Posted By Posting
Aug 23, 2008
carmarhal
Adoptive mommy to Micah (Feb 2006), Caleb (Mar 2007; 26 wk preemie, subglottic stenosis, BPD, GERD, dysphagia, FTT, in PT, OT, ST, feeding therapy, 30 mg Prevacid daily, mostly pureed foods, shakes & Pediasure) and Ethan (Feb 2008; 28 wk preemie, BPD, GERD, 15 mg Prevacid daily, Similac Sensitive/Alimentum)
Developmental milestones and GERD
Does anyone have any concerns about their baby learning to roll over, etc. when they have to be elevated so much of the time? I put Ethan on his tummy a couple of times a day, and flat on his back, but he usually ends up puking. The rest of the day, if he's not being held, he's in the bouncer, the exersaucer, the baby swing, or the Tucker Sling. It seems he's going to be delayed if I don't let him puke more, and I'm afraid he'll have lessened strength to hit these milestones if he throws up more! Any thoughts?
Aug 24, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i don't want to seem rude but are you adjusting his milestones to his adjusted age?? if you are, i'm sorry! even if you are adjusting GERD really dose seem to put a damper on milestones for some kiddos. my first dd, who was 2 weeks late, was quick to learn to stand and even though she knew how to sit she preferred (and quickly learned how) to stand. i think b/c of GERD. i am not sure on this particular point but i would be inclined to say, if he is not in pain after he throws up, maybe it might be okay to keep him in tummy time?? maybe other moms will help with this! good luck!
Aug 24, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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My dd was delayed at first even when her age was adjusted....I didn't worry too much bc preemies have their own timetable anyway, and she caught up in her own time. She sat up late, but after she got that down she started crawling right away and walking soon after! We were really amazed that our dd, who was 50% delayed early on in motor milestones even with age adjusted, began walking well at 10 mos adjusted! There are a lot of moms here I think who had LOs who hated tummy time like Elyse and can attribute it to reflux. At the time, I felt it was better for her to keep in more food than to worry about meeting timelines.
Aug 24, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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PS....you must be on the west coast???? We always post at the same time of night :)
Aug 24, 2008
katiesmommy
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!

Hi! Katie is about 3 months behind developmentally, at least physically since she talks. She is 10 months and just recently started commando crawling and can't pull up, put herself into a sitting position, do the pincher grasp, or stand without a lot of support around her torso. She has been referred to the developmentalist/neurologist b/c of these issues. It took her a really long time to sit on her own and she still can't sit upright if her legs are not in front of her so when we grocery shop she has to be buckled in or she tips over. She learned how to roll back to front fairly quickly but was around 8 months when she rolled tummy to back.

How old is he adjusted? Katie would scream if I put her on her tummy or back and that would make her puke.

Aug 24, 2008
carmarhal
Adoptive mommy to Micah (Feb 2006), Caleb (Mar 2007; 26 wk preemie, subglottic stenosis, BPD, GERD, dysphagia, FTT, in PT, OT, ST, feeding therapy, 30 mg Prevacid daily, mostly pureed foods, shakes & Pediasure) and Ethan (Feb 2008; 28 wk preemie, BPD, GERD, 15 mg Prevacid daily, Similac Sensitive/Alimentum)
Ethan is 3 months and 3 weeks adjusted age. So far he is pretty much on track, but he should soon be turning over and I wonder when he'll find the time!

P.S. Yes, I'm in the west (Washington)
Aug 24, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I think a lot of reflux kiddos are late on their milestones - I guess it's because they've spent so much energy dealing with pain and discomfort. My dd has been running on the long side of normal with most things. She sat up unassisted at 7 months, started commando crawling at 9 months and walked at 14 months. She didn't really start talking until 16 months. It sounds like you're doing the right things - giving him tummy time, etc. One thing that helped my dd with her vomiting when on her tummy was to place her chest down on her boppy (it kept some of the pressure off her belly). Eventually she started holding herself up more and more and then started pushing herself over it.
Aug 24, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Does anyone have any concerns about their baby learning to roll over, etc. when they have to be elevated so much of the time? yes. i'm sure many of coyle's issue with tightness stem from his sleeping position and the fact that we held him constantly for 3 months than almost constantly for many more. what is important though is that you are doing what you would be doing even for a baby who does not puke. You can keep the sessions limited to 5 min at a time and do it when he has not eaten for atleast 1.5 hours. This is what i did. I also propped him on a boppy or rolled up towels.

also, I think what everyone has to keep in mind is that developmental checklist offers a range because not all children can hit milesontes at the same age. for example, rolling over from tummy to back might happen early for tummy sleepers (yep, there are some out there).. mine did it at 3.5 mo. adjusted. the range is from 2-4.5 months. however, it is no longer a reliable milestone because so many kids are back sleepers and actually learn to roll back to front first. this really cant be accomplished until adequate trunk muscles are developed-sometime between 5-8 mo.

at any rate, my son sat up late. he was not sitting alone unassisted until 8.5 mo. unadjusted. but, once he did he quickly went to getting him self to sitting, hand & knees crawling.. and now he is 10.5 mo adjusted and is beginning to stand on his own. limited, but doing it. but you know what, he has 5 more months before he can really be considered "delayed" also, practice and perservance make perfect. he'll get to it in his own time.. i'm sure! just keep doing what you are doing.
Aug 24, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I was worried that reflux would prevent Sebastian from hitting his milestones, so I sort of pushed him to do tummy time,etc, even when he was throwing up every time. I just kept the sessions short...and kept him naked! This ensured a happy baby, at least part of the time. His reflux was pretty bad at that point, and I didn't know when it would get better, so I pushed anyway. But he has hit the major ones on time or earlier, so the reflux didn't stop the physical milestones...but it DEFINITELY affected those associated with food. I guess when eating hurts, you don't want to do it...
Aug 24, 2008
azmom
Mom to Ian, 3/1/07
Used Zantac - 1.0 ml twice a day
Weaned at 1 year
Back on Zantac at 15 months
My Ian crawled late (almost 8 months) , but walked right on time (12 months). And he was running soon after. I used an old-school walker because I had to keep him upright before and after feedings. That may be why. Tummy time is so hard for Gerd babies. I used the boppy sometimes to prop him up a little on his tummy.
Aug 25, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Cooper was quite delayed, rolling at 5mo very seldom. But now, i would say he's more on the advanced side, pulling up and trying to stand on his own. So once we got the reflux under control and he started gaining weight, he caught up quite quickly. You have the prematurity and the gerd working against you, so he could be more delayed. But, just think in kindergarten no one will ask, "hey when did you roll over"
Check with your
doctor first!