Posted By Posting
Aug 08, 2008
macbaby1
Riley at 2.5 months old....Diagnosed with GERD at 2 months, prevacid desovable tabs twice a day,regaln and zantac did not work for us.Switched to Nutramigen formula (with extra scoops for calories) upper GI done,negative for pyloric stenosis,or any milk allergies...possible PH probe test soon to come....still waiting on DGE diagnosis......Shes our lil cutie =)
new here
Hi everyone... I just joined in hopes I may fnd some new ideas on how to help my little girl. I talked with a volunteer from here (Jennifer) a wk or so ago (she was sooo nice!) and she reccomended that I join and maybe it could help. Riley is teh first child for my husband and I and every book I ahve ever read regarding childbirth,parenting, etc, couldnt have helped me when it came to dealing with her GERD and feedings.... I know it could always be worse. But lately I ahve found myself drained and envying parents that can take their child out and feed them with no problems...is this bad? Riley is an amazing lil baby and I love her with all my heart I just wish I could help her. Ive felt like it was something I didn during my pregnancy so for awhile I would blame myself, its caused frusteration between my husband and I b/c he wants to help her and understand and he cant. She hardly ever cries when she has the vomitting episodes but lately I think its hurting her b/c she acrches now and goes into these almost colic like fits...which is VERY unlike her.The Gastro dr has me waking her up every two-three hours to feed her (she sleeps through the night otherwise) and when she seems to get dehydrated from vomiting I give her a lil pedialyte. Ive heard that some grow out of it... but with her just going on tree months its hard to see the light at the end of the tunnnel right now... it effects everything I do day to day now, going out has to be between feedings b/c she tends to vomit more when we are in public... dunno why... and Ive notived at night when shes hald asleep and feeding it doesnt happen half as often (is that common?) I went to mommy and me yoga this past week and she of course spit up ALL over me and the other moms looked at me like there was something very wrong with my child it was soo embaressing... and when i explained she just has severe reflux they just starred at me like they didnt understand. I dont knwo any other moms out there that have this problem with their baby and Im hoping some of you can help me out or at least tell me how it was for you... b/c right now Im feelin kind isolated and frutserated with the whole thing. Sorry this was sooo long... thanks for reading though... =) ~ Valerie
Aug 08, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Hang in there. It's hard to see the end of the line but there is one out there. I think they vomit more in public because they are more active. There is more to see and they get excited and, Blahhhhhh, there it comes. My son improved gradually at around 4 months. However vomiting didn't completely stop until he was firmly into solids and had given up one of his bottles. He totally stopped around 10 months of age. Keep in mind though that it got gradually better. The 6 week old child that vomited constantly between feedings became the 4 mo old child that vomited 3 times between feeding, lots of volume though. That child became the 7mo old that didn't vomit between every meal, just often etc. We went from double bibbing to only one bib to no bib in public. We had 30 bibs at least at the hight of the vomiting. We used receiving blankets for burp rags because they are absorbant and cover more area. I am telling you all this so that you can see, it happend to me and I lived to tell the tale, lol. Don't feel guilty about your feelings toward AR. Remember that the baby can't help it and hate the disease. Come back and talk to us, it helps.
Aug 08, 2008
amber f
First of all you sound exactly like the rest of us. All the things you described is what we as mothers of a Gerdling have gone through. A high needs baby is so hard on a marriage. I too have felt like I was to blame. I opted to be induced with Nolan because I was over with my other 2 and my doc said I could be induced one day over instead of letting nature takes its course. I felt if I hadn't forced him from the womb he wouldn't have reflux. But then I found this site and met tons of moms who were full term or over and their kids have reflux. It was nothing you did. I too have been there when there are no other mothers out there dealing with it. That is why I love pager so much. I have made some really good friends here that have helped me through so much. If I have a question I come here and then I ask my doc about it. I have learned so much more here then from my doc. I've been told that he would grow out it by 3 months then it was 6 then it was 9 and now he is 10 months old and we still have trouble and are still on meds. Most kids do out grow it but it may not be in a certain time frame. She maybe vommiting more in public because of stress. So many things aggravate reflux. Teething, colds, stress, laying down, being in a sitting position. etc can make the vomit worse. What you end up learning over time is that you'll find what are her triggers and what helps her.

What kind of meds are you using? The right meds make all the difference. We tried Zantac then prilosec now prevacid solutabs. The solutabs were the best thing for Nolan. Do you have her sleep on an incline?

