Posted By Posting
Jul 31, 2008
klc92201
New Here!
My name is Heather and we are new here though not to the reflux and GERD world. My first DD was born in March 2005 and diagnosed with reflux at 10 days old. After trying all of the med combinations we finally got relief with just Zantac, Bethanechol and Enfamil AR she got better and grew out of it mostly about the time she started to become mobil. Now this new baby who is now 6 weeks old was put on Zantac in the hospital. I knew it as soon as she pulled off the breast and arched her back what was going on. Needless to say we are struggling finding any combo of meds, formula, breastmilk, etc that will work. She is currently on prevacid twice a day, Soy formula and Zantac as needed. Our pediatricina perscribed Reglan but I just don't think I can give it to her. I am very frustrated as our pediatrician won't perscribe Bethanechol because it isn't FDA approved. We have tried all formulas including the hypo allergenic ones and currently Soy with no luck or decreased in GER or side effects. I made an appt with a GI specialist which is on Tuesday. I guess I am just curious to know what worked for others. OUr pediatrician says she has sever Reflux? She chochs, and can't get her breath, it comes out her nose and she projectile vomits after almost every feeding. Oh don't forget the ear piercing screams. Any help or stories would be great!
Jul 31, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Hi and welcome! What dosage of Zantac and Prevacid?
Jul 31, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Hi and welcome! My first thought (the GI will probably recommend too) is w/ the chocking I would wonder if she is asperating her milk and maybe need thickened feeds. Also are you on an elimination diet? Could it be she has MSPI? How are her bm's are they mucosy? Unfortunately the meds will not stop the spit up ( I am sure you know this) but they should aid in stopping the acid production. Also the prevacid, are you on the liquid suspension or the solutabs. We do not use the liquid but many here say it can become unstable and therefore uneffective after 2 wks. I would ask about that. How long is she spitting up for after meals? Does she spit up hours after she has eaten? That is all I can think of for now but I am sure other mom's will chime in w/ some great info. Again welcome and good luck!!!! Jennifer
Jul 31, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Sounds like you're moving in the right direction! Are you elevating her head to sleep and holding her upright as much as possible? My dd was also diagnosed at 6wks. We used zantac efferdose tablets bc they taste better than the syrup. With the meds...does she seem to arch and cry as much? Or is it somewhat better? With prevacid it can take as much as 4-6 weeks to become completely effective. Maybe a little more time will do the trick. I hope the GI gives you some help Tuesday!
Jul 31, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
The reason I ask about dosage is that our GI says too high of dosing can produce opposite effects. We can't do a full tablet of prevacid because our dd doesn't weigh enough so Prevacid on top of Zantac might be causing more problems than helping. ALso, on Zantac our dd arched and refused to eat.
Jul 31, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Jedd vomitted like that and it was due to DGE and really severe GRED as well......so the ped. may be ont eh right track with the Reglan. Everyone has to make the chioce with it...I think the Reglan is WAY less scary than Bethanecol...JMHO....the side affects with Regla are reversable....

I owul djust make sure you ask for a PPI instead of a H2blocker...JMO again....Good Luck!!! Glad you are gettign in to see the GI so fast!!! YAY!!!!
Jul 31, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

Ok, dd in bed and dh no longer needs my help with her.

I agree with Jedd's mommy about the Reglan and with Maggiesmom about giving the Prevacid time to work. It does take longer than an H2 blocker but is much more effective. Zantac only kept Katie's pain in check but barely. She is on Prevacid and still is throwing up and it did take awhile for it to kick in. With Zantac we found it didn't really help her and it started to give her migraines as well. Also, my pp on dosage; if it is too high it isn't giving the results you want and has opposite desired effect. Glad you got the GI consult so fast!

