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Aug 06, 2008
pejay900
Prilosec dosage?
My dd (2 months old) is on Prilosec for AR. GI prescribed 2.5ml 2 times a day which she started about 5 days ago. She seemed to be getting worse to he said to reduce dose to 2.5ml 1 time a day. she weighs about 11 pounds. Does this sound right? Does anyone know? I am at the end of my rope, she doesn't want to eat at all and every feeding has turned into a stressful event. thanks for you help
Aug 06, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd was on about that dose when he was that little. He is now around 27lbs and he *can* take up to 5ml 2x's a day. We have him weaned to 5ml 1x a day right now.

We saw some issues with dealyed emptying when Jedd was on a high high dose of Prilosec. Maybe that is the issue. We balanced it out with erythromycin.
Aug 06, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
1 More ?
Where do you get it compounded at??? That makes a HUGE difference. YOu ahve to have a really really good pharmacy for it to be done right. We get ours suspended at the children's hospital As a matter of fact I have to pick it up today!!! LOL
Aug 06, 2008
pejay900
I got it compounded at CVS.
Aug 06, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
would ask the GI if he/she knows the best pharmacy where to get it filled. That's what we did. If the suspension is not made properly it will expire WAY before th edate o the bottle.
Aug 06, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Sebastian didn't do well on Prilosec. In fact, it seemed to do nothing for him. Same with Zantac. We saw no real relief for him until we tried Prevacid. You can buy that in a suspension, too, but I would get it every two weeks if you do. I know Jedd's mommy loves the stuff(Prilosec), though...how long has your daughter been on it?
Aug 07, 2008
pejay900
She's been on it a week and things seem to be getting worse, not better.
Aug 07, 2008
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
We gave it two or three weeks (Sorry - January is all a blur now), but then we were like, forget this. Can you ask for a med change if she doesn't improve soon?
Aug 07, 2008
pejay900
I called and he said to reduce the dose and start using Mylanta before feeds. giving this a shot now but so far don't see real improvement. She keeps pulling her knees up and I am so confused if it is her tummy hurting from the Prilosec or if it is AR... thanks for the advice, i really appreciate everyone's responses. This is a great board
Aug 07, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We had no luck with Prilosec either. I echo the comment on finding a good compounding pharmacy. If they're not compounded correctly, then the formulation is useless. There is a fabulous one that is nationwide, but they're not a "chain" - it's called Medicap. Also, have you asked the doc if you can do an H2 blocker in addition to the PPI? This was the trick with my dd - she needed the extra boost to get her through the full 24 hours. We're using Prevacid in the eveinings and Pepcid in the mornings.

What formulas have you tried? Types of bottles? Temperature of formula? Is it thickened? Position of feedings? Tried burping every so often? (You've probably posted this stuff already, but I can't keep up with all the posts anymore!)

I have a comfort-feeder turned to bottle-fighter, so I TOTALLY understand the stress of feedings.

Aug 07, 2008
pejay900
Just had the prilosec remade at a compounding pharmacy I feel much better about. She is on Alimentum because of milk and soy allergy. I use the born free bottles - size 1 nipple. I have varied the temperature of the formula and tried many different feeding positions, even lying flat on the ground but nothing seems to work consistenly. It will work one time and I get my hopes up but the next time I try it, it doesn't work.
Check with your
doctor first!