Posted By Posting
Aug 25, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Reflux and Allergies
I guess I spoke too soon on Adriane's progress. We have had a major set back, so bad I am thinking of putting her back on the prevacid. She was refluxing really badly last night. She started crying around 10:50 or 11 pm last night. DH went to check on her and she was so upset and couldn't stop gasping for air. He thought it was a night terror, which Morgan had for years. I went and got her and put her in bed with us. She was wheezing and refluxing so badly. I figured out that is why she couldn't catch her breath. Then I felt her legs and she had hives everywhere. She was so swollen when I turned on the lights to investigate. I proceeded with the benadryl and breathing treatments and she was finally comfortable enough to get to sleep but no one and nothing could be touching her. She was miserable, flailing and gaspign for air all night.

My question is, have any of you had major set backs like this? THose have had allergy testing, how many triggers actually tested correctly on the test. She has horrible reactions to rice and that one showed up on her tests. She has had other reactions to things that didn't show up on her test. Beef showed up on her test and as long as it is hormone free and all natural she can eat it. I know that reaction trumps test results but it is so frustrating. I didn't want to use the epi pen but we have had two nights lately that I thought I might and last night was I prepared to do so but things improved some.

Should I start back on the Prevacid?

Aug 25, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
My son surprised me by not having Dairy come up on his test (RAST and skin). He double surprised me by having Peanuts come up. He had never had them to that point to my knowledge. What you just described is very scary. I am surprised you didn't hit her with the epi-pen. As soon as the breathing is influnced they say you should. Don't be afraid to use it. That's what it is there for and you don't have alot of time to stop a total anaphalaxis. This is what I would do I would take her to the doctor, tell them what happened and bring a list of everything everyone in the house ate that day. Maybe there was some cross contamination and they can figure out what caused that reaction. At this point the anaphylactic reactions she continues to have are the serious and concerning issue. They are only going to get worse each time she has one. The AR issue can be addressed once the allergies are under control. Probably the AR will subside once the allergy triggers are removed. Good Luck.
Aug 25, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I'm sorry that Adriane's going through and you too mom! Jasmine's tests didn't show any trigger foods, yet we have a couple that she reacts to severely. Have you put a call in to your Ped? Going back on the previcid may take too long for her to get any relief, so hopefully her Ped can guide you there..... Good luck
Aug 25, 2008
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Thanks for the insight. I really have been scared to use the epi but then again scared not too. I'm sure you know what I mean. I know what you are saying about it getting worse each time. We have had three reactions in the past week. One from a small sip of milk from the only other little at the babysitter's house. The other was from one cheeto. Each time they have been progressively worse. We had given her grilled chicken and cantaloupe but we washed everythign really well and she has never had a reaction from any of it before. The only thing I can think of is the seasoning from our chicken cross contaminated.

I picked her up on my planning period and ran her 40 minutes into town to the chiro and called her allergists on the way. They are getting us in tomorrow. The excema is worse and her hives are making the excema worse and scabbing over. Hopefully, they will have some answers for me. Until then I will take heed on the epi info. Thanks! -Amanda

Aug 25, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Definitely watch the seasoning. From what I understand, if a kid (or anyone, actually) is allergic to one, he or she is allergic to them ALL because they are all processed 1) on the same lines and 2) are cross contaminated because they are often airborne. The particles are so tiny that there is no way you are getting, for example pure cinnamon when you buy a container of it!

Sebastian has three types of allergies, and only one type (the Type 1) shows up on the test. His worst are eggs, milk, and bananas, and only eggs shows up on the test...and that is the only one of the three to which he has not reacted yet. USE THAT EPIPEN NEXT TIME. Honestly, Adriane could get hives from a food one time, have diarrhea from the same food another time, and go into shock from it a third time...so just assume that any allergic reaction is life threatening. YOu just NEVER know. I strongly suggest you avoid giving her beef if she tested positive for it. Like sesame and cinnamon, beef is widely being considered more and more allergenic and the more she eats it (since she already has the antibodies in her system), the more likely she is to have a very serious reaction to it one day. She's not going to develop a tolerance for it if she consumes it.

I know that Sebastian's problems - according to our beloved allergist - are 90% food related and 10% reflux related...and his reflux gets way out of whack when he has a reaction. As she improves, so will her reflux.

Also keep in mind that many of the allergies that don't show up on the RAST and SPT are going to be delayed reactions - you may see hives, but the diarrhea and/or vomiting won't start for two or three days.

Hope your littl eone feels better soon. I know what you are going through.
Check with your
doctor first!