Posted By Posting
Aug 27, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Calling All Mothers Who Know About IDEA Laws!!!!!
My sister's DD is DX with MR because of a rare genetic chromosome disorder. She is missing the tail end of the 10th chromosome. She is the 16th person in the WORLD to have this disorder. She doesn't speak. She signs for he communication quite extensively. The only reason for the MR DX is due to the fact that they do not *think* she will catch up enough to be DD.

That all said when they lived in VA all her classes were mainstreamed. It is the current trend in VA to have all children in a regular classroom and have aides or the sp. ed. teacher in the classroom. And they all teach "together". Let me tell you I have seen this in action recently and it is amazing.....

She passed K-5 (2x's needed) with NO exceptions being made except for the fact that her answers were given with sign instead of orally. She was only "pulled out" of her class for her OT, PT and ST seesions. Other that that, she was with the reg. K-5 class all day.

That brings me to their move to Texas.

My Mom talked to my sisters the other day and it seems that Rosie is in a self contained classroom and she is being taught "life skills". To me this doesn't even seem right. She is in with autistic children...ect....they seem to have them all lumped together.

Here in VA they were working on teaching her to read in the same manner that a deaf child would learn who to read.....I am just confused and am looking for some guidance as what to tell her when I call her this weekend. She was also set to be in a 1st grade classroom that had a teacher who could sign and speak at the same time and many of the students would be deaf.

To me it would be that with IDEA Rosie should be place in the Least Restrictive Envirnment...(LRE) So that should be in a class with "normal" children where she can learn with them.

Let me tell you she may not be able to tak but she is a smart kid. She knows her numbers and all the letters of the alphabet. She can sign them. She knows all her colors can dress herself. Basically she can do anything that a reg K-5 student can do except talk. She has some motor coordination issues due to the chromosome disorder she has but she can walk, run, pump her legs on the swing......ect....She can follow commands if you tell her to do something.

She cannot ride a bike or jump or tie her shoes.

So is this just a Texas thing.....the separating some children OUT of the classroom.

She just turned 7 years old and she is going into 1st grade.

HELP!!!!

Aug 27, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Jessica, my dh is a public school principal in Texas and is very familiar with special ed laws. Please email me and I will see what he can do to help you. My email is dmyers5375@yahoo.com
Aug 27, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
To further clarify, he's an ELEMENTARY principal, so he should have a lot of pertinent info.
Aug 27, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
One question - where in Texas are they going?
Aug 27, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
There are near Austin. I have this posted on P2P and some of the Mothers there in Tx are sayiing this should NOT be happening....I'll e-mail this post to you so yo ucan pass it to your DH. THANKS!!!!
Aug 27, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Yes, I was also wondering where in Texas. The schools I worked in had inclusion classes as do they in our area we are in now, tho they do have a separate class for severe MR children that can't feed, or use the restroom ect. Those kids are in a lifeskills class. I will say Texas is not the greatest, but each district varies. Most of the time (in my experience) the kiddos cycled in and out from class to lab as did an aid.
Aug 27, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Also, they may realize that she is capable of being in an inclusion class and move her.
Aug 27, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
They should be ahving a big IEP meeting soon so hopefully they will move her.
Aug 27, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Ok, I was going to suggest IEP but since that is already happening. It really depends on her IEP. I have substituted in a classroom for a friend who had a student who was deaf and had an intrepriter(can't spell) and I have a friend who signs and teaches but her class is SDC.
Aug 28, 2008
3blues21pink
Yeah, and IEP needs to happen. I am in Texas and this is not right. In fact, mainstreaming is a good thing. So good that I worked in a day care setting through Easter Seals, pre-family, that mainstreamed these kids in with non-special needs children so that they would have one less hurdle when they got to school (seeing kids that were different, being around kids that could do more than they could, etc). They were all together in a daycare setting and would be pulled only to have their designated therapies. It was incredible. It worked because the schools felt mainstreaming, when appropriate and when able, was good for all concerned. I would have them put their foot down. If she's capable, she should be mainstreamed. I have a friend (and boy I can't remember her title) that works with kids being mainstreamed. She's their aide, their help, their shadow, etc. If they have a special need in their classroom, that's her entire job. I hope this works out for her best interest.
Aug 28, 2008
azmom
Mom to Ian, 3/1/07
Used Zantac - 1.0 ml twice a day
Weaned at 1 year
Back on Zantac at 15 months
Her IEP is a contract that the school has to follow. If mom doesn't agree with her new classification, accomodations, or LRE, make sure she doesn't sign the new IEP. Or she can sign and circle disagree. The school is legally obligated to follow the IEP. Some parents here in Arizona have hired legal child advocates to bring to the IEP meetings. Good luck!
Aug 28, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Hi Jessica - I had my dh read your post last night and he said that at his school your niece would be placed in a class similar to that in VA. He has some reasons why they may be (temporarily) placing her in that class. It sounds like it's a temporary thing for the first 30 days until they can do an assessment. I'll have him email you directly (his email is tvessakosol@yahoo.com - in case it gets stuck in your spam filter).
Aug 28, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Thansk Donessa
That is what we are hoping that it is a temp. thing until her IEP meeting.
Check with your
doctor first!