Posted By Posting
Aug 12, 2008
pejay900
Intro and Asking for advice
sorry - This will be long... My dd was born on 5/16/08 (almost 3 mths old). A week after she was born she was diagnosed with necrotizing enterocolitis (an intestinal infection). After two weeks in the NICU we were sent home and I was BF her. About 3 weeks later she had blood in her stool and was diagnosed with a Milk and Soy Allergy. I eliminated these from my diet and continued to offer BM and supplemented with Alimentum. Now she is mostly on alimentum - a little frozen bm that I still have but I am no longer BF or pumping. About a month ago she started to get really fussy while eating - only taking 2 oz at a feeding and then knocking it out of her mouth. At the time she was on a low dose of Zantac for AR, we increased the dose, no change. then we started Prilosec, no change. She is getting more fussy with her bottles and the only time she will take more than 2 oz is when she is asleep. I have another appt with the GI this week and I am wondering if there is anything you can think of that I can suggest or question or bring up. I am basically at my witts end with the difficult feedings. she now crys with each feeding, she did not used to do this and she draws up her knees a lot. She does not really have a lot of spit-up and has not vomited since we put her on the alimentum. I am seriously considering bringing her to a chiropractor but my husband is a little leary. I don't know what else to do.
Aug 12, 2008
pejay900
forgot to mention that she is coughing a lot lately, it is a dry sounding cough - is this reflux?
Aug 12, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Welcome
I, like you am fairly new at this, and my lo sometimes has feeding problems. I certainly don't have the solution, but I can tell you what sometimes works for us. We mostly breastfeed, but do one or two Nutramigen bottles a day. When we are having a rough time, I do my best to stay calm, and try to go at his pace. Sometimes this means waiting for 5, 10, 15 minutes before trying again. We are also trying different bottle and nipple combinations, to see if that helps. I'm sure others will have a more comprehensive list to try. If you do try the chiropractor, I'd be interested in hearing if it is successful. It has been recommended to me, and I know parents of older kids who have had success with it. Meridith
Aug 12, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Hi and welcome! This does sound like some reflux symptoms (my dd didn't really vomit much until she as about 2 months, but was dx'ed at one month.) We also had no success with either Zantac or Prilosec, though the compounding MUST be done correctly for it to be effective. Also, Prilosec (like all PPI's) usually takes about 2-4 weeks to see any results. We're on Prevacid and Pepcid, and it took almost 2 months to see a drastic change, though there were improvements along the way.

The only suggestion I have for your visit is to log the feedings - how much is taken, the crying, fighting, arching, screaming, re-swallowing, etc... If nothing else, you're armed with at least some knowledge of what treatment given may be working. You could also ask about mylanta or maalox for breakthrough discomfort.

Have you tried different bottles? Positioning? A lot of the moms on here will have fabulous advice for difficult eaters.

I also am very leery of chiro's, but for other reasons. I'd try a non-invasive intervention like craniosacral therapy first, but that's just my take. I'm also a huge proponent of probiotics. I've seen good results for my daughter, husband, MIL, and father, who have all been taking them since the beginning of this year.

