Posted By Posting
Aug 24, 2008
Connor DOB 5/24/07. Diagnosed with Laryngomalacia and enlarged epiglottis resulting in GER. Currently taking Prevacid 15mg in the AM and 7.5 PM and Mylanta for break through. Pic: I found my Easter bucket!!!
Connor update! (its me!)
Oh my goodness, where has time gone!!?? I miss yous guys so much. I still think about you often. I've been able to read a few posts tonight, but will NEVER be able to catch up on them all.

Connor is doing well. He has been med free for about 2 months now. He still has a few episodes that we notice him reflux and we've been giving him Tums to help with that.

As the "oldies" know... we also had some major issues with sleep. Months ago we had some blood work done at the ER when he was there and it showed him to be "somewhat" anemic. At a WIC check up it was a little worse, so we made an appt with the pedi and she did YET ANOTHER check and it was worse than the WIC appt so she put him on mega doses of iron... about one week later, he started sleeping "through" the night. When the iron Rx ran out, it didn't take more than a week or so before he was back up again every few hours... I begged for more iron, but Dr. wouldn't budge because his "last level was within normal range". I put him on OTC supplements with iron.. and now he will actually sleep THROUGH the night... finally at 15 months!

When I think back to the days before our diagnosis... I can see clearly all the signs of AR and I so wish I could share them with all of the moms to be. I have contacted an OB nurse that I know here locally, and she's going to put me in touch with the lactation consultant and one of the girls in the social services office in hopes that I can share my experiences with them, and hope they can help to educate moms on the early symptoms of AR. She would like to see them incorporate "AR Education" into their prebirth class that everyone attends.

This post is getting rediculously long, so I'll end it here... PLEASE, PLEASE PLEASE e mail me updates!! I'd love to hear from you all!
Aug 24, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hey girl! I thought about you the other day in the mountains. We saw a really old church and I wondered what your church building might look like. I miss you!

I'm working full time now, you might already know that. I can't remember.

That's really cool about the nurse and lact. cons. doing that stuff. Maybe you can get a job doing that??? I'd love to see a current pic of our fella. I'm gonna copy this and email it, just in case.

Aug 24, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I've been wondering how you've been! Glad to hear that Connor is doing so well...yeah on the med wean!! I'm amazed that it was something as *simple* as an iron supplement to help him sleep through the night. We're still fighting that battle (at 17 1/2 months **yawn**). Keep checking in - we miss you!
Aug 24, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Hey Mel. I am not of often enough either these days. I get on here and there to play doctor. That sounds bad but I am sure you know what I mean. So happy that your little guy is doing better. ~Ronya
Aug 25, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Glad to hear from you. I am so glad he is doing well. Crazy what an iron supp can do! How's his stridor, is it completely gone yet? Cooper's is much better, but still there.
Aug 25, 2008
amber f
Hey Mel! It is good to hear from you! Hooray for sleeping through the night! Good for you on geting in touch with social services. You could prevent many babies from suffering so long by educating moms on what to look for. Take care and stop by from time to time. I think about you 2 often. You were one of the 1st people to post when I first signed on. You made me feel so relieved to know that others were going through this!
Aug 26, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
that is so great you are getting the word out, i so wish i had even heard a slight blrup about the possibility of AR (or even colic) before emily was born. that is crazy about the iron and how much of a difference it made. didn't the dr realize his iron stats were good b/c he was ON iron???? common sense! i'm so glad to hear from you :):)
Check with your
doctor first!