Posted By Posting
Aug 12, 2008
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
What To Expect At GI Visit?
Our pediatrician has moved from "it's OK" to concerned about my son's reflux. It was doing better (Nutramigen thickened to honey thickness with Simply Thick and Prevacid 15mg 2x/day). But it starte to slowly creep up and get worse. Now, not only does he look like he did before we started anything, he has added this odd little reflux thing where he makes this nasty noise like he's refluxing, then it comes up, only to his mouth or the top of his esophagus and then he chews and swallows it back down. He's doing this many, many, many times a day. He's also sleeping horribly. (up every hour last night) He's 6 months old. What can we expect from the first visits? He mentioned something about a PH swallow something. What is that?
Aug 12, 2008
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
We had our first visit not oo long ago. SOunds like your son is silent refluxing now...Mine was doens't come out as vomit, but he swallows it back down damagint the esophagus twice. Since your son is on a PPI (prevacid) that should control the acid and the damamge. Your first visit will be a history and an exam. Our GI sent us home with a new formula and some other things to try before he requested anything invasive. I don;t know about a PH swallow, but a barium swallow is doen to many kids ...they swallow the barium and then they can see how it comes up, if they are aspirating and how often they are "refluxing". That wont be part of your first visit though. Keep a feeding log and vomit log....try to estimate how often you hear your son reflux and doc will probably want to know EVERYTHING about his feeding and pooping! Good luck!
Aug 12, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.

Hi! Katie is a silent refluxer too; last night I wanted to actually make her throw up because she kept choking on her reflux four or five times while I was holding her upright after feeding her. A pH swallow is where they insert a tube through the nose down the esophogaus to test the acidity of the refluxed material. Since the meds. only decrease the stomach acid and don't stop the reflux it is used to see if damage is being done. Our GI doesn't want to do the pH probe since she is obviously still having problems despite a PPI and diet changes. We did the barium swallow but it didn't show anything. Ask if you can do Mylanta because it really does help with the nightime wakings.It is so hard to watch and know that they are going through this! I agree with Zack's mom and keep a log of everything! How much he ate, when, when he throws up, if he is silently refluxing, pooping, if he is on solids etc.

Is he on 30 mgs a day? Our pedi was giving Katie too high of a dose of Zantac and on Prevacid we were told not to give her the full 15 mgs. because we were seeing the same problems as no medicine. When I called to see about upping her dosage we were told that too much can produce similar symptoms as none and to go back to 3/4 of a tablet. Since our pedi was prescribing more to counteract the acid I am wondering if your ds is having the same problem that Katie was. Once we lowered it again she seemed to sleeping better. I know it is not under control but we are not waking every hour like we were. I would ask the GI about what dose he should be in, IMO. Since we were on too high of dosage it is usually my first advice! Hope he feels better soon!

Aug 12, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
My guess is that they'll start with a upper GI or ph probe (or possibly an endoscopy to check for damage - but that will probably be later because it's more invasive). What you may want to do to prepare for the appointment is start journaling his symptoms and write down your questions as you think of them. If you can get the silent reflux/chewing thing on video, that may be helpful for the GI.
Check with your
doctor first!