Posted By Posting
Aug 04, 2008
Our 1 year old daughter has silent reflux, hypotonia as well as benign external hydrocephalus. We are currently weaning onto whole milk (we'll see if it works) and she is also on Prevacid 15mg per day.
For those that have had kids in PT
We had a butt load of home work to do and I feel like once again- I can't do it right. Keira seems to have my number down and she refuses to work with me. Not to mention that dh picks on me for trying to work with her as the minute she fusses he's like "hey just let her be". I'm not putting her through hours of pt or anything this was within the first 5 minutes! She just doesn't like to do anything that SHE doesn't want to do at the moment. I've tried using the tv shows she likes, the dog, songs, you name it. I'm going to be really embarrassed tomorrow when the PT asks how things went at home and we've barely been able to tackle the home work. :(
Aug 04, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I don't have a kid in PT, but I will tell you that there are LOTS of kids who will do things for teachers and therapist and babysitters who won't do them for their Mom or Dad! I used to hear this all the time when I taught Kindergarten. I would say be honest with the PT when she arrives, you have been trying and that's the best you can do! You can't force Keira to do things or enjoy them, but keep trying. You are a wonderful mom who is working very hard for you lo! TRY not to let you dh is discourage you and never be embarrassed for trying to give her the best care possible...even when our children aren't on the same page as we are :)
Aug 04, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi. For our PT for coy's lazy eye I am required (whatever-"recommended") to patch his good eye for 4 hours a day. when he was little (back in april when we started) i was able to hit about 2.5 hours max now I'm lucky if I get an hour. Goes something like this: put patch on. hold coy's arm down while he cries and say "no touch" let go of arm. coy attempts to pull off patch. hold his arm again and say no touch while he is screaming and pulling away fiercly. let go. coy attempts to pull patch off before i can stop him. get new patch. repeat 2 times. try going for a walk. walk 15 min. and hear "mmmm" see coy eating patch... the walk was the only time i could get him to wear it... not anymore. in fact, we were supposed to have a check-up tomorrow that i just cancelled. i find no point in doing this until he can understand the consequences of "no" @ around 18 mo. so i'll take him back in a few weeks. the opthamologist is crazy to think i can patch a 10 mo. old for 4 hours a day but maybe i'm just not patient enough. i go there and i tell her every time "i'm doing my best" it is all we can do, kwim.

for his other PT I have to:

1. get him to stand flat footed by pushing down on his hips anytime he's up on his tiptoes (doens't mind this)

2. place him on his butt in front of me and push down on his knees with legs out in front of him ( he hates this)

3. get him to pull up the traditional way-using one knee to push up (pref. the left since he's right side dominant).

4. encourage stair climbing-loves this

we have fun with this PT mostly and he really enjoys going to the U because there are all new things for him to play with.

what is your homework? maybe i can give you a few ideas.

also, when i was a teen my mom watched 2 little ones in our home. they were complete angels.. until mom walked in the door. coy bites me, hits me, screams @ me, but NEVER does that to his dad... i think it is normal
Aug 04, 2008
Just do the best you can do. At least you're trying. Hang in there!
Aug 04, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I think you're doing a great job - there's only so much you can get them to do at this age (and it's only going to get worse as she gets more independent ha!ha!), so don't be embarrassed. If it were me, I'd tell dh to leave the room when you're working with her. My dh is the same way - he can't stand to hear Halley fuss...I think it makes him feel helpless.
Aug 04, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Ella REFUSED to do a lot of her PT with me. Is there someone else who might be able to help (like a grandma etc)? With Ella we found that she would try when we got her sisters to show her how "fun" it was. Thankfully her sisters always thought it was fun! ;) My oldest (just last week) taught her to jump with two feet off the floor. LOL. Funny what they will do for others that they never want to try for mommy. Little stinkers!
Aug 04, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Katie will cry if she can see me if I am not holding her. If I leave her with someone else she gets distracted until she sees me then back to crying. My dh will pick her up out of the shopping cart if he goes shopping with me; I tell him to leave her in there as she can't be held when it is just her and I! She will be sooo good for my parents and a little crying thing for me; it lets you know that you are momma!!
Aug 05, 2008
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Working with both children and adults, I've seen that it's pretty common not to do your "homework" for rehab. Children won't do things for the parents that they'll do for the therapists, and adults just sometimes don't want to do it! Most everyone does improve though, so don't lose hope.

It's not you; it's your daughter, so no beating yourself up or get embarrassed. And tell you DH to shape up and start helping!!!! ;-) It's easier to criticize than to actually DO something!

Check with your
doctor first!