Posted By Posting
Aug 24, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Late Update from Mommyto2
I am so sorry! I hated leaving yall hanging. The doctor's office of course did not call at 9 like they said...go figure. Here is what we know so far. My blood count has not dropped hardly at all. 3 wks ago when we had a heartbeat and took it my counts were 28,000. When taken on Thursday (almost 2wks post m/c) they were only 18,000. So a D&C is a must. I am keeping my appt. tomorrow morning and we are also discussing a hysterectomy (sp). I have come to terms w/ this if that is what it takes. It will still be a bit hard, but I have had problems w/ endo since I was in 6th or 7th grade! I would love to know what it is like not to be in pain one week a month! I have been on b/c for 15 yrs so either way I look at it I am on a pill for ever! My appt is at 10:40 TX time. I am sure it will be a long one so I will update tomorrow afternoon (I promise). I have still been having the bleeding and horrible cramping and side pain. This they can not pin point. That is what the talk of the hyst. is for. I just want this over so I can have closure!

Thanks for the support and prayers!!!! J

Aug 24, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Forgot to add-we were heading out of town to go to dh's grandparent's 60th anniversary party on Friday. I had to get out the door at 10:00am and the doc's office did not call until then.
Aug 25, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I pray everything goes well for you. the knicked me out fro my D and C so I don't remember a thing. I hope this will be the end of the pain issues as well. MY futire SIL has edo. and she says it is extrmemly painful.

AS as a side note....my grandparents just celebrated their 60th weddign anniversary as well. What an accomplishment.

Will be thinkin' about you. HUGS

Aug 25, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
Last night I passed another huge "something." I called the nurse and her first thought was a twin... Good thing I go and see the doc today.
Aug 25, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Glad to hear an update. I'm so sorry you are going through all of this. Like I said b4, I've had endo since my teens too and it is awful. It certainly makes a hyst not seem so bad! Where in TX do you live? We live in North TX around Wichita Falls and Cooper goes to Cooks in Ft Worth. We moved from the Austin area a year ago, so we know the state pretty well. I didn't realize you were a Texas girl too!
Aug 25, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
I was thinking twin too before (With my pager MD) but since they didn't see anything else, I thought I was crazy. Maybe now that you passed whatever it was, your bleeding will stop on it's own. I hope you don't have a hysto just because you are young and the hormone thing is harder the younger you are. I know you can handle it but I still hope you don't have to. Good luck and keep us in the loop. Congrats that you still have your grandparents and that they are so devoted to each other!
Aug 25, 2008
amber f
Thanks for the update. I have been thinking of you a lot. I hope you appt goes well. A twin... OMG... The rollercoaster continues.
Aug 25, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We have a lady at church who miscarried a twin and carried the other to term. She's now about 23 years old. My heart jsut go out to you sweetie. I really pray you get some answers soon. HUGS
Aug 25, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Yeah, I forgot to comment on that too. My sil got pg on the pill. She had really high labs, but lots of bleeding. She past something that she thought was the baby after they had seen a h/b. When my nephew was born last August, there was 2 placentas, so they know now that it was a twin.
Aug 25, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Good to hear from you. praying all goes well! love the new pic! she's so pretty!
Aug 25, 2008
sadie
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
I'm thinking of you today! I'm sure sorry for all you've been through!
Check with your
doctor first!