Posted By Posting
Aug 09, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Katie

Hi Ladies! Thanks for the advice/kind words/prayers!

She stopped growing and gaining weight at 6 months which is hard to imagine that she was this big then but I haven't had to buy bigger diapers or new clothes b/c she hasn't grown out of them. I was looking at video of her being fed rice cereal at around 6 mos. and she was a HUGE baby! WE use to call her tank and people thought she was older than she was because she was so big. She was in the 92nd percentil at 6 mos.for height and 50th for weight and then started to lose baby fat afterward. I emailed/spoke to her pedi about it and was told that babies lose baby fat when they start crawling or moving around. She has just in the last 2 weeks started to try to crawl and at 6 mos. couldn't roll from tummy to back so I knew that wasn't the case. She also went through a bad reflux episode soon after so we chalked it up to that. About a month and a half later she was down to the teens for weight and low 20's for height. Pedi was concerned but not overly so as babies lose weight when they crawl. Explained again that she doesn't crawl!!! This time with more force; he didn't hear me. Three days later as she was moaning and whinning in her sleep and screaming every waking moment I asked for the GI referral. The only thing that I can think of is that around 6 mos. after she would tolerate formula I stopped pumping as much since she would throw it up more easily; this is why we are attempting to change formula but I am unsure how that will go. DH gets massive headaches with corn and at over 30 dollars a can for Elecare if she can't tolerate it we might know immediately and have wasted money.

No Mylanta because of the Magnesium. Pharmacists said Tums is Ok since it is calcium based even though GI said no to it. Didn't even buy Mycilon (sp?) b/c she seems to pass gas easily(have blamed dh when it was her!) and will try a few days w/o Mylanta to see how it goes.

She has always had funny shaped legs and when I brought it up was told it was normal. They are kinda bowed on the calves instead of the thighs. She does roll her toes under and stand on those and she has to be held on the torso to stand, not just her hands. She doesn't try to get into a seated position and doesn't try to pull up at all. The only thing that she will try is to pull your clothes to get into your lap. I have had a few concerns so I am glad that they are wanting to have her looked at. Mollybeth, the chiro sounds like it might help her. She held her neck up at birth but it took her a long time to sit up. In a shopping cart I still have to belt her in b/c she can't sit up the entire time and if she leans over she can't get upright again.

The genetic testing is to see if she is just taking after me (5 foot tall) since dh is 6' 1" and 240 lbs or if she has some mitochondrial issues since she started out big.

I started crying when they said she has lost weight. She eats 3-4 oz. every 2 hours while awake and every 4-5 while asleep averaging 25-30 oz. a day but can't seem to gain weight. I am scared they will find something but even MORE SCARED THEY WON"T!!!!! My FIL had years of reflux and passed away from esop. cancer so we know how serious it can be. Also get really irritated at people who don't understand that reflux is more than just an inconvience, esp. to a baby.

Ok, I think I have taken up enough of your time! Thanks for being here for me!!!

Aug 09, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi there. That is about the time that coy's growth slowed as well. I have read that it does slow down then but dosn't completely stop! kwim. If I had to list the benefits of no/slow weight gain i suppose the only two would be 1. save on clothes (well, as long as you don't mind the puke stains) and 2. saves on back pain. otherwise, it is damn (pardon) frustrating. coy is now refusing ALL solids except cheerios and puffs. however, this evening he drank 9 ounces of formula. That is unheard of for him.

it does seem that she can benefit from some PT. do you have an early start/early intrevention program in your county? ours is terrible so I drive to the U and have insurance pay for it instead. You can have the neuro refer you (ours did). I absolutely love it and hope to get him referred for more. The more we practice with him the more he uses his left side. I too am taking coy to a chiro because I'm seriously @ my wit's end.

I understand how you feel. It is as if we can't win either way. You definitely don't want anything wrong with your child but you're sitting there wondering what the hell is WRONG. and, why can't anyone figure it out? I feel like I'm in the movie Lorenzo's oil.
Aug 10, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Now I know this is probably no consolation, but my mom told me that my sister weighed 20 pounds at 1 year and 20 pounds at two years. She REFUSED food, and my mom could only get her to eat by offering a toy in exchange for a bite (here and there). She often resorted just shooting pureed food into her mouth with a syringe. Now, my sister was born in 1971, so you can imagine how little help my mom had back then. No internet, no PAGER - just dusty encyclopedias and the same idiot doctors we all have. At one point, when my sister was two, my mom was ecstatic because my sister would gobble down baby food beets (but nothing else) - she was eating! My mom told me how horrible it was to have a kid who just stopped gaining weight so while I don't know what is like personally, I have a bit of insight now. My sister is now a healthy mom of two (one refluxer, two with many of the same food allergies as Sebastian)...so I hope that gives you a little bit of hope! My sister still has a crapload of food "aversions," if I can call them that in regards to an adult...won't drink milk, the pickiest eater in the land. I think this is because she had untreated issues as a child. We are lucky in that we can help our kids avoid this because we have some help and are more knowledgeable these days!

My good friend Megan didn't crawl til she was well over a year and didn't walk until 18 months...and she was the captain of her college track and cross country teams. She is now tall and fit (and a mom with a baby who hits milestones by the books).

Hope this helps a bit. I know it's nothing in the way of advice, but I thought it might be helpful to share some stories...
Check with your
doctor first!