Posted By Posting
Aug 27, 2008
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Melissa~Sebastian's Mommy
I was watching Mystery Diagnosis last night on TLC and it was about a baby who vomited frequently so I watched thinking about Katie but this baby was far more severe than her. I kept watching and the symptoms were that this baby vomits everything up, whole bottles and sometimes more. Solid food made it so much worse and they finally got a good GI who scoped him and they tested him for Mastocytosis. I know that Bassy has had several scopes but since your GI sounds less than wonderful I thought this might be something they didn't look for. He now takes medication and is on a strict diet but doesn't vomit and sleeps now. Not sure if this actually fits but it made me think of you guys so I wanted to pass it on!
Aug 27, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
Hey, I saw that too...and thought that could be the answer for someone possibly!!!!1
Aug 27, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hey Tracey (and Jessica)! Thanks for thinking of us. I went for MONTHS having no idea what the hell was wrong with Sebastian and having no clue why he puked all the time. We are pretty sure tha it is related to post-nasal drip.I guess babies don't know how to not swallow it and they obviosly can't blow their noses, so I guess it sits in Sebastian's stomach and just waits for a chance to come back up. Honestly, now that we are in a carpet-free home (it took a while, though), the vomiting (I am scared to say this) is WAAAYYYYY less frequent. WAY LESS. I am hoping that with our cleaner home, this could be the beginning of the end of Sebastian's vomiting. I am an idiot for writing this. DAMN ME. I better get off this jinxed post ASAP. Thanks again, though!!
Aug 27, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
i came upon this when researching coy's issues. but it would have been cool to see it on t.v.
Aug 27, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I saw that same episode on discovery health a few weeks back and was going to post about it, but it slipped my mind.
Check with your
doctor first!