Posted By Posting
Aug 12, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
To Mollybeth -- Elimination DIet
I saw on my question about Maalox your offer to talk with me about the Elimination Diet. I'd like to hear what you are doing, since it seems to be working for you. I read the Dr. Sears website, and tried it out, but found myself starving, and with a headache, after two days. I hate to admit it, because it seems selfish, but I just don't like two of the five or six first options, which makes it really hard to get enough calories in. I think the diet may be beneficial for Ethan, and might solve the last of his symptoms, but I think I need a little more information on the diet, to decide if I can handle trying it again. Meridith
Aug 12, 2008
lanymama
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
I am also on the TED, although I kinda follow my own thing I eat chicken rice fruits veggies bagels plain with olive oil potatoes with olive oil and salt, manchego (sheep's milk) cheese, ham and turkey from deli (boars head contains no dairy), kosher chicken hot dogs french fries and chicken fingers for breakfast I have italian bread or a plain bagel with jelly. I would love to hear any other things that are yummy and different. Oh I also eat pasta, boxed with tomato sauce
Aug 12, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
It is very hard at first. It is important that you eat often and alot. I followed the dr sears plan very close and actually have added back very slowly as well. This was absolutely necessary for Cooper. At 4 mo old he was still having 6-10 stools a day. They smelled very foul, were runny, frothy, and mucousy. He was a different baby with in days, much happier and less diapers that were more normal. My first 2 weeks were super strict. I ate turkey(fresh cooked only, no processed), chicken, potatoes(irish, red, yellow, sweet), pears, apples(I only ate this b/c he was eating them), grapes, squash, rice. I used canola as my only oil and salt and pepper, poultry seasoning and pure brown sugar as my only seasonings. I snacked on rice chex often and ate lots of fruit. I will tell you I lost 5lbs the first week, 10 by week 3. I could afford to though, so it was ok. My milk supply was not affected, if anything it improved b/c I was drinking so much water. I cut out all refined sugar and the only processed food I was having was the chex. At around 2 weeks I added peas, I gave them to him first, he did well, so I started eating them too. Now, at almost 3 mo in, I eat all of the above, plus a few more things. I now have oats on occasion, but try to use them in moderation b/c they are not gluten free and I am very careful with that. I also eat carrots, snow peas, sugar snap peas. Fruits have been very successful, but I try to stick w/ the nectar fruits such as peaches, apricots, but we also have done well w/ cherries. I also have salmon as a meat now. I have done lentils some and those are fine. I added corn last week, but am going to really cut back/ hold off on it as it has made me have terrible diarrhea (sorry tmi) and the chiro said Cooper had alot of congestion, probably from that. I still eat very little processed foods and minimal refined sugar, I try to use brown sugar and organic evaporated cane juice(when I need a "white" sugar). I sweeten w/ fruit juice as much as possible. This has been hard, but it has been life changing and so well worth it. You can check out my blog, schiwartfamily.blogspot.com, to get some recipe ideas. I would do it again in a heartbeat, only sooner next time. I would absolutely suggest you try it prior to introducing solids as that was a nightmare for us. I was unable to decipher if it was what he ate or something I ate making him sick. now I always know. Good luck.
Aug 12, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I forgot I can do sunflower seeds now too. We use sunbutter which I love. I also do lots of dried fruit, raisins, cherries, apricots, apples, dates, just go for organic if possible and watch for sulfates, nitrates(preservatives). Read every label at least twice, b/c it is easy to miss things the first time. Shop the gluten free section at the store, you find good snacks there. Eat out w/ cation; most foods contain soy. HTH
Aug 12, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi Molly Beth (or is it Mollybeth? I'm sorry...I want to get it right!)! Thanks for sharing this. I have been so curious about your elimination diet. You have an amazing amount of resolve, and I really admire you for what you are doing for your son. I wish I had known this existed when Sebastian was born...where were you in September???? (Wait - you were pregnant!). I could have eaten many of these things and Sebastian would have been OK, maybe - except for the peas and squash. I am so glad you found a way to help your little man.
Aug 12, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Melissa, technically it is Molly Beth, but for all practical purposes, (and to help people call me both names) I go by Mollybeth all together, not to mention I'm lazy so who needs the extra space and the caps. LOL. Anywho, I wish I would have known sooner too; I guess that is why I shout it from the roof tops on here. Cooper can't tolerate squash, though he's fine when I eat it. Same for the rice too, but I am planing on giving that another go soon. I'd like him to get to have cake on his bday, and for that, rice is a necessity. I'm sure most of the things I eat he wouldn't tolerate, but filtered through the milk he seems to be doing well. We were considering a g tube prior to the diet and would you look at him now! It's been rough, but oh so worth it. I wasn't ready to let this disease take breastfeeding away from me too.
Aug 12, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Love the new pic of bassy too! We spiked Cooper's hair in a faux hock on Sunday and dressed him like a rocker baby, even sporting black high top all stars. Man was he cute!
Aug 13, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Thanks for adding this. I need to print it out and really take a good look at it a few times. Since we have been off milk, and spicy foods, Ethan is loads better, and I am so much happier, even though I am missing certain foods, so the diet, as you describe it now seems manageable. One more question, with Ethan it seems that his MPI is worse based on the saturation of milk in my diet, does that ring true for anyone else? For example, we had been super careful about dairy products for about two weeks, then I went out to lunch last week and said yes (old habits die hard) to sour cream and cheese on a burrito. I caught them before they added the cheese, but went ahead and ate the sour cream, and Ethan seemed to have no effect. I'm not running out and eating all the dairy I want to, by any means, but it seems like if there is a little in my system it maybe doesn't pass through to the milk in an intolerable way. Meridith
Check with your
doctor first!