Come here often for support and it was great to meet you! Welcome to the forum! Amber F

Aug 08, 2008
kmom
Worry Wart mom to
27 mo. reformed "happy spitter"
34.8lbs , 37in tall(oct)
Diagnosed A/R at 6 wks
Zantac until 1yr then Prevacid
Med free since February 08
peanut & egg allergies...still
Zoo Boo Trick-or-Treating (pic).
Oh, and I rocked my son to sleep for every nap and at night until he was 9/10 months old. If I didn't he'd vomit everywhere. Then we were changing sheets with crying baby freaking out. He also slept on his tummy which was the only way he'd sleep. We let him sleep throught he night but he was never FTT or low weight. Acutally the opposite, he was a big infant. Happy spitter indeed!
Aug 08, 2008
macbaby1
Riley at 2.5 months old....Diagnosed with GERD at 2 months, prevacid desovable tabs twice a day,regaln and zantac did not work for us.Switched to Nutramigen formula (with extra scoops for calories) upper GI done,negative for pyloric stenosis,or any milk allergies...possible PH probe test soon to come....still waiting on DGE diagnosis......Shes our lil cutie =)
thank you ladies.... shes on prevacid.... but the solutabs dont desolve enough so when i give it to her in a syringe they get stuck and they dont work in the nottle either we tried a baby spoon but she spits it out.... right now its almost noon and ive yet to get ready for the day b/c for some reason shes been acting VERY VERY colicy today (she doesnt ahve colic tho) arching her back and screaming.... im drained and we've already been through three outfits... im ttrying to get ahold of the dr b/c i cant have him not taking this seriously, shes only gotten worse. myonce happy smiling baby is now a crying, screaming baby that never wants to be put down... i dont know what triggers it anymore i thought i did but then she proved me wrong the only time she really doesnt is when shes half asleep at night... other than that she will wake up choking on it during her nap,during play, anytime..... my house smells of nutramigen spit up. Im not a person that normally cries but today for whatever reason just really has me down i feel like whenever i feel like it may get better, it takes a turn. well im off to call and see if the dr is back from lunch thanks ladies! ~Val
Aug 08, 2008
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
Hi Valerie - you definitely are not alone. I often feel 'trapped' in my house because moving the baby can bring on reflux and vomiting. And my son Charlie was born in the winter which made it worse. I didn't know any other kids with reflux as severe and agree you feel very alone. It is EXTREMELY frustrating to deal with, we are now on 4 different meds and it has taken 6 months to see progress. The good news is that Charlie's reflux is settling down, he is vomiting less and has gained almost a pound in the past two weeks. Prior to that it took him TWO MONTHS to gain a pound. So things are looking up. I recommend you be all over the gastro doc - ask very specific questions about how long you should try something and what are the next steps if it does not work. These docs know their stuff but they do not live it day in/day out as we do and my view is that they have little idea of how tough the whole trial and error approach is. You will get there. I give you loads of credit for going to mommy and me yoga - I never would have attempted that! Susie
Aug 08, 2008
amber f
Have you asked your doc about using mylanta? that has helped some los with the break through pain. Might be something to look into. I just stick the solutabs in Nolans cheek and he gums them so I have no advice on that. I've been lucky. (((HUGS))) It does get easier.
Aug 08, 2008
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
You might want to try and just give her the solutab and hold it in the inside of her cheek until it dissolves. Using a syringe is hard b/c they usually never get all the granules. Also make sure that you are giving it to her on an empty stomach and waiting at least 30mins to feed. Has the GI talked to you about trying an elemental formula? It might be worth a shot to try Neocate or Elecare for a few weeks to see if she improves. After Abby was on Neocate for a few months it drasticly reduced her vomiting. I think all her vomiting really was a result of her MSPI.
Aug 08, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Val - welcome...we are all going through this or have been through it. My son proabably had reflux all along, but he was not diagnosed until he was 6 mo old. He's 10 mo now...feedings are a nightmare...he doesn't puke daily, but he refuses most all solids and gags constantly. He's on Prevacid solutabs as well. Just a note...we went through about 10 different syringes until I found one that worked great and didn't clog...it was actually the ones they give away at our Ralph's pharmacy...check with a pharmacy and try a couple out. good luck and we're here for you!
Aug 08, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Wow, this sounds like my experience verbatim! I felt serious guilt, my hubby was supportinve but just as sleep deprived, etc, etc. I still don't go out in public much, but I DREADED getting this kid into the car and out, since the vomit just kept spewing out and she would through an absolute fit.

Background: Allie was born at 37 weeks, was fine for the first week, then she started serious consitaption. This was actually the first sign we had of GER. Didn't know it of course. Then came the 24 hours day in and day out of screaming, arching, fighting, comfort-feeding, vomiting, and generally feeling like the worst mom in the world. By about month 4-5, the combo of meds and growth started to make a change. She's now a happy, giggly, active 10 monther. It takes time, patience, and trial and error to get this right.

