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Aug 26, 2008
brailyn's_mom
Need advice/suggestions on reflux
I have a 4 1/2 month old daughter who has reflux. Her father had relux and stomach problems when he was a baby and still has reflux. She has projectile vomit throughout the day. She will throw up from feeding time to feeding time. She chokes on her vomit too. We have tried EVERYTHING! Her pedi put her on zantac, then Axid, I have tried the rice in her formula. I was breastfeeding but stopped due to her reflux because she wouldn't latch on. I have tried reducing her amount that she eats. She typically eats 4oz every 3 hours sometimes every 2 1/2 hrs. So I reduced it to 3 oz. I use the similac altrium or whatever formula. Its for fussiness and spit up. Its a soy base formula. She is very cranky. She also gets very anxious right before she throws up. I have her sit up for 1/2 an hr after feeding. She sleeps in an upright position as well. I just feel like something else is going on. Nothing else has worked. Please help. Has anyone else been through the same thing? Any advice is welcome! Thank You, Brailyn's mom
Aug 26, 2008
amber f
Hello and Welcome. I have just a few things that I'm going to throw out there that you could check with your doc. abt. Do you have an history of food allergies in you family? My son didn't but so many people on here have had an allergy that was causing a lot of acid reflux issues. Many are on very expensive formulas that are broken down for their kids sensitive stomaches. We went from Zantac to prilosec to prevacid. Prevacid has been a life saver. The right med has made all the difference in my son. We are still on meds but his reflux is almost 100% under control. I know a lot of other parents on here have found prevacid to work the best. Switching meds can take a few weeks to kick in. So a lot of us have used mylanta for break through pain between doses of prevacid. I'm not sure how axid works but has she been on it awhile? Axid is the same kind of med as Zantac~ an H2 blocker. Prevacid is a PPI. So maybe switching to a PPI would help. That is something you could talk to your doc. about. These are just somethings that I have learned on here and I hope I helped some. You are not alone in this. Ask any ?s you have here. This is a great place for support and help. Post often. Amber F
Aug 26, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
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Hi, and welcome.
I am the mom to a four month old son, who was diagnosed with reflux at about 2 weeks. From our perspective, it has been like a puzzle trying to figure out exactly what is causing all of the symptoms, and then figuring out how to control them.
I'll put some things that we tried out there, and hopefully some of these will help your baby girl. We started on Zantac, but didn't get any real help from that, so we started on Prevacid, 15mg once per day, but after reading on here talked to the pedi about splitting the dose in half and giving it morning and evening. That has been a huge help, and we saw a dramatic improvement fairly quickly.
After we saw improvement from that, we still had some symptoms, so we started trying to figure out food allergies. I am mostly breastfeeding, and we discovered that he was reacting to milk products in my diet. According to my PAGER learnings, it can take a couple of weeks for this protein in milk to get out of their system, so depending on how long ago you stopped breastfeeding, there could still be some of that lurking.
Ethan is using the Enfamil Nutramigen when he takes formula, which is a formula where the milk protein is broken down, making it work for most babies with Milk Protein Intolerance. I know that a lot of people on here have found that milk and soy allergies go hand in hand, so that might be a good place to look as well.
Unlike many of the other kids on here, he seems to do better feeding every four hours, eating 6 or so ounces of formula, or however much breastmilk he takes.
I hope this helps some. Please post for support anytime. For me, knowing that I can go to this supportive group makes all the difference in the world in how I deal with the challenges that we face. It also helps me to get a few new ideas when nothing else seems to be working. Meridith
Aug 26, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
reflux emergency
