Posted By Posting
Aug 27, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
bandwagon jumper
yep bad day here too... yesterday i made myself a snack of tater tots-(i can't have milk so no cookies) i gave emily like 3 thinking well they are JUST potatoes. potatoes have a little bit of sugar in them but in 3 tater tots i was sure she could handle it. Well she was fussy last night fell asleep at 10pm. I was thinking reflux- b/c it has been bad since we restarted prevacid again.

audrey woke up at 11pm ate then promptly threw up fire hydrant projectile like 20 mins later, she cried on and off till 1 pm which scared me. she NEVER cries. she had two coughing/ chocking/ no breathing episodes (probably) from being upset and her stomach was gurgerling in furosity i wonder if it was from the increase of lactulose? but it was really scary.

audrey and emily both sleep late but when they wake up they are both unhappy. emily yells all day, i give her lunch again and i figured since she loved the tater tots yesterday i would give her more i gave her 6. about an hour later she has diarrhea, then another after that then another, then that rash appears (you know i asked about it in a post a while ago around her neck down her trunk and behind her elbows and knees) i read the package of tater tots thinking MAYBE there was sugar in it was SOY!!! there are freaking SOYBEANS in tater tots!!! so yeah that was my horrible feel sorry for myself day.
Aug 27, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
All I can say is I'm sorry. I can't seems to be in EVERYTHING!
Aug 27, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
I'm sorry about your bad day. (((hugs)))
Why do they have to sneak stuff in food? A mom with a child who has a gluten allergy said that McDonalds fries have wheat in them, of all things! Good grief, can't a potato be safe!
Aug 27, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
i'm sorry kat. i hope your girls feel better soon!
Aug 27, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
It was probably the oil. When I first started the elimination diet I was using vegetable oil aka soybean oil. What an idiot I was when I realized it. I feel like, why don't they call it soybean oil then!!! sorry you had a bad day.
Aug 27, 2008
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
So sorry! We had a bad day here too but not that bad! Hugs!
Aug 27, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Ugh. What a horrible day! It took me a bit to realize that the oil is soybean oil. What the heck???? Hopefully tomorrow is better!
Aug 28, 2008
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
soy??? i never would have thought! why can't they just be potatoes??? i hope today finds them better!
Check with your
doctor first!