Posted By Posting
Aug 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Am I crazy to be worried....
that Rory STILL only weighs 18lbs 5 oz at 17 months old? I mean, all the doctors say her bmi is within normal limits...it's like, 10%, and anything BELOW that is considered underweight, but she's only gained 14 oz in 5 months!!!

We've cut her formula down to 24 oz/day, and she IS eating now finally. I know I should give it more time to see a gain because she's only been eating for a couple weeks. I thought I'd at least see a few oz gain. :(

I need the truth....should I just stop worrying, or should I put a call into the ped to at least let her know how I'm concerned about this. If it were your lo, would YOU be concerned? There's not much more we can do, except increase her formula cals, but the doc said 30 cal is only for *sick* babies......I guess I'm just venting because I'm disappointed. I was hoping for 19lbs today because she's been eating.

Aug 21, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazz is pretty samll too, 20 lbs at 19 months. I think the key is that she IS gaining. If she is steadily gaining then that's good, but if you notice that she loses NRG fast etc... then there's a problem. It really can't hurt to call her Doc though. One thing that I know is ALWAYS go with MOM's instinct!!!
Aug 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Well, this is easy for me to say because Halley hasn't had weight gain issues, but I'd try to give it a little more time. The lack of weight gain could be because she's much more active now and is burning off any extra calories. I'm guessing that now that she's eating more solids, the weight will start creeping up. I think if she's healthy and happy, then she's probably just fine, if a little petite (she'll be glad for that later in life LOL!) Are you or her daddy small?
Aug 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Yes, we are both small. Genetics plays a part, as does her activity level, I suppose. It's just that she usually averaged about 1/2 lb a month, and was following her curve, but she's only gained just under a lb in 5 months, is WAY off the chart and is no longer following her own curve.... The irony is that she has stopped gaining since we started the feeding clinic, which is the OPPOSITE effect I wanted to have. She has NO lack of energy WHATSOVER....so I guess, the consensus is NOT TO WORRY???!!!! :) Thought so, but I just can't help it. I guess I'll wait until her 18 mos check up, to give it time. WHY must we worry so???
Aug 21, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
I am with you..... different ages but same boat. Joslyn is in the 10% (sometimes less) for her weight. She is 4 months old and maybe weighs 12 lbs. That is a stretch. Our doc has not had a concern about it wither since she has been gaining a pound a month. But we are concerned. She has enogh set backs and we dont want her to be labeled failure to thrive. We go back next week for her doc visit and we will bring it up to her then. I would let the doc know your concerns. It could not hurt!!!!!!
Aug 21, 2008
ceramom
Sarah
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Enough is enough. Go ahead and increase her calories or give her pediasure. Its ridiculous. You ARE worried. You can't help it, you're her mother, and she's all skin and bones. Find a new pediatrician or take matters into your own hands, my dear, and just DON"T TELL THEM.

Yes, her BMI is on the very very lowest, hanging off the cliff, range of normal. She's nice and active. But two or three days of having a cold or a day of tummy flu and that child is going to PLUMMET. I'd increase the calories in her last bottle of the day, or the bottle right before nap. And I'd add a few drops of oil or butter to things it won't be noticed in - just a tad, mind you, so she doesn't taste it.

PERSONALLY, I would NOT accept that she's SUPPOSED to look like an ethiopian. I just... As a MOTHER, ( not a doctor ), you have the right to do whatever the heck you want!

Sure, she looks great RIGHT NOW, health wise, but what happens this winter? I think she needs more calories.

( Disclaimer : I'm STILL not a doctor. )

Aug 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Sarah, you bring up a point that I never considered....Rory's never been sick before, but she's starting daycare next month, so it WOULD be bad if she got sick and stopped eating/drinking. I have been adding butter to her potatoes, cream cheese on bread and crackers, butter and whole milk in her soup, CIB in her ice cream. It's not that the ped said I *can't* increase her calories in her formula, she just doesn't think it's necessary. Ugh. Pediasure: two problems #1: She WON'T drink it, even if I mix it with formula and #2, if I did wean her onto it, it would be far too expensive. It's 33.99 for 12 cans. Not that I wouldn't be willing to buy it, IF I knew I wasn't going to be pouring it down the sink. I guess I'm just sick of worrying about it, especially if I don't need to be.
Aug 21, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Can she have dairy????? You can add heavy whipping cream to her last bottle of the day. TALK ABOUT A CALORIE BOOSTER....it has 50 clas per 1/2 oz.....TONS!!!!!!

BTW I have been known to give heavy whipping cream to Jedd straight with nothing else......(I'm hiding now)

You do what you ahve to do to get the weight on and worry about it all later.

I agree with Sarah, I would want her fattend up some. Esp. with daycare starting. NOt only with sickness but that fact that she will be tons more active at daycare. Running, playing, ect.....she gonna need more becasue she is gonna be buring it off.

My concern would be that she hasn't tripled her birth weight yet.

Has the feeding clinic given you any suggestions on boosting her calories??? Did you talk to the dieticain ther and what were her suggestions????

You feed her soup right??? Add some non salted butter to that. She won't tast it and it will add cals. You can also add 1/2 and 1/2 or melted cream cheese to things and she woudln't bat an eyelash. What about adding extra powder to her formula?? She over a year so she should be taking a mix of 30cals ad oz verses the under 1 mix of 20 cals per oz.

There are TONS of ways to boost cals without a child knowing.

