Posted By Posting
Aug 12, 2008
Adoptive mommy of Micah 2/26/06, Caleb, 3/03/07 (26 wk preemie, BPD, Subglottic stenosis, GERD, dysplagia, FTT, DD, texture aversion, ST, Feeding Clinic, PT, OT, Prevacid 30 mg/day, Pediasure & ground table foods), Ethan 2/6/08 (28 wk preemie, BPD, dysplagia, GERD, Prevacid 15 mg/day, Enfacare 22 cal., ST for feeding)
Pyloric Stenosis?
Caleb is 17 months (14 months corrected) and has been on Prevacid for most of his life. His reflux had gotten better the past 2 or 3 months, but lately he's been throwing up again. The odd thing is that he's throwing up during meals, which he hasn't done since he got over the severe gag reflex he had. Tonight he had 9 baby spoonfuls of food and about an ounce of milk before throwing it all up. But he then drank 6 oz. of Pediasure blended with a banana. This has been going on for about a week now. He'll throw up solids and then drink a shake or other drink. Sometimes he throws up after drinking, but more often it's during a meal. Pyloric stenosis has been suggested, but I don't know who to ask? He's never been seen by a GI doc. His ENT prescribes his Prevacid. So do I ask her, or the feeding clinic, or his pediatrician?
Aug 12, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I can't remember who told me this, but I think it's near impossible for him to go this long having pyloric stenosis. I could definitely be wrong, though. Funny if they hadn't thought to rule this out long ago. It's usually one of the first things they want to rule out, by way of ultrasound.

I would mention pyloric stenosis to his GI doc if it will ease your mind, but I think you should speak with the feeding clinic about the vomiting at meal time, because they might want to determine if it is actually behaviourally. Another thing that can cause "spontaneous" vomit is teeth!! I literally JUST went through this with my daughter. I told her pediatrician she doesn't throw up anymore, and on our way to our first feeding clinic appt, she threw up on the bus. She only threw up every few days until her molars and other teeth came threw. She got 6 in 2 months. Is that a possibility with Caleb?? I'd certainly make note of this to ALL of his doctors, and maybe keep a log of what you feed him, when he throws up, moods, etc., because this might help determine if it's physiological vs. behavioural. In my honest opinion, I doubt it's pyloric stenosis. BUT, there could be other stuff going on, so mention it to your GI!! Good luck. HUGS.

Aug 12, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
the typical age group to diagnose pyloric stenosis is 3-4 months. in addition, he would be vomiting everything in projectile motion. but, it does not hurt to ask. has he had an upper GI done lately?

did this start when you intro'd the milk? could be an allergy. or as michelle said, behavioral. do you have an ST you can talk to on the phone?
Aug 12, 2008
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi. Just wanted to briefly share my experience. Our son had surgery for pyloric stenosis at a very young age (2 weeks). After a very difficult & long journey we realized he never had the condition at all. We were kind of tipped off by his surgeon, who said it didn't feel like pyloric stenosis when he made the cut. It turned out to be a milk allergy 100%. Unfortunately, we kept him on milk products too long & more damage was done. He also has a soy, egg, & peanut allergy. I feel his gut wall was damaged & these other proteins were able to set up an allergic response. So, keep in mind - we had GI, the pediatricans, and a Children's Hospital miss this. An allergist was able to do a quick scratch test & we had our answer. He can only tolerate Neocate formula. Hope this helps in some way. Ellen
Aug 12, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Does he have any allergies? Sebastian vomits a few times a week, usually at night or if not, the first thing in the a.m. after his bottle...and now that we have Pergo floors, I can DEFINITELY tell that it is a full bottle! It took us eight long months to get an answer, but we finally know that his vomiting is caused by him swallowing so much post-nasal drip. We started giving him a nasal steroid once a ay, and poof! - no more vomit (at least so far). Hope this helps a bit, and so sorry about Caleb.
Aug 12, 2008
Adoptive mommy of Micah 2/26/06, Caleb, 3/03/07 (26 wk preemie, BPD, Subglottic stenosis, GERD, dysplagia, FTT, DD, texture aversion, ST, Feeding Clinic, PT, OT, Prevacid 30 mg/day, Pediasure & ground table foods), Ethan 2/6/08 (28 wk preemie, BPD, dysplagia, GERD, Prevacid 15 mg/day, Enfacare 22 cal., ST for feeding)
Subglottic stenosis
I guess the nurse thought pyloric stenosis because he was still hungry after throwing up. My husband's aunt was recently diagnosed with this at 65 years old, so it's not just newborns who can have it. However, Caleb is not projectile vomiting. I did some research last night and learned that with subglottic stenosis there are often feeding problems and FTT. Why nobody has mentioned this before is beyond me. He has had subglottic stenosis since being intubated in the NICU for the first 3 months of his life. I'm wondering if there is something they can do about the feeding problems if they know that subglottic stenosis is involved.
He has been drinking milk for a few months now, so I don't think that's it. I was wondering for a while there if drinking (milk, juice, water) at meals was making him throw up, but that doesn't seem to be the problem either.
Today he has eaten: 1 bite of oatmeal cereal, 5 tiny bites of waffle with syrup, 2 cheerios, 2 oz. pureed fruit, 3 oz. Pediasure, and later another 1.5 oz. Pediasure. He is playing and happy. I just don't get it!
I did make an appointment with his pediatrician for Thursday to document the current problems and get a referral to a GI doctor. He'll also be having another rehab swallow in September. This time they'll have him eat as well as drink, so maybe they'll find something. Could we be so lucky?!
Check with your
doctor first!