Posted By Posting
Aug 10, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Maalox question
After spending close to an hour feeding Ethan 4.5 ounces of formula, I am thinking that we need some more help with his symptoms. Tonight, he was crying, and I was fairly sure it was hunger and not reflux, or just tired, so I made a bottle for him. We have been using the Nutramagen and breastmilk for about a week now, with decent success. (He hadn't had formula before, so it took a little getting used to.) He started off feeding well, then suddenly started to bat the bottle away, turn his head, cry and arch his back. I tried burping, giving him a break from the bottle, and swaddling to keep his hands from hitting the bottle. Shortly after refusing, he would be crying and moving his mouth like he wanted to nurse, and would accept the bottle for a moment, and then we'd start again. This has been happening 25 to 50% of the feedings, and happens with breastfeeding as well. (This is why we tried formula to begin with, to give me a break. 872 latch-ons in one feeding gets painful :)) Also, we are using the Dr. Brown's bottles with a size one nipple, but have tried size 2 with the same results. ANyway, is this what some of you are dealing with when you have talked about breakthrough reflux symptoms during feeding? If so, are you using maalox, or something else to help the lo get through a feeding? Also, what sort of dosing are you using? I'll ask my pedi about this before starting, but I wanted to have some sort of ideas about what others are doing, before I talk with her.
Aug 10, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

Katie likes the Nuk orthodonic nipples. I have tried the smaller ones like Dr.Browns and she hates them and refuses to use them. Also, if the flow is too quick she will immediately refuse the nipple and prefers to suck harder. That being said; around 2-3 months we started really noticing that Katie would refuse to eat. One night after going 10 hours w/o eating with her so tired and hungry and still refusing a bottle I gave her warm sugar water. She drank a few ounces and went to sleep and then I could feed her. We also suspect that she sometimes associates eating with sleeping and won't eat if she is being snuggled.

Our GI doesn't want us to use Mylanta as she says the Magnesium can throw electrolytes off balance. I give her 2 ml as needed but she is 17 lbs so I don't know what the dosing would be for Ethan. At 9 mos. her reflux is no where near under control and we let her feed flat on her back watching Spongebob because that seems to be the only way she will eat.

Will he eat while asleep? That was sometimes the only way I could get enough calories into Katie since she would refuse food during the day.

Aug 11, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
maloxx has different combination and strengths of active ingredients (Aluminum Hydroxide, Magnesium Hydroxide, Simethicone) then mylanta (Aluminum Hydroxide- there are also diff ingrediants in the different types of mylanta as well) and tracey, mylanta is okay to use IF the child is well hydrated but NOT okay to use on a child who is a poor eater/drinker. always follow the advice of your dr though! my dd does not latch well either i feel your pain!!
Aug 11, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
The saga continues. . . Ethan woke to eat again at 1:00 this morning, and ate without incident, mostly because he was so sleepy. Then at 3:45, he woke to eat again, this time, starting to refuse to feed. My husband came in and suggested giving him the Zantac which we have been prescribed, so even though I think it is of no help, we did it, I swaddled Ethan again, and my husband "sh"'d until he nursed himself to sleep. He generally does eat better in the night while he is sleepy, though sometimes it goes poorly. He also seems to like watching tv when feedings are going poorly. His favorite, luckily for me, isn't Spongebob, but olympic swimming and gymnastics. :)
Aug 11, 2008
kubicki5
We started out with Zantac when Katie was a baby and it didn't seem to help much with her either. If you continue to have no luck with the Zantac I would talk to your doctor. He/She will probably prescribe prevacid which has been a life saver for a lot of us. Hang in the there. It does get better. Katie was on Prevacid and Zantac for a long time.
Aug 11, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We had no luck at all with the Zantac or Prilosec - I'd call the MD to see if you could do a different med. We do Pepcid and Prevacid, with Maalox for the breakthrough, but even the Maalox doesn't help for long.
Aug 11, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
I'm sorry you are having such a rough time. I struggled for many months (still do) about medicating my son. I've finally settled on giving him zantac "as needed". that is after a really, really bad reflux episode day i give him a dose. it seems that it makes him hyper and the other meds gave him stomach aches so i try and find a good balance between his comfort/my sanity. that being said, i gave him maalox while he was prohibited from zantac (allergy testing) and it seemed to work well. 1 ML should be fine for his size but call your pedi (or an area pedi GI) and speak to a nurse about dosing information.

