Posted By Posting
Aug 19, 2008
Adoptive mommy to Micah (Feb 2006), Caleb (Mar 2007; 26 wk preemie, subglottic stenosis, BPD, GERD, dysphagia, FTT, in PT, OT, ST, feeding therapy, 30 mg Prevacid daily, mostly pureed foods, shakes & Pediasure) and Ethan (Feb 2008; 28 wk preemie, BPD, GERD, 15 mg Prevacid daily, Similac Sensitive/Alimentum)
Caleb GI doc consult tomorrow
We got the referral on Thursday, and when I called they said they were booking appointments in November, and they'd give us a call when the GI doc finished looking over his records. This morning they called and said they could see him for a consult at 8 am tomorrow! I'm excited that we don't have to wait until November, but I'm not really sure what they'll be doing tomorrow. Can anyone tell me what happens at the first visit? They said they wouldn't need to see him eat tomorrow.
Aug 19, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
That's awesome!! Just in case no one is able to answer your question tonight, I would suggest that you document an average day for Caleb. Also, write down as many questions as you can - the appointment can go really fast and it's easy to leave there without getting the answers you want if you're not organized. Good luck!
Aug 19, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Our first GE visit was ridiculous. In between screams, we gave the history, then some palpation of the intenstines and general abdominal area (also had a rectal exam due to constipation issues.) Sometimes they'll check for a pulse on the head for other problems. The history is the main thing - if you have a food journal, bring it. Note down everything you can think of - arching, crying, drawing knees up, etc, etc and let them know how often, how severe, and all that stuff. There's not much to it, and hopefully you'll have a good visit!
Aug 20, 2008
Tracey, mom to Katie. Diagnosed with reflux at 3 weeks and put on Zantac. At 8 months old she was removed from Zantac as it was giving her migraines, currently on Prevacid. Switched to Elecare since she is not gaining weight; trialing solids after being off for a month. Geneticist said reason she isn't gaining weight is she is stubborn. Upcoming appts.: Neurologist for developmental delay and EGD scheduled for September. She is one funny baby!
Take some toys that he hasn't played with for awhile or ones that we will gravitate to. It took us an hour and they wanted x-rays and blood drawn that day and I didn't think to bring too many toys. Not that it mattered since Katie was in so much pain during that time that she just screamed and couldn't sit still. Ditto for the journal. Good luck!
Aug 20, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
wishing u good luck!
Aug 20, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Hope to hear an update soon!
Check with your
doctor first!