Posted By Posting
Aug 24, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Niece's baby update
I went to see them today while I was in my hometown. He does have the apnea monitor. I showed her how to elevate the mattress of his bed. I showed her how to hold him upright to feed him and stuff. I didn't do it in a "you're doing it wrong" type of way. I just took him and his bottle and did it without saying a word. It may have been total coincidence, but he didn't throw up like they say he has been doing. I burped him 3 times for one of the tiny bottles and then he burped a few more when he was done. I didn't hear any funny noises. So maybe she learned by example. I was proud of them bc they asked me some questions about milk intolerance and it's connection to reflux. It's not like them to ask me questions. My niece was very shaken up by all this. I do seriously believe it has had a lasting effect on her. She said "EVERYBODY SAYS THINGS CHANGE AFTER YOU HAVE A BABY. AND NOW I SEE WHY." Their whole situation is bad, but I try to stay positive bc plenty of successful people have came out of situations worse than theirs.

A little aside: the hospital there S-U-C-K-S!!! She had no choice but to take him there that night/morning. She said a nurse pulled him by his arm and I know people exaggerate stuff, but at this hospital, I believe it. She said she got in the nurse's face and told her she better leave the room now. The nurse told her SHE NEEDS TO RESPECT HER ELDERS. My niece told her respect is something you EARN. LOL I hate that she has a potty mouth and is quick to start stuff, but we all know that if anybody messes with our baby, it's on, lol. OH, and she pulled his monitors off in the hospital and she said it beeped for over an hour before anybody came in there to check on him. She was proving a point. PATHETIC!

Aug 24, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
God...that is HORRIBLE?? Where does she live, anyway? I feel so bad for her and for her baby. The smoke-filled home is what keeps eating at me. That is so bad for ANYONE...and for babies, well, we all know how terrible that is. And the poor little boy, too. Well, at least your niece has you.
Aug 24, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yep, (oh btw, maggie says yep all the time) it's sad. My family lives an hour away, still in upstate SC. I'd put the town but ya know, it's the net....The hospital doesn't have a good reputation.
Aug 25, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
That is really crappy, but I totally understand. Our local hospital sucks! I took Cooper once and they sent him straight home and told me he was fine and not to take him to another dr or ER. The next week we were at the Children's hospital where we were told he might have cf! It was crazy how they blew me off.
Aug 25, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
There is a hospital down the street from my sister that everyone says is "where you go to die." It's like five years old, and it is not like we live 9,000,000 miles from an urban center or something (my sister lives in the suburbs of Baltimore!). They are always amputating the wrong leg or letting people bleed to death in their waiting rooms. My dad had chest pains a year ago and my mom took him there and my brother, sister and I were like, "Oh no! Mom, how could you do this to Dad! Now he doesn't have a chance!" (Dad is fine, by the way).
Aug 26, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yeah, luckily they said if it's his lungs, they're gonna send him here to the children's hospital!!
Check with your
doctor first!