Posted By Posting
Aug 12, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Waste of time

We went to see the Geneticist today and she didn't tell us anything. In fact, I got the impression that she wondered why we were referred to her at all. They remeasured Katie and she has grown slightly and the MA at the GI's office has not measured her all that accurately and they had that she has shrunk. They measured her differently four times today and believe that she has grown which is good news. I was once again told that she will grow out of it and the reason she isn't gaining weight right now is because I have taken her off of all solids. I said she has actually started gaining some weight SINCE being taken off of solids. She asked why I did that and I said I got tired of watching her reflux the same 4 bites of bananas all day. She said to try rice cereal. Why is rice cereal the miracle cure!? Katie puked/refluxed rice cereal worse than anything else and she hasn't had any since she was 6 mos. old because I knew it was too hard for her to digest. The one bright spot is that she agrees that Katie needs some PT for tone issues.

My favorite line: because Katie is a strong willed child they don't tend to gain weight as quickly as easy going babies. So my almost 10 month old is anexoric/bulemic (sp?) and already controlling her life by her food intake. So all you out there whose babies don't want to gain weight it's because they are strong willed. I guess those first 6 mos. of life she wasn't strong willed because she gained weight! I just really felt like she was another dr. who didn't take us seriously and was putting our GI down who I REALLY like and trust, especially since she is currently the only one taking us seriously.

I'm done. Please tell me funny stories that your kid/kids did today so that I can laugh and not get completely frustrated! :)

Aug 12, 2008
amber f
Trust your instincts! I'm sorry the doc was no help.

My story.... This didn't happen today it happened about a year ago but I think it is funny...

My older kids came with for my ultrasound for Nolan and before we went I was talking to the kids about what we would see. I said we will see if the baby is a boy or a girl, if it has a peepee or not. We were talking more about how we'll see the baby on a tv screen. Then I held up my hands and said right now it (meaning the baby) is about this big (about a foot) . My son, who was 6, looked at me with confusion and said "When it comes out will it get smaller cause my peepee isn't that big". I almost died! Penis envy at such a young age.

I hope it made you laugh as much as it made us;) And I hope you have a great night:)

Aug 12, 2008
lanymama
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
Poor you I have had that "It is all in YOur head!" llok from doctora many times. Eliminating all solids really worked for my lo at 7 months I then slowl introed and he sis really well He didn't tolerate alimentum though have you thouhg about Neocate? Eddie did better on neocate than on Breast milk.
Aug 12, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Perhaps your geneticist would like to hear that my hippotamus of a child (and I actually do mean that lovingly even though I am annoyed with him right now) is the most strong-willed child my mom and sister have ever seen...and he is 25 pounds. Please explain that one, geneticist.

I am really sorry that today was a wash. I guess you did get some good news, though - Katie is growing AND there don't seem to be genetic issues. You definitely don't want those.

I don't have any funny stories about Sebastian other than he someone managed to open by himself the same French door that my husband squashed his finger in and was teetering onto the deck. I may have enjoyed this if he had not been such a butt all day. (See my "Baby for Sale" post.)

Hope your night goes fabulously!
Aug 12, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
If I have one more person tell me to put rice cereal or any other kind of cereal in coyle's bottle i'm going to make them eat it every day for the rest of their lives. #1-it fills them up more so they drink LESS formula so in effect they eat LESS calories #2 many kids can't tolerate it. it was horrible for us. Any grain is bad for coyle but i haven't had the strength to take the solids away from him.

i'm glad to hear she has grown well. The geneticist seems like a retard. Strong-willed babies don't gain weight? So, is that why my son is less than 16 pounds @ 11 mo? Seriously? That is ridiculous. I was BF and I was a strong willed baby- I was a TANK. you can see fat rolls all up and down my body @ my son's age.

so did they basically refuse to do any blood testing?
Aug 12, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Was she for real?!?!? If that was the case, my ultra strong-willed dd would weigh 10 pounds!
Aug 12, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

Amber~LOVE IT!!!!

The scary thing is my husband agrees with her! Since Katie is so strong willed he thinks that she won't eat as punishment to us. She is definitely strong willed and has taken to only eating from me while laying on the floor watching Spongebob but I do think that the desire to live would be stronger than her need to "stick it to me" at 10 months! In 16 years, yes, most definitely!

Aug 12, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I wish we could put all these big headed doctors in one room and let them fight it out amongst themselves to figure out who is right and wrong and they could just call us when they're finished. My dh has done the same thing as yours, he'll cling to some tiny insignificant piece of information and blame everything on that -- it's so annoying.

Lauren is also strong willed. Does Katie shake her head "no" yet? That's what Lauren does when she doesn't want me to feed her anymore. SHE wants to do it. Well, that's great, I am trying to not have food all over the house since someone might want to buy it one day! Yesterday I finally striped her down to her diaper, put her highchair on the deck and let her go at with a jar of applesauce. I then took her straight to the tub and hosed off the deck. She probably ate 3 bites and smeared the rest in her hair and ears, but oh well!!!!

Amber, you story cracked me up!

Aug 12, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I can't even tell you how many of these doctors we have seen over the years. We got it from half of her specialists that Quinn is just so active that she is burning a lot of calories. we got it, on the other hand, from her therapist and ENT doctor the same thing but a different twist: that it was so hard for her to eat properly and do things other babies have ease in doing due to her low tone and so she is exerting too much energy trying to do stuff that shouldn't require so much exertion. not to mention the fact that she puked everything up. I know it's hard. I've given up so many times, but then Q does something that requires me to dig a little deeper again. It's ok to take a break... a time out... especially when appointments like this can bring you down. But you will know when to stop searching. It won't be any doctor who will tell you. It will be Katie. -Sarah
Aug 12, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Oh one more thing, my daughter is VERY strong willed. that is why she is doing as well as she is.
Aug 12, 2008
elysabethsmom
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
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Elyse is so strong willed I think we would be stuck at her birthweight (3 lbs 14 oz)!!!! I took a feeding class recently (I am a SLP) and learned that cognitively, children cannot decide to "stick it to you" by not eating until starting around 16-18 mos if they are typically developing (read:normal cognition). That is when behavioral feeding disorders begin to be diagnosed according to this researcher.

Sometimes, then, i determine that Elyse must be a genius baby because I certainly think that in certain areas, she is definitely sticking it to me! She does know right from wrong for some things, and she will test the limits. With eating, I do believe that Elyse will use her strong will to some degree....like refusing to eat solids altogether unless she has a spoon or a fork! But in a child as young as Katie, IMO it is still a medical issue.

Check with your
doctor first!