Posted By Posting
Aug 19, 2008
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
New to Forum - Son w/GERD
First, I want to thank the people of this forum. I've lurked here off and on for information over the past few months, and it's been very helpful. Recently, however, my son has been having more trouble with his GERD and I need some advice. My son is 7 months old and was diagnosed with GERD at 4 months, although he's had symptoms since birth. He was doing very well on 12.5 mg twice a day for about two months. He was eating well(we have bottle refusal issues) and sleeping great! However, the last couple weeks things have gone rapidly downhill and we're all at a loss as to what to do. My son has started awakening from nearly all of his naps and throughout the night (up to every 1/2 hr) screaming and writhing around. He often burps when we pick him up and when he does he's much relieved. At night he'll go back to sleep, but naps are usually done once this happens. It sometimes takes a couple awakenings to get the burp out and many minutes of burping. We try our vest to keep him upright after meals (he falls asleep eating) and to burp him, but he has always been a difficult burper and we can't get any out of him once he's asleep. Our FP isn't sure what to do and has refered us to a peds GI doc, but their next opening is the end of september. He's also refered us to an allergist, who's first appt is October, and in our area, there's really no one else to go to for either of these things. We've tried switching him to solutabs 15mg twice a day, which helped a little, briefly, and as I pump I've tried going off dairy. My son has also developed a rash on his trunk and so we've backed off on his solids, but this is challenging since he's a big eater and has been having solids since 4 months old because of his bottle refusal and he crawls now and needs the calories. His favorite activity is feeding himself (which I am truly greatful for considering the bottle refusal issues we've been through). My son is taking the bottle ok right now and is eating 32 oz + per day of pumped milk, which is improved from a couple weeks ago when he wouldn't eat much during the day. Now its mostly boiled down to the sleeping issue and I'm at my wits end. He's ended up sleeping in our bed most nights because its the only way he'll sleep for very long, and even then he's up every 2 hrs to eat and this is a complicated and drawn out affair interrupted by burps that make him scream and then he will refuse the bottle for 15+ minutes until he calms down. Sorry for such a long post, but has anyone heard of anything like this? I'm grasping at straws here trying to make it through the next few weeks until we can see someone who can help us. Any thoughts you have would be appreciated! Thanks BabyMomma1
Aug 19, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
hi and welcome :) have you tried burping him after an ounce or two at a time? It works for some but i will tell you my little one would stop eating if i tried that. Have you tried smaller meals more often? Does he sleep on an incline? it's best to keep him elevated at least 30 degrees while sleeping too. It's good that you are getting to see some specialists and hope you get some good answers. if you need any more info or just to vent, feel free, we are all here to help!
Aug 19, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome! I'm glad we've been able to help, though I'm so sorry your LO is having more issues. Is he teething? My dd has a heck of a time with the reflux when she's getting ready to break a tooth (and she's had a horrible time with the teeth getting through the gums).

The bottle refusal - have you tried a sippy cup yet? Tried going off soy as well as dairy? And for solids, if he just recently tried a new food, that may account for the rash. To fill in the gaps for food, maybe go back to the first foods he ate, like pears or sweet potatoes.

We also had some sleeping issues...maybe try mylicon/simethicone or maloxx/mylanta for nighttime to help with the gas? You could always call your MD to make sure it would be okay to try....I'll keep thinking

Aug 19, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Sleeping was the number on issue with my little guy. That and the constant vomiting but that's for another topic.

Fortunately for us, meds helped him sleep. He used Zantac until a year old. We had to have constant increases because he gained so rapidly the first year (no food issues with this kid). Then we went to prevacid at a year old at the doc's instance. It took a good 2 weeks of constant night wakings before he got better on the new meds.

I would suggest elevation of the bed and maybe Gripe water will would help. It helped my friends baby with gas/burps.
Aug 19, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
This sounds like a combination of possible teething and the start of seperation anxiety-esp. if the "pain" is occuring only during the night time. How is his behavior during the day? At his age you shouldn't really have to worry much about having to burp him because most kids can burp themselves after about 4-6 mo. of age. Crying/Screaming could be inducing the burping and not the other ay around. When did the rash on his trunk start? Did you intro a new food? Is he refluxing multiple times a day ? Is he drooling a lot? What kind of rash.. the pedi. should be able to tell you what is causing the rash (usually)..