We're with you on this - vent, ask questions, post hypotheses, etc...We've all been there and you're not alone with all this!!!! {{HUGS}}

Aug 08, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
And I can't spell anymore either!!!
Aug 08, 2008
nicholas'smom
Hi Valerie-Welcome. We can all relate to you. We get our Prevacid compounded by the pharmacist-there are no granuals and is easily administered through any syringe. The only catch is it only lasts two weeks, then you have to pick up more at the pharmacy. this is no big deal for us as we use the pharmacy in our grocery store and we are always in there anyway. Our son did a lot of arching as well. We were told that was a pain response and it didn't get better until we got him on the prevacid. He will still do it occasionally, but nowhere near as dramatic or as often. We too use the Mylanta on occassions where the pain seems worse and this seems to really help. Many days a shower still seems like the greatest luxury- a calgon moment, if you will, to get a moments peace and get the puke smell off, even if it's sure to be there again shortly after you get out. It definitely helps to come onto this site to vent and learn what others have learned. Good luck :)
Aug 08, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I have to run and take my little man to the ENT, but I wanted to say "Welcome" and that you will get lots of help here. I'm going to try and post later on today. As for the mommies staring at you when your daughter spit up on you in yoga, Sebastian spit up on me six times two weeks ago in Trader Joe's. I got all kinds of looks. I really felt like chasing the gawkers with the pukey paper towels. Don't let them bother you! Not all of us are lucky enough to be blessed with angel babies! Welcome again!
Aug 08, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi and welcome. You are certainly not alone here. Are you a stay @ home mom? I know that you might find me crazy but one suggestion i have for you is to try and nap. Even if you have to sleep with your LO upright on you (which we did for a few months) try and catch some sleep. I refused to take naps up until a couple of months ago and now that I do I find that I can cope somewhat better-it still isn't great-but I do feel better.

as far as the puke... i'm sure most of our kiddos on here have. Coy is 11 mo. and this past Monday he puked all over the floor in the mall. Someone said "oh, your baby must not be feeling well".. what an understatement-right! i just said "oh he's fine-it happens all day, every day" so, don't feel embarrased when it happens. I can't believe that the other moms looked at you oddly. Must not be a very supportive group of moms.

my son also rarely pukes during the night feedings. I think it is because he is more calm and it is a small amount on a somewhat empty stomach. is she growing well? how much does she vomit? if she is getting dehydrated then that seems like a lot. does she have diarrhea too?

when coy was on prevacid i stuck it in his mouth until it dissolved like another mom mentioned. that was the best method @ that age.
Aug 08, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi again Valerie. I just wanted to tell you that it WILL get better. I just went back and reread my first post on here and couldn't believe how far we have come. I was an absolute mess and honestly, so was my child. We had NO answers, really, until last month. It's been HARD, as it has for everyone on here. You will come to find if you stick around that the moms on here give such great advice because they KNOW what you are going through. For example, Jedd's mommy explained to me about how suspension meds break down after two weeks, and mommyto2taught me about Zegerid. And ALL moms have been supportive during the rough times. You'll see how great it is to truly have a network of moms who can really relate to what you are going through. Please keep posting!
Aug 08, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Hey Valerie! Glad to see you on the forums and welcome to PAGER. You got a lot of great info from these moms! I would ask your DR if a med to use for breakthrough pain might help, like Myalanta or Carafate. I think Amber mentioned that. It might help on those rough days.

Again, if the Nutramigen and meds aren't helping you might want to look into EleCare. I know some of the other moms have used it when the Nutramigen didn't work.

It was so nice talking with you the other day. Feel free to give me a call anytime. Post away. We have all been there too. I promise, it gets easier. My oldest is reflux free now and Ella is well controlled on her medicines. :) ((HUGS))
Aug 08, 2008
ethan's mom
Meridith
Mom to Ethan, born 4/23/08. Diagnosed with Reflux at about 1 month, started medicating with Zantac, which wasn't helpful for us. At about 2.5 months, we started on Prevacid, twice a day, and that is working much better.
Ethan is breastfed and has a few solids that he is enjoying very much.
I also want to welcome you. I think that my lo is about a month ahead of yours in this process, and I can tell you that he is getting better all of the time. It is definitely a difficult process, and I can assure you that I have snapped at my dh more in the last 3 months than ever before. One thing that has helped me, is actually breastfeeding Ethan in front of a couple of other moms who have breastfed babies. When they see how he feeds, and what a process it is, they seem to understand what we are going through a lot better, and actually offer support. I know that your lo is on formula, but I'm sure the result would be the same. Somehow telling people about it seems to illicit a response that seems as if you are exaggerating, but when they see part of it, they can empathize with you. hang in there, it gets better with time.
Aug 08, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Welcome. I am so sorry you are going through this. It is so hard to see the light sometimes. And people do not understand reflux. We had a horrible first few months, but things are really looking up now. I don't have much to add to the pps. We are here for you!
Check with your
doctor first!