Posted By Posting
Aug 03, 2008
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Back from Vaction-Sorry got long!
So we are back from our vaction and we had a blast. I posted some pics on my blog if you want to see. http://mythreeolsonboys.blogspot.com So we are 6 weeks post Nissen and Aidan is still doing great in terms of the surgery no pain, no congestion, he can eat anything he wants etc. It is still by far the best decision we have made for him reflux wise. He is just so much happier. I didn't realize how much it was effecting him especially developmentally. I swear within days of having surgery his speech has just taken off. He went from saying a couple of words to saying 3 word phrases and telling knock knock jokes. I love it. I am sure it could be just coincidental that he just had that light bulb moment but I swear he can just finally focus on something other then his throat burning. O.k. all that being said Aidan is doing horrible at night again. For the first time in his life after surgery he was sleeping through the night without crying out in pain but now he is night waking again sometimes like every hour. I am not sure what to think. His diet was not very strict at all while on vacation thanks to people constantly feeding him without my knowledge, plus he is getting teeth, and he has a cold, and I am not sure if his thrush completely cleared. But he has the hiccups all the time now that we discontinued the Prevacid. I am just wondering I guess if he needs some tough love from being out of sorts from vacation or if the reflux is still there. How do you know if they are still refluxing post Nissen?? Also, why can my child seem to tolerate milk products but not real milk. I really would like to wean off the formula soon but I don't know why he keeps reacting to the milk. We see the GI on Tuesday for post-op follow-up so obviously we will talk about all this then. Any thoughts?
Aug 03, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
First off I LOVE LOVE to hear stories where a Nissen did well and changed lives!!!! HOORAY!!!!!!!! :)~br/>
My sister's DD can tolerate milk priducts like cheese, yogurt, ice cream but can't tolerate straight milk. She gets HORRIBLE diareah, I mean it is EVERYWHERE and stinky!!!!!br/>
As well if she has too much of the okay foods then she will have issues as well.br/>
They switched her to Soy and they watch how much dairy she takes in and that controls it. She never had any milk issues whie being breastfed, formula either. Only once she started straight cow's milk.br/>
I wonder if the prevacaid just need to be slowly decresed instead off stopped all together. Like maybe keep him on 3/5 of the dose for 4 months and then lower down by quarters. that coudl allow him some time to possibly out grow the reflux a litte more, KWIM????br/>
We did that with Jedd and he is currently at 1/2 of the dose he is supposed to be gettign and holding strong. I am to chicken to go any lowe though. LOLbr/>
Okay off to look at some pictures!!!!!

Aug 03, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Well I serioulsy messed up my page breaks in that post....HAHAHAHAHA
Aug 03, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
looks like you all had so much fun. great pictures. wonderful news that the nissen has worked out so far. wish i could offer some advice..
Aug 04, 2008
amber f
Welcome back!!! There is no place like MN, is there? Okay maybe I'm a little biased:) The next time you're in my neck of the woods maybe we meet up!?!?

It looks like you had a great time on your pics. I haven't been to the Mall of Amer. since Nick. took it over. The wonder pets ride looks so cute! We have been having such an awesome MN summer. It isn't nearly as hot and humid as other years.

Check with your
doctor first!