My daughter's projectile vomiting was so bad she was losing weight. We eventually went to rice milk (doesn't have nutrition a baby needs) and then goats milk (nutritionist says it puts their kidney's on overload) Her doctor's said we were not doing what was best for her but I think we were. She kept the goat and rice milk down without a problem. We tried every over the counter formula we could find and several of the very expensive elemental formulas without any relief. She was actually worse on the elemental formulas. Her allergy test all came back negative except pork and shellfish. After extensive research and comparison and calling every formula company, I had a lot of data. Soy, milk, and the elemental formulas all contain corn. The elemental formulas have a lot more corn. So say if your baby is having more trouble with allimentum or nutramigen than with just a basic formula maybe corn intolerance, sensitivity, or allergy is a possibility. If they are all about the same, check the oil content. I think they all share common oils. Also corn and soy formulas both have soy! Go figure. If you look at all the formulas you have tried, look at the order of their ingredients. The order they are in is how much the formula contains. For instance if the first ingredient is corn, there is more corn than any other ingredient in the formula. What formuls companies don't tell u is that anything they coat the container with does not have to be listed as an ingredient. After sitting on the shelf for so long it may leach into the formula or food. As my daughter could not even tolerate the baby food in jars. I did enough research to find this out. She never tolerated baby cereals either, but she could tolerate basic adult oatmeal without a problem. She can also tolerate malt-o-meal without a problem. Malt-o-meal can also be found where adult oatmeal is, and has a lot of nutrition. I had to make tough decisions to take a chance on letting her have adult foods because she certainly was not receiving nourishment when she could not keep formula down. We even made her baby foods ourselves to avoid preservatives. Bananas and avacado's is what we started with and just used a fork. When checking ingredients it may be hard to realize what is what. Corn and dairy have about 50 names each. You can google for corn and corn products, ect. to get a list. I am sure other ingredients would be the same in that they have more than one name. Hope something in this long message is useful. Engi
Aug 26, 2008
brailyn's_mom
thx for the suggestions.
Hi and thank you Amber F, Ethan's mom, and engin117. I appreciate all the advice. I never thought of the food allergy. I didn't know that about the formula ( corn and etc.) And with the breastfeeding, its only been a couple of weeks since I have stopped. Brailyn has been on axid for about 2 weeks as well. I'm definitely gonna as her pedi about prevacid. What dose do you recommend of mylanta between doses of her medicine? Does it work well? I have to admit it is really nice to come across this site.! I get some comfort in knowing that there are other parents out there dealing with the same thing. Thank you so much for the advice! I'm a little bit more prepared (knowing what questions to ask) when I take her to the Dr. this week. So thank you. Oh by the way, can anyone explain to me how to put a picture up? I would like to put my daughters picture up. Amber B.
Aug 26, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Hello and welcome! My first question would be what does your dd's bm's look like? Are they runny or mucosy? If so that could be an indication of a milk or soy INTOLERANCE. Also called MSPI. I also agree w/ Amberf that a stronger med such as a PPI is needed. Keep in mind that the meds will not keep her from throwing up but they should stop or neutralize the acid. Are you seeing a GI? I would def recommend that. They are of course more knowledgable and they tend to be more aggressive in treating the reflux. Sounds like your dd may also have some choking issues and be at risk for aspirating. I would ask about having a Bariium Swallow Test done and testing for DGE (delayed gastric emptying). I could me w/ the right meds and formula tho these other issues will go away. Also, many babies here w/ reflux have a hard time w/ rice cereal. It is very hard for them to digest. I would ask the pedi or GI about thickening w/ oatmeal or other thickeners such as Simply Thick (it is odorless, colorless and tasteless). That one is great unless you are trying to add calories.

