Posted By Posting
Aug 29, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
I know this had been said before but...
Why do people not understand how bad reflux is? Why do they think "oh well she is on medicine so she should be better." Why do they think that it is only reflux and it is not that bad? Joslyn has been having a ROUGH week during feedings. We figured it was her reflux flaring up so we put her back on medicine. DH's parents were visiting last Saturday and they were here while I was nursing joslyn... well she had a horrible time in screaming and arching her back and crying. MIL said "what is wrong with her?" Gee I dont know... maybe she is on PAIN! Maybe reflux is more than just a happy spitter. Maybe there is pain involved with it! Then yesterday she told me that they are all having a special bday dinner for a family member on Monday. It will be at 12 or 1. Well I told her that we may be late since her feeding is at 1 and with the horrible time she has been having during feedings I would want to feed her at home. She asked me "why not feed her at my house?" GEE WHIZ! I told her because she has been having a rough time.her repsponce..."is she only crying?" ARE YOU KIDDING? ONLY crying?! Now this is the MIL that came down to help us at scottish rite. She talked to the docs there, they were both there everyday. They know what we went through! And she is gonna say this?! She thinks that since she is on meds then she is better. Oh then she said that I need to stop eating yeast since yeast hurts her stomach! Gee thanks!!! Then she said that I should speak to a certain family member because she is "an old hat at breastfeeding and would probably be a wealth of information" to me! I said BF is no the issue! That she can not possibly eat if she is in pain! She responded... "true" GRRRRRRRRRRRRRRRRRRRRRRRRRRRR How aggravating! My DH is so amazing that he can not believe her (him mom). He knows that she will never fully understand. One of stephen's nephews (he will be 1 yr in November) was a happy spitter of reflux. So she is so used to him not having pain that she does not understand. GRRRRRRRRRRRRRRRRRRRRRR. Okay I am done. THANKS!
Aug 29, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Becasue no one who hasn't been there really understands. It's just one of those things that we will have to explain, again and again and again. It is so frustrating. I started saying, "You wouldn't understand but it is very serious and we take it so." That might be a little insulting, like they are too stupid to understand, but they threw out the first insult belittling A/R. Try not to let it bother you. It is easier said than done but try.
Aug 29, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Sorry you are dealing with that. I think everyone here has at one time or another. My sister had a daughter with reflux and she is still pretty unsympathetic to the situation because maalox helped my niece. You can always come here and get the understanding and patience not to mention an ear or shoulder to lean on. She is so cute in that pic. -Amanda
Aug 29, 2008
amber f
I think this is the bond that brings us all together here. We all "get it". But it gets exhausting trying to educate people again and again. (((HUGS)))
Aug 29, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I have come to the conclusion that noone will understand fully until they walk in your shoesfor a WHILE.
Aug 29, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
So been there, hon, and I'm sorry you are going through it. I have an 80 year old grandmother who would get upset when I would tell her Rory has reflux and is not growing as well as she should be and she's not eating. She'd huff and say, "well, she looks fine to me!" Finally, last week I told Nanny Rory was finally eating and she asked, "what was wrong" (dimentia), so I told her "Rory has Reflux Disease. When babies with reflux have trouble eating and growing, doctors now consider it to be an actual disease, Nanny".....and that actually satisfied her and she said, "well, I'm glad she is doing better" :) Most of my family pegged me as "overly paranoid" or dramatic. Mike's family, however, had the opportunity to visit her in the hospital and at home while she was in her vomiting stage, and Mike's dad says, "I've never seen anything like that in my life.....soooo much puke from such a small being".....luckily they "get it".

I've been there with the feeding troubles, honestly, I have. I CAN tell you it DOES get better with time. I was just reading posts from when Rory was smaller, and she was only drinking an avg of 16 oz a day. I can't imagine how difficult it must be to nurse and not know how much she's getting. It's horrible to see your lo in pain. :( Stay strong and don't let people who don't understand bother you, k?

Aug 29, 2008
amber f
BTW~ I really have to commend you on bfing. It seems like an up hill battle with an AR baby. You are doing an awesome job and I wish more people around you would tell you that. It still hurts that I had to give up bfing because he refused to latch and just screamed at the breast. I bfed my older two and no mater how much of an "old hat at breast feeding" you are it WILL NOT prepare you for what it is like to bf an AR baby. So Hugs to you for doing such a great job.
Aug 29, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
Photobucket
I also could echo your post exactly! We have gotten to the point where we lie to my in-laws, or leave out the gory details, because they would drive me absolutely crazy, calling incessantly to check in, as if I am an incompetent parent. (Meanwhile their other son has a 4 year old daughter who they have handicapped to the point where she can't climb stairs by herself, and she is 100% physically and mentally capable.) (sorry, I took over your post there for a minute)
I also commend you for sticking with the breastfeeding. I am dealing with it and have added formula to help my sanity, so sticking with it exclusively is a great commitment! As far as the yeast thing goes, I know when Ethan was having trouble with diary products in my diet, I had to get him to a point where his pain was managed before I could handle changing my diet so drastically. It was way too hard for me to deal with figuring out new things to eat when I was exhausted from lack of sleep and carrying around a cranky baby all day. I think you have to make that decision in your own way, no matter what MIL thinks.
Just take satisfaction in knowing that you are doing the best thing to help Joslyn. :) (((hugs)))
Aug 29, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
thanks everyone. I did not mean to vent but sometimes you have to. Merideth.. they dont even check in on her! Sad huh? For the most part bfing goes well.... like today she has done much better... knock on wood. But I thank you all for giving me a pat on the back. DH does the same thing... but it is nice to have other people do it too. Seeing how I am the only daughter in law who bfs. Thanks so much for the support everyone! I knew I could count on you all for that!
Check with your
doctor first!