Posted By Posting
Aug 22, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Elyse's GI appt
For starters, Yay, we don't go back for 3 mos :) She is 21 lbs (YAY again!) and oops I forgot to ask how tall when she was measured. DOH!! He wants her to stay on her Zantac and Elecare for now, but to continue to offer milk (which she won't touch right now)and milk products. He said she could do rice milk if she ate plenty of other protein, so that is out of the question (she eats almost no protein). He wrote a new rx to try the Elecare for one year+ kiddos. I also asked about bottles bc she won't touch formula in a cup (any kind of cup, i have tried pretty much all of them!!) He is fine with her staying on the bottle until TWO!!! Man I hope it does not go that far. I am the mommy who wanted her babies off bottle and pacifier by 12 mos. HAHAHAHAHA

We went to pizza tonight and she would only drink water and ate a little crust. And no formula since 8:30 this am. The little stinker! HOPE EVERYONE HAS A GREAT WEEKEND!!

Aug 23, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh thats good! i thought emily would be on the bottle until 2 too, which our GI also said was okay, but to my surprise at 14 months she just kicked the bottle on her own. i left out sippie cups all over the house and watched her with them, i kept out the ones that she would play with the most and put things i knew she liked to drink in them (which was mostly water) and pretty soon she was drinking out of a cup pretty well. when it came time to try milk in a cup instead of a bottle i would cuddle up with her (which is our nap time routine) and offer her a cup of milk if she refused i would give her her bottle, i kept doing this letting her know the cup was going to be offered everyday and pretty soon she was drinking out of it. the night time bottle was the bigger battle but it went down much the same way. good luck with the elecare+ :)
Aug 23, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
YAH!! Good news!! Jazzy wouldn't touch sippys until I introduced a sippy straw cup....then it was love at first sip!!
Aug 23, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Kat, I LOVE your suggestions for transitioning to a cup! I am going to leave out all the different sippies with water in them to see if I can get her to use something other than take n toss. b-girl....we have a couple straw cups too, she will take a sip or a few and then ALL DONE!
Aug 23, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Her weight is great. That is such good news. I'm sure you were so excited to hear that. I hope things continue to go well and she start taking a cup and some dairy now and again. About the bottle/paci. My mom always says, "when you have kids, make your words sweet, so they'll taste better going down!" LOL
Aug 24, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
yay for the 21 pounds!! that's awesome! good luck with the elecare + how is her reflux.
Aug 24, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Yay for the 21 pounds!! Boo for the no formula, but I am hoping she had a better day today. Bleh!
Check with your
doctor first!