Posted By Posting
Aug 21, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Stumped...need help
Jasmine gets a really round moon like face every 7-14 days, and then the very next day she looks normal again. It's not allergy related, and I can't figure it out. It literally looks like she's gained 10 lbs for a day, even her trunk looks bigger, but not her arms or legs? Any ideas????
Aug 21, 2008
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
hmmmm....not sure. Could she be retaining water? Like, on a particular day, could she have eaten lots of salty stuff? Does it coincide with her poop patterns? That's an odd one? Hope you find an answer!
Aug 21, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I thought salt maybe, but doesn't seem to be related? I am super stumped!!
Aug 21, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I think I'd put a call into the pedi. I was thinking that maybe it's a kidney issue, but it's strange that it's only in her upper body.
Aug 21, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
my thought..... maybe poop related? When does she poop?
Aug 21, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Does her head get bigger or just her face? If her head gets bigger, take her in asap.
Aug 21, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
http://www.nlm.nih.gov/medlineplus/ency/article/003105.htm
Alternative Names Puffy face; Swelling of the face; Moon face; Facial edema Definition Return to top Facial swelling is the build-up of fluid in the face. Swelling may also affect the neck and upper arms. Considerations Return to top If the facial swelling is mild, it may be hard to detect. To assist the health care provider in diagnosing the cause, it is important to note the following: Pain, and where it hurts How long the swelling has lasted What makes it better or worse If you have other symptoms Causes Return to top Allergic reaction (such as allergic rhinitis, hay fever, or a bee sting) Angioedema Blood transfusion reaction Cellulitis Conjunctivitis with swelling around the eye(s) Drug reactions, including those due to aspirin, penicillin, sulfa, glucocorticoids, and others Head, nose, or jaw surgery Injury or trauma to the face (such as a burn) Malnutrition (when severe) Obesity Sinusitis Stye with swelling around the infected eye Tooth abscess Home Care Return to top Apply cold compresses to reduce swelling from an injury. Raise the head of the bed (or use extra pillows) to help reduce facial swelling. When to Contact a Medical Professional Return to top You should call your health care provider if you have: Sudden, painful, or severe facial swelling Facial swelling that lasts a while, particularly if it is getting worse over time Difficulty breathing Fever, tenderness, or redness, which suggests infection What to Expect at Your Office Visit Return to top If facial swelling is caused by burns, or respiratory distress is present, emergency measures must be taken first. Then the medical history will be obtained and a physical examination performed. Medical history questions documenting facial swelling in detail may include the following: How long has the facial swelling lasted? When did it begin? What makes it worse? What makes it better? What is your height and weight? How is your diet? Has there been exposure to something to which the person may be allergic (an antigen)? What medication are you taking? Have you had recent facial injury? Have you had a recent test or surgical procedure? What other symptoms are also present? Especially, is there: Facial pain Sneezing Difficulty breathing Hives or rash Eye redness Fever Diagnostic tests will be determined by other accompanying symptoms and results of the physical examination. Update Date: 1/22/2007
Aug 21, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Also, I know Cushings disease can cause "moon-face". If you google moon face Cushings it the first thing that comes up. I have seen this disease in pictures and it's very dramatic. It doesn't really come and go either as you described. It also seems like the moon face goes with a bloated body in Cushings. I think it bears mentioning at the next regular check up.
Aug 22, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
You need to have her evaluated by a pediatric endocrinologist, it does sound like it may possibly be cushings, which can be periodic. I would do it to be cautious.I am aware of an a pediatric endocrinological case that eerily reminds me of what you are saying about your daughters symptoms, seeming to cycle. This child had a disorder causing cushings called Primary pigmented nodular adrenocortical disease (PPNAD)The Cushing syndrome is a condition that results from too much cortisol in the body. People with the Cushing syndrome accumulate fat in their bodies and faces while their legs and arms remain thin. Other symptoms seen in the Cushing syndrome include abnormal facial hair, menstrual irregularities, high blood pressure, weak muscles, stretch marks on the skin, acne, back pain, bruising, psychological problems, and thinning of the bones. In addition to PPNAD, many other medical conditions can cause the Cushing syndrome. http://jcem.endojournals.org/cgi/content/full/89/7/3173 And you know, as I hope, it may not be anything concerning, but you should check to make sure. Hugs, and I hope all is well.
Aug 22, 2008
jessicalynn
Brent 2 years old,
Birthweight 12 lbs 3.3 oz!
Very severe GERD,LPR,FTT
Severe esophagitis/scarring
Paraesophageal Hiatal Hernia,
Esophageal Dysmotility,
Food impaction,Aspiration
ALTE,Dysphagia,Odynophagia
Eosinophilic Esophagitis,Severe retching
Severe allergic colitis/malabsorption
Susp eosinophilic colitis,chronic diarrhea,
Laryngomalacia,Gas/Bloat Syndrome,
Visceral Hyperalgesia,GI Dysmotility,
Chronic infection(ear/sinus/lung)
Adenoid/tonsillar hypertrophy
Gait abnormality/bowlegs,widened growth plates
Susp Vagus Nerve Damage
Surgeries, Nissen fundo,hernia repair/
reconstruction,esophageal dilation,gtube,
ear tubes,adenoidectomy
Bronchs w/ BAL's,lung biopsy
Upcoming scope/colonoscopy
Manometry testing in Oct.
Meds: Nexium,Zantac,Baclofen, Neurontin,
Zofran,Pulmicort/Splenda,PrednisonePRN,
NPO tubefed continuous elecare 24 hours/day
Does her face get red?? Any history of high blood pressure? Frequent waking? Excessive urination??
Check with your
doctor first!