Posted By Posting
Jul 30, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Thanks Ladies!
Just wanted to let you know that Ella's medicine weaning attempt has been unsuccessful. I appreciate all of your prayers and notes sent. She started in with the severe choking this evening (after a morning of being super grumpy and a blistered rear with each bm) so we will try again in a few months. At least I know I am not giving her something she doesn't need. KWIM? I gave her the second half of her dose tonight (we had been giving her half to see how that would go) so hopefully she will sleep well and feel better tomorrow.
Jul 30, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I am soo sorry Jen. I hope the next trial goes well for you all!! BIG HUGS!!!!!
Jul 30, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Thanks Jessica! You're sweet. I hate her to be on medicines if she doesn't need it but at least now I know she DOES need it. I am not loosing faith that she could still outgrow this. She has made HUGE strides in her motor skills and muscle tone in the last 2 weeks so I am hoping that will translate to better LES functioning (???). One can hope! ;)
Jul 30, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
sorry to hear of this news. hopefully she can wean sometime in the future.
Jul 30, 2008
eswrede
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
I am sorry to hear that it didn't go very well. Hopefully time will help her body to do what it needs to. Libby
Jul 30, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Yes, Ella does everything in ELLA time. Not so much when everyone else does so this will probably be another one of those things. LOL!
Jul 30, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
OMGosh. SOmehow I missed you were weaning meds. I am sorry it didn't go well, but I know what you mean about at least you are giving her something you know she needs. I hope she gets back on track soon!
Jul 30, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Darn it! Hopefully the next time will be successful and she'll start feeling better very soon.
Jul 31, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
So sorry for both of you that it didn't work out, but I know what you mean about feeling good to at least know you aren't giving her anything she doesn't need... Hopefully she just needs a little more time...
Jul 31, 2008
kubicki5
So sorry it didn't work this time. You know it will happen. Take care.
Check with your
doctor first!