Posted By Posting
Aug 19, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Scope date finally!!!!
I'm so glad that Pager is back!! We were given a scope date finally!!!! Aug. 28th at 11:00, Jazz get's scoped with biopsies!! I'm more worried about the prep the day before, because they have to insert an NG into her,to get the oral enema into her (fun!!) then I get to take her back home and she'll have to fast until the next day....I'll have the cranckiest, diarrhea grumpo in the world!! Oh well! Can you also believe that she is pushing all 4 molars right now????? Crazy!! Anyways, gotta go for now, glad Pager is back!!!
Aug 19, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hopefully the fasting won't be too bad--trying to be positive! Maggie has two molars partly through and the other two are working on it. That will make a grand total of 12 teeth for my almost 20mo baby.
Aug 19, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I am so glad to hear that they gave you a date and that it's rather soon too! I can imagine that the fasting will NOT be fun at all, but in the big picture hopefully, it will provide the answers that you so desperately need!

I hope you are feeling well and getting the rest you need :)

Aug 19, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Yeah!!! And not a very long wait either :-). Hopefully the day before will go better than you think. I'm sure you're anxious to get some answers.
Aug 20, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Poor thing. We will be praying for you guys.
Check with your
doctor first!