My son has 8 teeth and is now cutting molars. In our experience everything got worse about 2-3 weeks prior to him cutting a tooth and then a few days before it popped thru he'd be fine. Does Peter have any teeth?

Mine is 11 mo. and still sleeps with me-on occasion-during illness/teething.

sorry, lots of ?s
Aug 19, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! The first thing that comes to my mind is: Is he on an incline in your bed? Sleeping with her head raised up helped Maggie tremendously. As far as much dairy have you cut out? I know it's easy for me to say but you may have to cut out even hidden dairy if he turns out to be milk intolerant.

Sadly to say, Maggie didn't sleep well till she was a little older than your son, but she wasn't waking that much.

Have the docs had any tests done?

Aug 19, 2008
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Son w/GERD
Thanks for all the input. Here are the answers to some of your questions. I've tried smaller meals and burping more frequently, but with the bottle refusal issues these are a non-starter. He'll only eat if he's really hungry/sleepy and burping as we go only reasults in no more eating at that session. We always pray he doesn't get a bad burp as he eats because there's often no returning to the bottle once that's happened. Teething - YES!! New tooth this morning. Maybe that's part of the issue. Plus, for some strange reason his first teeth were molars and are still cutting through, although he doesn't let me look that far back very often. He drinks from a sippy, but chokes/gulps air. It's fun for him and we work on it often, but it's not ready for prime time. I try to avoid soy as I am allergic to peanuts and theres a little cross reaction, although I'm not vigilant about this, so maybe that's something to think of. I'm still finding dairy in things I didn't know about (like my bread, who knew? I just bought new loaves). Mylicon - give it by the cartload, things are worse without it, but it doesn't alleviate the problem. I've never tried maloxx. Maybe I should. The rash came up without me noticing. My husband does bathtime and when I first noticed the rash he said "oh, those bumps, I've been trying to scrub those off of him for weeks!" :) I told him he could stop doing that! So, we've had to go back to the beginning before any possibility of a rash - those old "P" foods - pears, prunes, plums, peaches and potatoes. Gripe water - used to give that back when we thought he had colic, but maybe it's worth another shot. Yes, prevacid takes a long time to take affect. Things seemed to get better late last week after the dosing change and then worsened the last few days, but maybe that's the teething. We're almost 2 weeks on the new dose. His bed is elevated. I need to get a Tucker sling. He slides to the bottom when he awakens. Good thought about the seperation anxiety. I haven't noticed too much in the daytime yet. I'll keep it in mind. Its a possibility for some of the time, but even when he napped today while I was on a walk and he was in the carrier he awoke after 15 minutes. And at night/naps at home he often awakens with a blood curtling scream. My mom equated it to the old days when a kid would have their diaper pin come undone and stab them in their sleep. It's a real pain cry and if he's really tired and the burp comes out immediatly on being picked up then he calms down and goes right back to sleep. So we think its the cause and not the reasult of the screaming. The kicker with the reflux is that he's never been a spitter. That's how it went on so long without us figuring it out. We did seem him reflux on his upper GI test though, so we're pretty sure that's it. He had that test when he was on his 12.5 mg twice daily dose and he still refluxed! It makes it hard to guage whats going on though. Thanks for all your thoughts. Hope these are good answers to your questions. (Also I hope there are seperate paragraphs this time. There was last time when I typed my message and they disapeared when it posted.)
Aug 19, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Sounds like you're doing all you can. My niece also awoke with blood-curdling screams, though it was night-terrors. Just a thought.

For paragraphs, there's an html code for them. Use < p > but without the spaces between.

Aug 20, 2008
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
My heart is with you, I know exactly what you are going through. It is so frustrating and draining. My son will be 2 this Saturday and I am still going through this. Please feel free to email me if you like or you could search ahousat to see all my listings. Hugz
Aug 20, 2008
Mom to Peter - 10 months old with reflux on prevacid and dairy allergy
Thank you for your support. It's nice to know that others are going through the same thing. I saw that you lost your husband recently. I'm so sorry. Huge kudos to you for going through this all on your own and persevering. I don't know how you do it! Glad your baby is getting better though!
Aug 20, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Welcome to the group. I don't have mush to add except maybe try the elimination diet. It has completely changed our life. Not sure where we would be without it. If you have ?s about it, i'd be glad to answer, you can just make a new thread to me, so I don't miss it. i have mommy brain and will likely forget to come back to this thread.
Check with your
doctor first!