Posted By Posting
Aug 19, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
Emily and Audrey
Well Emily went prevacid free for almost 2 weeks and it went well for about 4 days. Then she stopped eating well and screamed a lot. I figured i would give it a little bit more time and see if her body would get used to being off the meds, it didn't, so we are back with the prevacid.

OH! i got her to stop yelling at me when she wants something, which was really getting annoying, she would screech at the top of her lungs if she couldn't do something or wanted something. I taught her to say please and she does!! well it's "Plssss" lol and she also tries to say cucumber too, it comes out "coocabrrr" lol

Audrey is also doing well, the day after we go to the pedi and she gets prescribed lactulose b/c she wouldn't poop she has since pooped on her own once. I am debating paying the 100$ copay for the medicine. I was seriously getting worried that she Hirschsprung's or something.

i keep on having these bad dreams that audrey is really sick the other night i had a dream we all went on vacation and audrey wouldn't eat and she had diapers full of blood. i tried to call the pedi but the 8 button on the phone wouldn't work (our pedi's phone number has 4 8's) and i went to find another phone and fell in the rain, i woke up drenched in sweat and panicking. I am seriously freaking myself out over my girls bowels, first kid theres too much poop then second kid, not enough. i mean is it too much to ask for a kid to have "normal" poop! LOL
Aug 19, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh yeah and the GI canceled Emily's appt today b/c of the "hurricane" it's hasn't even rained here! it's going to hit fl twice and it's going to miss us both times, florida's not that big LOL
Aug 19, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Kat, check your email, I emailed you about the lactulose
Aug 19, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I cant believe the copay is 100 dollars. Hopefully Jennifer has some good news about it. That is so great that Emily can say please!
Aug 19, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
I totally agree with you about having a kid with "normal" poops! Since I have 2 kids also to worry about I actually keep a calendar and mark when they go b/c I loose track of time. WOW I can't believe that your copay for Lactulose is $100! Is that for the generic (Enulose)? Sorry to hear that Emily had to go back on Prevacid. We started about 1 month ago weaning Abby.
Aug 20, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Goodness, that is tough. That is really high. Would a barium enema tell you anything. Maybe the GI can shed some light. I am sorry you are having a time. Emily sounds so cute these days. sorry the wean didn't go well, but that's ok. I hope all is better soon.
Check with your
doctor first!