Aug 12, 2008
pejay900
do different bottle/nipple combo's really make a difference? I have only tried two different bottles and nipples and there was no difference. Just wondering if I should try more or if this is really only a factor when they are breastfeeding too.
Aug 12, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Hello and welcome. Since your daughter has MSPI (milk soy protein intolerance) I would def ask the GI about a more broken down formula such as neocate or elecare. Alimentum?Netragamen both still have some of the proteins in them even tho they are more broken down than regular formulas. Neocate and Elecare are amino acid based formulas and have none of the proteins. I would also ask about trying another PPI. How many times a day is she taking her meds? Most babies here do better on having meds 2x's a day. Also the PPI's (not sure about all but I know that prevacid) can take several weeks to kick in and take effect. I would ask about staying on the zantac until the PPI's have had a chance to kick in. Are you feeding her upright? Also make sure (you may already be doing all of this) to burp frequently during feedings, leave her upright after each feeding at least 30min., some babies do better on smaller more frequent feedings, have her sleep elevated. Have you tried dr. brown's bottles? A lot of reflux babies to better on these as well. I hate to say, but w/ reflux each baby is different and what works for some doesn't work for all. It is a lot of trial and error. I would also wonder if the cough is due to aspirating. Does she choke and cough while she is eating? If so you might also ask the GI about a barium swallow test. I know this is so much to take in. If you have any other questions or thoughts don't hesitate. Good luck and I hope I have helped some! Oh ya, my dd also is MSPI and did not do well w/ the prevacid (but she has an extremely sensitive system) on the prevacid solutabs b/c they do contain trace amounts of lactose. Most do ok on it tho. I am off to change a dirty diaper! Jennifer
Aug 12, 2008
amber f
Hello and Welcome. It sounds like you got some good advice. I can't really add anything but wanted to welcome you. Come here as often as you need to. It is a great source of info. and support.
Aug 12, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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I totally agree with Jen about asking to try Neocate or Elecare, especially since she has had blood in her stool (MSPI) in the past. The Neocate worked wonders for Abby! Give it a good month on the new stuff b/c it can take awhile to get all the milk proteins out of her system. Also I would make sure that they are compounded her Prilosec correctly. Here is a link to read up on that http://www.infantreflux.org/forum/forum_posts.asp?TID=4505
Aug 12, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
The dry sounding cough might be allergies. When Katie is coughing b/c of reflux it is wet sounding like it will make her vomit. Different babies prefer diff. bottles or nipples. Katie will not take the smaller nipples like Dr. Brown's and will only take the larger ones like Nuk. Prevacid took the full month plus for us before we noticed a change.
Aug 12, 2008
pejay900
while you were waiting for the Prevacid to work - full month - did things gradually get better, worse or no change? things seem to be getting worse here.
Aug 12, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi and wlecome! Sorry things are so rough for you. You sound jus tlike I did when I joined htis board in desperation in January. Your LO does sound like she is suffering from reflux. My son also did not respond to Prilosec. The only things that worked for us were (are) Neocate and Prevacid. Sebastian's dairy allergy is so severe that he cannot tolerate Alimentum or the Prevacid solutabs (which contain small amounts of lactose). I wonder if your own child would do better on the Prevacid suspension and Neocate?
Aug 12, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I definitely found that it seems that each kid has a different need for "their" bottle/nipple combo. We were lucky - only had to try 3 kinds before we found one (Playtex drop-ins with latex nipple)

There were improvements for Allie during the Prevacid introduction. First, the screaming was less after the first week(not gone, but lessened and she would actually sleep at times), then the arching was starting to get better after week 4, and so on, but it took time. I gotta tell ya, these kids make mommyhood seem so much less a blessing at times, but when there's a good day, the happiness comes with it even more so!

Aug 12, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
I remember how tough it was feeding. I'm sorry you guys have to deal with this. The gals here have lots of awesome information. Have you asked your GI if he/she thinks your little one might be aspirating? Mathias has had reflux and feeding issues since day one. We found out that he was silently aspirating - no vomiting, some slight coughing, and small amounts of VERY smelly spit up. A barium swallow study will tell this, as a pp mentioned. It also took us a bit to get the right medicine/dose combination figured out. Libby
Aug 12, 2008
momoftwoboys
Kelly, mom of two boys with GERD. John (born 11/03) was on 40mg Nexium til 15 mos old. Second son Brian (born 05/07) started on Zantac. Now on 22.5 mg Prevacid Solutabs plus Carafate 0.5 ml 1 x day
The only other thing I can add is that when Brian was about 4 mos old, it became harder and harder to get him to take a bottle and he would scream and fight it and I was at my wits end and scared about how to get him to drink enough formula each day. He was already on 22.5 mg of Prevacid solutabs a day (7.5 mg in am and 15 mg in pm) but the GI then also put him on Carafate which is an Rx med that's like a super Mylanta that coats and soothes the esophagus. She felt that all the refluxing had irritated his esophagus so bad that he didn't want to eat. The Carafate really helped alot and he started eating better within a day or two and we kept him on Carafate for a few months.
Check with your
doctor first!