Posted By Posting
Aug 28, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Mila ( with lots of photos!)
Mila is doing really well. Her new gtube is doing FANTASTIC and I LOVE IT. I would do it again in 1 second flat. I would run a million miles to do it again. NOt inserting that stupid NG has made us BOTH happier and its AMAZING how fast she got over the trauma of surgery - by the time she came home, four days later, THERE WAS NO PAIN MEDS AT ALL!!! Not tylenol even! She NEVER got more than tylenol!!!

WE had her at the GI yesterday ( erm... tuesday? can't remember, not enough sleep ) and he said that her scope biopsies DID show some mild damage from the reflux, that her emptying was " slow " but not " terrible " and that her gtube site looks amazing. She is 21 lbs 10 oz and 83.5 cm long. On the weight for height chart ( basically BMI ) she is STILL under the 5% line. If the GI's scale is right, which may or may not be LOL.

You want pictures? OKAY!

Mila wearing her new rainbow leggings to help with potty training.

No tubes, no tape!

Aug 28, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
she is a cutie!!!!!!! Great news on the tubes... nor lack there of! hehe
Aug 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
She's soo cute!!!! That is the best thing about G tube, you can see the whole face all the time.
Aug 28, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
This is such GREAT news!!! She looks awesome :-)
Aug 28, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
shes sooooo beautiful! how you doing on potty training? emily has NO interest cept to try to flush things down the potty LOL
Aug 28, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
Photobucket
so cute. I really like those rainbow leggings. I'm glad the gtube is helping her feel better.
Aug 28, 2008
amber f
I love her curls. She is too cute!
Aug 28, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
How exciting for Mila (and mommy). Good luck with the potty. My lo wants to sit on the potty but pee in the tub. Could be worse!
Aug 29, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
She's such a little string bean! LOL! I'm in love with the leg warmers and MILA!!!
Aug 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
so adorable. those leg warmers! so cute!
Aug 29, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
So glad
Congratulations on the G-tube working out so far. I hope your progress continues and that there are no worries in the future. She looks like such a cutie pie.
Check with your
doctor first!