Jul 31, 2008
klc92201
She is on formula only now? And I posted a seperate post on that but we have tried everything with no difference though there were a few that were obvious, she threw the whole bottle up after ever feeding. She mostly spits up almost a full oz at every meal sometimes 2 oz. She always spits and screams with every burb, hick up and just random times in between. Sometimes she just screams for no reasons. She arches her head back like she trying to lengthen and get away from her reflux. Her reflux is so strong it comes out her nose and she chokes and actually has trouble breathing. Sometimes she is raspy and I can feel it in her back. Medication~We started out at birth with Zantac .5 ml 3 times a day, did nothing. Then when the chocking and breathing issues started we switched to Prevacid. One solutab 15 mg once a day. Now we are on two tabs once in the morning and once before bed 12 hours apart. Our pediatrician told us to use the Zantac only on the bad days, though everything I read says Zantac really takes longer to get into her system and taking it as needed really won't work. She has been on prevacid for just over a month now. Reglan~I am so scared to use it and after I gave her two doses I just couldn't do it. I am so afraid of the nurological effects. Bethanecol~my DD #1 took that and it worked wonders. Why is this one not recommened? Our pediatrician said she printed out tons of stuff on it and would rather do Reglan. This is told to me through her nurse as I have not really gotten to talk to her about it. I am at a loss here as everything we are trying is doing nothing and the reflux which I would call GERD now, is getting worse too. Funny thing is the only time she is happy is at night, she sleeps great. She still spits up though but mostly right after her bottle. Oh, she is only drinking between 15 and 25 oz. 25 when I move the nipple (Dr. Brown's) up to level 2. 15 oz at level one. Heather
Jul 31, 2008
mollybeth
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Welcome. Hopefully the gi can spread some light for you. We tried lots of meds with cooper, and none of them worked for about the first 4 months. Also, I would see about switching formulas too, it could be the soy is bothering her. So sorry!
Aug 01, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Hi again. Our GI won't put Katie on the full 15 mg. of Prevacid because she is too little; I was giving her the full tab for my conveinence since splitting the tabs up into 3/4 is not the most accurate and we started to see her get bad again at night. Talked to the GI and they said to split her 3/4 dosage up between morning and night because she needs it in her system more than once a day. Once we went back to the 3/4 tab we saw a reduction in GERD pain symptoms. She still refluxes but it isn't AS painful as it has been. Our pedi wasn't aware that too much medicine can cause this as they kept upping her dosage regardless of how much she weighted which is why I asked about dosage; 6 weeks seems young to have such high dosages of medications. JMHO.
Aug 01, 2008
klc92201
too much meds I would have never thoughtt of that. I think the soy osn't our answer either as her boops went from newborn mush to watery and foul smwll, like me when I have diahrea. I tan out this evening and am just using Enfamil as it is what I have here that is open and enough to get us to tues gi appt
Aug 01, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
I am not sure of the exact times to give it but I know prevacid has to be given spaced out. I mean she can get the prevacid and then you should wait maybe 30 min to an hour to eat after giving the prevacid. Also it can not be given near the time of the zantac. 2 pills does seem like such a high dose. I do know that prevacid contains traces of lactose and a couple of babies on here (including mine) who could not tolerate dairy could not tolerate the prevacid. Good luck and keep us posted. Oh-have you tried a formula like Alemintum or Nutrigamin? Those are more broken down for the sesitive systems?
Aug 01, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Most of our son's issues (projectile vomiting, choking, etc.) were later determined to be a true milk allergy. Soy formula was no better, as a lot of the same kids will be allergic to soy also. Neocate and similar formulas are the only thing that helps a lot in this situation. Ellen
Aug 01, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi and welcome. This sounds just like my little guy @ that age. in the hospital i BF (he was in the NICU 3 wks) and combo bottle fed but never took to the breast @ 2 mo. i hired a lactation consultant-found he was tongue-tied so please, please get that checked if you hadn't-his sucking reflex was sooo, soo bad until i had his frenulum clipped @ that age. the choking lessened over time and i think this really contributed. this is what has helped us

*alimentum-my son projectile vomited on both milk/soy (out the nose too) until i switched him to this

*holding 30 minutes-one hour after feedings

*sleeping upright until she has better head control-whether it be in a bouncy or glider (the glider was wonderful for awhile then mine slept upright on me or husband for 14 weeks

*tummy sleeper after (not advocating-just telling U)

*baby bjorn

*limited play, bouncing, etc.

he's been on/off zantac because although it seems to lessen pain from reflux it makes him extremly hyper and irritable. i also agree with some other moms that it causes headaches. we are trialing maalox now so you might want to see about that as well. HTH
Aug 01, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
oh btw, SOY formula was the worst for us. really sounds like more of a reaction to formula right now than anything else. jmho
Aug 01, 2008
klc92201
yes, we have tried the nutragamin and alimentum. Nutragamin was no different than regular Enfamil. alimentum made her vomit the whole bottle after every feeding. So I ran out of soy and used the left over enfamil I have to get me to Tuesday and she is so much more happy, less crappy and cranky. plus her poop is back to it normal consisitency than before we switched to soy and it still smells but not as bad.
Check with your
doctor first!