how was his cow milk allergy diagnosed? he may not like nutramigen. have you tried alimentum. same stuff-different taste. are you on the elimination diet as well? have you tried a preemie flow? mine was on preemie flow up until 3-4 mo.

and yes, this is exactly what coy did when he was a bottle feeder. he now drinks bottles fine but is refusing most solids.
Aug 11, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
It looks like I need to update my profile. Ethan is currently taking 7.5 mg of Prevacid twice daily, and I feel like that has helped out quite a bit. We tried the Zantac for two weeks prior to starting Prevacid, and from what I could tell, it just made his vomit different, not better, so we stopped that. The MPI is a self diagnosis. Before we started on Prevacid, the pedi suggested it as an idea, and after he was sleeping better, I tried eliminating milk, and the "screaming gas" stopped, nearly instantly. When we started on formula, I went to the Nutramagen first, since I was fairly sure about the MPI. I figured Soy is the next most common sensitivity, and though he doesn't seem to be bothered by it in my diet, I was concerned that it was only a matter of time. . . Compared with what I have read on here, Ethan has mild symptoms, and he fortunately continues to gain weight, so I should just be thankful, but I have a super hard time with him not eating well, and acting so hungry. Thank you all for your comments, I appreciate feeling supported, especially by those who know what it is like.
Aug 11, 2008
stickybean
we use maaloox when joslyn is having bad issues. It does eem to work! Our GI doc said to give her 1/4 teaspoon (we gave her .4 ml instead) and if it is her reflux acting up that it will be almost an instant fix. Which it was over our vacation!!!!! Hope that helps! your baby is just younger than Joslyn!!!!! Jacky
Aug 11, 2008
nicholas'smom
That is EXACTLY what we dealt with with Nicholas until we got him on the Prevacid. He too, ate better at night-still does. Even though he doesn't arch etc, now, he still only eats a couple ounces at a time during the day-eats often though. We do use the Mylanta on rough days. Sounds like Ethan isn't getting the relief he needs from his current med. I would think you should talk to your doc about dosage or other med options.
Aug 11, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
i was told by a nicu nurse this morning that actually 3X daily works better and you don't have to dose it 30 min. before meals for it to take effect. you can give that a try. also, if youd like to try the alimentum i have the RTF that my son does not like. i can send it to you. or, you can even ask for a free sample at your peditricians office. has he been checked for tongue tie? i might be grasping @ straws but my son never latched on (and fought terribly @ the breast for 3 weeks) . i tried to relactate @ 2 mo. and hired a consultant. she discovered a tongue tie within minutes. i had his frenulum cut @ the peditricians office and within days his suckling got better. didn't help the reflux much though but might not hurt to ask.
Aug 11, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
I'd me more than happy to share our diet w/ you and how it has changed our life if your interested. Just post to me in a new thread b/c I will likely forget to check here. Cooper couldn't do the dr browns either. Nuk worked well for us.
Aug 12, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Just a note, since he's on Prevacid. Our MD told us that NO MEDS are to be given within 2 hours of prevacid (no tylenol, motrin, maalox/mylanta, etc...) May affect the absorption.
Aug 12, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
Thank You
Thanks to everyone for the thoughts. I'm going to keep trying various things, and talk to the pediatrician, but this one may remain a mystery for a while. Yesterday he breastfed all day, except for two ounces of formula in the evening. He, in my opinion, didn't seem to be eating enough, but he started to refuse, so I burped him, offered to feed again, he refused and I stopped feeding, and he went right on playing and napping as normal. Maybe he is getting more than I think, since I am basing how long he needs to nurse on how long it takes to pump, and he should be more efficient than the pump. He, oddly enough, drank formula from the Medela bottle. Maybe he likes the one's with no bells and whistles. . .
Check with your
doctor first!