Posted By Posting
Aug 08, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
What Physical Therapy Said :)
Although Q still has her up and down days. The PT said yesterday that Quinn is finally starting to catch up, build up muscle and get better. They were words I love to hear. My baby girl, my baby girl, who has had 11 hospitalizations, countless procedures, ridiculous amounts of illness, and all odds stacked up against her is getting better. One thing about Quinn is that she is constantly challenging herself. She doesn't really need anybody to do that for her. If she can't do it, she will find a way to do it. They call her a daredevil. They said that it will follow her through her life. I believe that it is her ability to look past her disabilities that has gotten her so far. She is amazing in every way. Thank you for being here through her journey. Your love, support, comfort and wisdom has made all the difference in the world for us! -Sarah
Aug 08, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
so glad to hear this sarah. she has such spirit in her-you can see it in those beautiful eyes of her.
Aug 08, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
So the "terrible twos" can be good too!!!! Her I can do it attitude is great and will really help her succeed.
Aug 08, 2008
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
That is such wonderful news! I am so happy to hear that she's improving. What a blessing! She really does have such an amazing little spirit...I know that it will be a huge positive attribute to her in the future! She's going to do great things, and she has a wonderful mommy to support her, fight for her, and help her get there!
Aug 08, 2008
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
That is great news. Love the good stuff! Hugs to you both!
Aug 08, 2008
amber f
I always love to hear such positive posts. Go Quinn! Good for you. She is one strong little girl who has so much fight in her.
Aug 08, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
She'll get my vote when she runs for president! She really is an amazing little girl.
Aug 08, 2008
So glad to hear your beautiful little one is doing so well!! She looks like she's full of spunk and fire!! Go, Quinn, go!!!
Aug 08, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
YAY YAY YAY LOVE LOVE to hear great news about Quinn!!!!!
Aug 08, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sarah, that is so great to hear. She deserves to be doing well, and heaven knows you deserve to catch a break. I am so happy for you guys. Way 2 go Q!!!
Check with your
doctor first!