Posted By Posting
Aug 28, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Niece's baby having surgery tomorrow (???)
I'm not sure exactly what the surgery is...I've never heard anybody here talk about it.

My sister isn't exactly up on terms and stuff so all I can tell you is what she told me. It's definitely not the fundo. She said that his "flap" (y'all know what I'm talking about) isn't working right at all so they are going to correct that. Also he isn't emptying. They pumped his tummy and the stuff inside was black. They're gonna do something about that.

I wish I knew more details. When I go see them tomorrow, I'll have to try to talk to a nurse or dr about it so I can know for myself.

Any of y'all have any ideas? I guess his weight gain was from holding in all that mess.

Aug 28, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
How old is he? sounds almost like a meconium blockage.
Aug 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Did she have an UGI done???

My nephew had surgery on his flap (epiglotis) to repair it. It was malformed at birth and was not caught until he was 5 years old. It took 2 surgeries to reapir.

He lived his whole life with what they thought was severe asthma and severe blue spells all the time. After the repair he is doing fantastic and is off asthma meds.

Aug 28, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
He's 3wks old. That sounds similar Jessica. Sarah, that makes sense!
Aug 28, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
They did do a ugi. She said he puked the whole time.
Aug 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
My nephews flap was "curled" downward so that every now and then it would stick shut and cause the breathing to stop and the blue spells.

I pray everthing goes well.

Aug 29, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
Photobucket
black like poo? If there is an intestinal blockage that is bad enough, poo will back up into the stomach. 3 weeks old....it could be hirshprungs (sp?).
Aug 29, 2008
amber f
I'll be thinking of the baby today. I hope they figure everything out.
Aug 29, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
poor little thing. :( I'll be praying for him.
Aug 29, 2008
daniejo
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Well, I know nothing about it...looking forward to hearing an update after you talk to the nurse. I will definitely keep him and your family in my prayers.
Aug 29, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Will be thinking of him and your niece today.
Aug 29, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Probably repairing the epiglotis. It can fall oddly and allow the stuff that should go down the Esophagus to accidently go down the Trachea. This will cause choking and gagging and aspiration (that's really bad).
Aug 29, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
"really bad" is a technical term I thought I'd throw in there, lol!
Aug 29, 2008
pattirow
Is it possible that it is pyloric stenosis and the flat she is referring to the pylorus? The stomach will not empty in a child with pyloric stenosis. I hope things went well and that the baby is doing better soon.
Aug 29, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Keep us posted. Melissa!!
Check with your
doctor first!