Again like Sarah I'm not a Dr. these ar ejus tthings we did from day one with Jedd. And BTW the Drs. all knew we were doing them and told us to do it to get weight on.
Aug 21, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
HUGS
Why I didn't put that in last time....

You are her Mother there will not be a day in YOUR life that you will not be worried about Rory. From her first day of K-5 till she gets married and then when she has children you will STILL worry about her. IT's because you LOVE her dearly and unconditionaly and want the VERY BEST for her!!!!!

You're doing a good job. It's hard I now but keep it up. One day this will all be in the past and then we will all rejoice.
Aug 21, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Well, you know where I stand on this one. As the mom to an 11.5 mo. old (10.5 adjusted) who weighs 16 pounds he is not even on the charts. Granted, he weighed 4.5 pounds @ birth. Granted he is following a normal growth pattern (i've plotted it a billion gazillion times).. but I STILL WORRY! Now that Coyle is FINALLY eating some real foods I'm doing what you are doing. I add butter to everything; i give him undiluted juice (and yes i get the *bad mom* stares for that one); he's had wafers, and all sorts of high cal foods. I'll do anything to put weight on him. i feed him @ night too AND he's been on 24 to 27 cal/oz formula for over 7 mo.. i'm anxiously awaiting his 1 YR well check. I hate that I have to think about my weight (i'm over, lol) AND my son who is underweight.

so, what would I do? i wouldn't add anything to her bottles since she's already had an aversion before. She's drinking them now so i'd leave that alone. but, i WOULD add a little extra formula in there. it certainly can not hurt her-up to 30 cal is acceptable. i'd also keep giving her the high cal foods like you've been doing.

have U plotted her growth yourself b4? if not, i'll do it for you if you want. What I did the other night was plot my size and my husband's size on there. my DH is in the 5% for weight! and let me tell you, he is one FIT 46 yr old. built like a brick. will probably live to be 100. i'm in the 50% but i'm overweight. for height i'm 5%. my dh is 25%-50%... my family is full of thin, jewish people.. so, part of me thinks he got the good genes, kwim... but, that doesn't mean that i stop worrying or stop trying to ensure that he gains an appropriate amount of weight. so, my advice to you is Worry but don't Freak out. and, if you feel it is necessary you can always get the opinion of another doc if you can manage that??
Aug 21, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
You can always call if you're concerned. I asked my mom (since everyone thinks my dd is about 7 mos - she's 11) what I weighed at a year. She looked it up - at my 12 mo I was 16 lbs even, at another visit about 3 months after that I was 17 lbs 3 oz. I'm only 5'2" and hit about 100 on a good day. Genetics play a huge part - at 9 mos pregnant, I was only 124! I wouldn't worry too much - just give her some time. Fat and muscle do take time to build up, contrary to what everyone in the diet industry says!
Aug 21, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
How is her height to weight ratio? The ped likes them to be the same or weight slightly lower. My son was always 90th percentile in weight and height so they never had a problem with his weight. Now he is 80-90 (h-w) but I think he is about to grow.
Aug 21, 2008
amber f
You aren't crazy. Kids do slow down in their weight gain but in Rory's case I would try to sneak in as much calories as you can and give it some time. If she still isn't gaining at the next appt then I'd be worried.
Aug 21, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
OOOOOHHHHH, Daycare. Now the sick rollercoaster starts. My son was sick constantly for the first 9 months he was in daycare. He only got well when cold season stopped this year. It'll all start over again when the older brothers and sisters of the kiddies start school. They bring all that stuff home and the little ones get sick again. Vicious, vicious cycle.
Aug 21, 2008
amber f
Yes I agree daycare and school exposes kids to germs. I get sick more often having all these germ magnets here. But I also think of all the immunities they have built up. Dylan who is in 2nd grade has never missed school because he was sick. He would get sick at daycare all the time. Just something to remind yourself when you are getting fed up with all the sickies going around that hopefully when your child gets to school and needs to be well to concentrate, they don't get sick.
Aug 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
You know, that's a good point about the daycare. I don't want to scare you, but Halley has been sick constantly since last August when we started daycare (and she had exactly one illness prior to that). It wouldn't take many illnesses to erase any weight gains Rory's had. Maybe it would be a good idea to add as many extra calories as you can now. The fact that she is eating more now is definitely in your favor.
Aug 21, 2008
baby esme
My daughter has always been small. At birth she only weighed 4.5 lbs. At a year she was barley hitting 17 pounds and at 17 months she was about 19. Esmé has always been small. She has always been below the 10%. Esmé is an extremely picky eater. She does not eat what I would consider to be a balanced diet for a 23 month old. I am always worried and I continue to do all the things you do do make meals more "FATTY". However, I am barely 5 feet and my husband is 5"6. We are very thin. I think that genetics play a huge role in the way our children are going to look. Also, I agree with what everyone has said about getting sick. Last week Esmé had the stomach flu and sure enough she didn't eat a thing. My first thought was...god she is going to lose some pounds. She drank her milk and juice and to my shock, didn't lose very much. She lost about 3 oz. and then gained it back when she started eating. I wish you luck and I think that you are doing a fantastic job!!!!!
Aug 22, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Its not going to hurt her one bit to try to increase her calories to help give her growth a kick start. Go for it! I would go ahead (if it was me)and increase the calories in her formula,I agree with Sarah, dont bother telling the doctor. Jessica (jeddsmommy) gave you some wonderful ideas, I have always been amazed with how well she has done increasing jedds calories to get him gaining, great ideas.Fortify her food as you can, and since she is still within"normal" although low limits, try not to worry too much.
Check with your
doctor first!