Posted By Posting
Aug 07, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Cuteness Overload ( mila update / surgery )
Let me preface this with saying I am a NERVOUS WRECK about her gtube surgery. I want it over and done with but I don't actually want to have to go through it, kwim?

Mila has pre-admission Friday, and surgery on Monday.

She also has an EXTREMELY runny nose, a bit of a cough, watery eyes, and the rash on her hand looks to be getting worse again.

She's been swimming in the pool this week and OMG is she so darn cute. This is her without her sun shirt on. I'm fanatical about keepig her scar covered because the cardiologist told us that if we can keep it covered for an entire year, it might heal almost invisiably!!!

Without further ado... MILA!

Aug 07, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
Let me try that again.
Aug 07, 2008
Sebi is 23 months, diagnosed with GERD at about 3 months after months of misdiagnosis. Allergies = milk, maybe soy.
Med free since mid-July.
Tubes inserted in ears Dec 17, 2007. Left one has fallen out. Endoscopy done Feb. 21, no tissue abnormalities.
I posted to facebook, but I didn't see all this about the runny nose, etc. Let me know what's going on. I hope it won't cause an issue. What do you think the rash is from? -D
Aug 07, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
I kwym...wanting it done but not wanting to go thru it. This pic is priceless Sarah. I am a picture freak and I just love these moments...thinking of you and Mila.
Aug 07, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
SARAH!!! All her hair is hiding in the back!!!...I was so shocked to see it all....she has curl just like Ror....CUTE!! I will DEFINITELY IM you today.....yesterday got away from me. Hang in there Sarah. Do you have any family or friends there with you this weekend?
Aug 07, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
She's just too cute. Everythign will go okay......I was soo nervous about Jedd going under for th efirst time after heart surgery as well and he did wonderful. Do thye have to run and ABX through her IV....????? Jedd had a patch done on his VSD so he needs IV ABX anytime thye go in on him for naythign. He also has to take it for dental work too.

And the scars.....Jedd's has almost faded to nothing, it is amazing. We kept it covered for a year and no wwe do let it in th esun but only with like 45 SPF on it...LOL

Good luck!!!!! Will be thinking about you guys thins week edn. I won't have much computer acess after Sat. My In laws only have dial up....:(
Aug 07, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.

Sooooo cute!!! I love the curls!

Hopefully it is just allergies and nothing more.

Aug 07, 2008
amber f
She is such a cutie! Good luck on Monday! I'll be thinking of you!
Aug 07, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
What a sweet pic! I will be thinking and praying for you.
Aug 07, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
hehe, we are fanatical about Elyse's scars too since we are still within that one year timeframe! She gets 50 SPF sunblock and no 2 pieces for her!!! (lol, then you look at my siggy and she is in diaper was in the shade and only for her popsicle!) Elyse's look pretty good, we use vitamin E on them and her tummy is almost at a year (in Sept) so maybe next year I won't worry so much about it. The eyebrow one is still pretty noticeable when she cries bc it gets red (it is also only 6 mos old).

Prayers to you and Mila, glad she is getting the help that she needs!

Aug 07, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
awww cute pic! i'll be praying for you both.
Aug 07, 2008
mom to 4 kids with probable
Mitochondrial Disease
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
Connective Tissue Disorder,
Visceral Hyperalgesia, and more
Many meds
Praying that all goes well!
Aug 07, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
omg!! she is just way to adorable!!! i know she will do just fine in surgery she is such a strong and resilliant little thing. We will all be praying for her and your family *big hugs!*
Aug 07, 2008
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Sarah-She is so cute! I love all the blond curls. We will be thinking of you guys next week. I am sure everything will be just fine. Man she is getting so tall!
Check with your
doctor first!