Posted By Posting
Aug 29, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
My stubborn child is gaining weight
To recap the Geneticist we saw said the reason Katie isn't gaining weight is that she is stubborn and controlling her intake of food. Basically my 10 month old is anexoric in her opinion. Her GI switched her to Elecare and although she is taking in roughly the same fluid ounces she is gaining weight! I did go and buy a scale since my previous post about packing her scoops but she is gaining weight! 5 months on Alimentum with her only gaining a pound, sleeping up to 20 hours a day, not having the energy to move and after a week on Elecare she is sleeping like a 10 month old should, starting to sit up on her own and trying to pull up!! While I am so excited that she is doing better does this mean she has some protein intolerance to the Alimentum? At this point I don't care since she is physically doing better. Reflux in full flare again with being on solid food (pears, carrots, sweet potato and bananas) but she now has to energy to commando crawl straight to my granite apple from my days as a teacher and wield it like a weapon before I grab it!! Yea for Elecare and superyards that make my house look like a maze!!
Aug 29, 2008
amber f
That is so awesome! And you didn't need rehab to kick the anorexia:P
Aug 29, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
We have the superyards arranged in maze-like fashion as well :) ANd alimentum, although the proteins are broken-down, is I believe still milk-based (either that or nutram is, i can't remember). Elecare is what Elyse's GI calls "SUPERhypoallergenic". Does your insurance cover the elecare? Ours does after the yearly deductible (which we meet in JANUARY without fail due to all my issues and Elyse's past issues).
Aug 29, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I'm so glad she gained!! It's frustrating when doctors use terms like "stubborn". It might well be a control issue, but it's most likely related to her controlling the level of discomfort she is willing to tolerate, and not just the "need" to control, kwim? I think sometimes they can be insensitive about how they explain things. Maybe it's a time factor, I don't know, but it's aggravating to me when someone calls a reflux baby "stubborn". She's not stubborn, she's SMART!!! I'm glad she's tolerating the elecare and making advancements for you! HUGS!
Aug 29, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Alimentum has trace amounts of milk in it and Elecare doesn't...that may be the reason why elecare is tolerated and alimentum wasn't........just thought.

Glad you are seeing weight gains. Are't those just great!!!!!

Aug 29, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
That's GREAT! Glad she's "cooperating" ;-)
Aug 29, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hooray! I am so happy to hear this! All my friends always say that Neocate is superfood for Sebastian...I swear, he is like Hercules on this stuff. Sounds like Katie is, too! I tis amazing what kids become capable of when their bodies are feeling good again. BTW, your granite apple scares me.
Aug 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
wow, great news. maybe she has a malabsorption issue she has not been tested for? where do these doctors get their degrees from, seriously.
Aug 29, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
Photobucket
Hurray for Katie! I am so glad she is feeling energetic.
Check with your
doctor first!