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Aug 20, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
ethan's mom
HI there! I just read your post about the baby size thing.... Your story is similar to ours! Plus our babies are so close in age! How is the BF thing going? Joslyn still has problems sometimes too. What did you do to help your over active letdown?
Aug 20, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
We had lots of trouble bf at about that age. I was actually told during a swallow study that Cooper was aspirating while nursing by the speech pathologist. But when put on monitors his stats were fine and the peds pulmo said he could keep nursing. He believed his aspiration was on the way us when refluxing. I used to pump off the foremilk and feed the hind milk in order to get the most out of each nursing, it also gets past the letdown, though I never had a very strong one. He also nurses much better now that I have done the elimination diet.
Aug 20, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
Lord help Joslyn... I can have 5-7 streaks at once shooting out during let down! Her Pedi said to apply pressure to my breast when I first nurse her... but that makes it come out faster. She would aspirate during nursing... now she chokes more than anything else. She will stop breathing when not feeding. Just can never catch a break can we?Thanks for the reply! What is the elimination diet?
Aug 20, 2008
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
we have found she can not tolerate when i drink juice. the acid is too high
Aug 20, 2008
ethan's mom
Meridith, mom to Ethan born 4/23/08. Ethan was diagnosed with reflux at about 1 month. He has been on Zantac (unsuccessful) and Prevacid. He is currently taking 7.5 mg of Prevacid 2x per day, with good results. We also suspect MPI, though this hasn't been confirmed by a doctor yet.
Ethan is mostly breastfed, though we are doing one bottle of soy formula each day. We also do some homeade "solids' including, so far pears, avocado, sweet potato, and peaches.
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In terms of the overactive let down, I followed guidelines on the La Leche website. What they said, is that the key is to decrease the overall supply, so that the breast's are emptied with each feeding. So, the key was to not pump at all, and to start with the same breast for two feedings in a row. This assumes that you are feeding from both sides at each feeding. If you are feeding from just one side, feed from the same side twice in a row. The sight suggests even, that you could feed from one side during the day and one side at night, until you got the supply down to a level that the baby could handle. We worked on this for a couple of weeks, and Ethan's gassiness went down quite a bit, and he rarely has choking episodes any more. Now that it is more under control, I am back to just following his feeding cues, in terms of feeding from one side or two.

I can only imagine how scary it is to have her choking during feedings and then stop breathing. Poor kiddo. Meridith

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