Posted By Posting
Aug 20, 2008
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Sarah...Mila's mom
Hiya, just wondering how Mila is recovering? I love the pics on your blog, what a smart little monkey! How is she doing now, and how are the feedings going?
Aug 20, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Mila is doing GREAT! She is getting weighed today, so we'll see how " great " her weight gain is....

Mila finally went home on day 4 ( so much for a 24 hour stay ) and she's tolerating EVERYTHING we are giving her! Overnight, she's reaching her goal of 400 ( tonight, 450!!! the most EVER ) without a single peep! During the day, she is bottling between 3-400 mls, so she's is reaching or exceeding her calorie goals!

She's not doing much on solids - she has a daily piece of cheese but she doesn't always eat it, or eat the whole thing. She likes ketchup potato chips, and will suck on a pretzel.

And giving her meds are soooooo easy now! NOTHING clogs that huge tube!

Aug 20, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
WHOOHOO on the feeds going so well. I bet the weight will just take off now. And yes, I agree meds are sooooo sooooo much easier in the G....Glad you're home.
Aug 20, 2008
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
So glad she is reaching her calorie goals!!!!
Aug 20, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Glad to hear things are going so well. Hopefully the weigh in goes good!
Check with your
doctor first!