday and ask to have the doctor call you!
Aug 30, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
We have had incorrect stuidies, misread results, doctors who were just plain WRONG, and doctors who completely disagreed with results. Is it possible for YOU to get a copy of the results so you can discuss them with the ped?

I spent all day yesterday trying to get the results from Mila's biopsies sent to me! " Please fax them to XXX-XXXX. "

We can't do that, they are confidential.

"I'm her mom, they aren't confidential to me. She is mine, the results of any tests DONE on her are mine. Please fax them. "

OKay! We will fax them at lunch.

" Its two oclock and I havent' recieved results yet. Please fax them to XXX-XXXX. I'm sorry to bug you but its friday."

Don't worry, they'll be there by 5:00.

Never got them!

Check with your
doctor first!