I know this is a lot to take in, but it does get better in time. I would suggest finding a pedi GI first and foremost and then go from there. Also there are bottles (like dr. brown's) that tend to be better for refluxers. Good luck and ask as many question's as needed. This place has been great for myself and my dd! Jennifer

Aug 26, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Oh ya-prevacid can take up to 6wk to kick in. I would also ask the doc about staying on the zantac or axid until it kicks in. With the prevacid you also want to ask for the solutabs not the compound. After a couple of wks the compound becomes ineffective. If you dd is having watery or mucosy stools I would def ask about trying a more broken down formula (very expensive but you can get it off ebay much cheaper) like neocate or elecare. hopefully your insurance is one of the few who would cover it. there are also OTC ones like nutrigamin and alimentum that have the proteins more broken down than regular formula's but not like the neocate and elecare which are amino acid based. Sorry to write so much just had some more thoughts come to me!
Aug 26, 2008
brailyn's_mom
Hi mommyto2. It most definitely is a lot to take in. :) And it doesn't make it any better, me being a first time mom.. Have I mentioned that I HAVE NO clue on what I'm doing.. :D Just doing my best. My daughter's BM's are thick, dark and kind of mucusy. She also has (what looks like) phlem in her throw up and spit up. Its mucosy as well. Sometimes it has a brownish pink tint little chunks in it. Could that be acid? She isn't congested or anything. The pedi told me not to worry about it. She does have some choking issues. She almost always chokes on her vomit. Bless her heart. And she, what seems to me, holds her breath for a few seconds...? It happens seconds before she throws up, when she is anxious. I appreciate all your advice. Thank you. This new mom has a lot to learn. :) Amber B.
Aug 26, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
HI Amber. Glad you found us. I too tried BF but could not due to latch issues. My son was tongue-tied. After having his frenlum clipped his suck/swallow got much better. They stop checking for this even tho it is "in" to BF again. Maybe you can ask about that with your pedi.

My son was a preemie so we were told to use neosure. he projectile vomited this formula. We then when to similac isomil because my mom said my sister did fine on soy. he projectile vomited constantly and out the nose on this formula. it was so bad that you could here his stomach rumbling and then bam! out it came. when you say your daugter is on altrium do you mean alimenum? in the purple can? if so, this is not soy. this is what my son uses and the only thing that stopped the projectile vomit. he still refluxes (even @ a 1yr old) but does not PUKE..you may need to try an elemental formula as others have suggested. anyhow, Has your daughter been checked for pyloric stenosis? had an upper GI or anything?

for some kiddos, 1/2 hour is not enough. and, it is better for them to be straight up and down rather than sitting (compresses tummy). do you have a bjorn & a excersaucer? these are great @ that age to keep them upright after eating.
Aug 26, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Ugh. I was a first time mom to a major vomiter/refluxer. It was like the exerosist (sp). The mucos in the bm's to me would be a strong indication of mspi-milk soy protein intolerance. There is a big difference to an allergy vs an intolerance. Both of mine had the phlem in the vomit as well. The brownish/pink tint to me might indicate something major. IF she was on prevacid solutabs it could be that, but since she isn't I would def bring it up. Her throat is probably also very irritated as well. I don't want to scare you about the tint of the vomit but it is nothing to shrug off.

You are a great mom in coming here and trying to learn everything you can to help your dd. The worst part of the reflux rollercoaster is there isn't a right or wrong. Every baby responds diff to meds and not one baby on here is on the exact same med or dose formula combo. That make it SO freaking hard. I would also def not shrug off the choking on her own vomit.

Are you seeing a GI? I am not saying your pedi is bad, but like I said before a GI is much more aggressive and would know all of these signs to look for. You are a great mom and keep up the good work. We have all been at the end of our ropes and know where you are. Ask all the question's you want. That is what we are here for!

Aug 26, 2008
amber f
Putting a picture up: 1st you need to open up a photobucket.com acct. (it's free) and then upload your pic. to that. Copy the directlink code under the pic. And paste that into your profile page and check to make sure none of the code repeats like the http: . Then click update and it should pop up. This is how I do it anyway and I hope you can figure it out. Heck if I can do it then you should be able to. I'm not exactly computer smart:) Good luck at the doc this week and update as to what they say:)
Aug 27, 2008
brailyn's_mom
Hi mom2coy, thank you, I tried putting her in her jumper this am and it seemed to help a little.. She has only thrown up 3 times compared to 5 or 6. This is something I'm def gonna keep up. Mommyto2: I haven't taken Brailyn to a GI, After yesterday and what I learned I am def going to. I'm gonna take her to her pedi this week on thurs, see if he can refer me to a good one. It does kinda scare me about the pinkish/brown tent chunks though. I hope her dr can give me some answers this week. Keeping my fingers crossed. Thank you for the encouragement! It has gotten a bit overwhelming. My heart just breaks for her. Well thank you and I will post an update on what her dr say. :) Amber F: Finally figured out the pic, took a few times but I got it. Thank you! ( I'm not pc literate either.. lol.) To everyone. Have a good day, and again thank you all for your help.. It is MUCH APPRECIATED!!!! Amber B.
Check with your
doctor first!