Posted By Posting
Aug 12, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
latest on Mila
I just checked Sarah's blog and she had updated: "Mila is in a fair bit of discomfort and not tolerating her feeds after meds. We had a near vomit, but saw the ped shortly after who said to take it very very slowly with her... Not going home today but I was prepared for that. Feeds are off right now and we will wait on gi evaluation." Poor thing, we are all thinking of you! Hugs!!!
Aug 12, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I think Sarah was expecting she'd be in for a few days, but I was really hoping she would get to go home. That is the best place for her until they can get her tolerating feeds. I'm glad you were able to get some rest last night Sarah. Sending huge hugs.
Aug 12, 2008
amber f
I'm thinking of you too! (((HUGS))) Get well soon.
Aug 12, 2008
amber f
doing better Mila's feeds are back to 25ml per hour running half strength pedialyte / peptamen. So far, so good!! We are going up 5 mls every 4 hours till 35 mls, then we'll start running full strength peptamin. I think her next bump is 5 o'clock to 30 and then 10pm bump to 35, and then 5 am to full strength. Posted by Sarah at 2:17 PM 0 comments 11 oclock update Mila's feeds are running again at half strenght ( pedialyte and peptamen ) and she's been given more pain meds and some gas drops to see if that helps. She seems happy enough right now. Why on earth does the GI keep asking ME why she's not doing better? I have no idea - he's the doctor.
Aug 12, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sending giant hugs your way, Sarah and Mila!!
Check with your
doctor first!