Posted By Posting
Jul 29, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
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Aubrey 18mo Checkup
Well, I know we are 19mo old. Somehow it was miscalculated-oh well. The appt went fairly good. She is 31.5 in and 23.4 lbs. She is ave in weight and I am not sure about height. Aubrey SCREAMED the whole appt., and I mean the whole thing. Poor girl, even the nurses commented it has only been 2.5 wks since she was in last where they put a catheter in her and took blood-she was having flash backs-just made it hard to get all my questions in. We discussed things Aubrey is doing and the pedi said she seems to be very advanced in most areas and still a-typical in others. I expressed my concern about her speech and my disgust w/ ECI (her OT is leaving and instead of replacing her they are just going to have the DT due the OT stuff.) Problem being the DT doesn't even do her job. She sits on the floor and plays legos or whatever with her. Her purpose was to be reiterating what the OT does and doing things like blowing bubbles, blowing through a straw stuff like that-she does NOTHING. In fact, one therapy session lasted all of 30 min of which she sat at my kitchen table and wrote notes and made it look like she did stuff but wrote on the stuff I had questions about. *whew* sorry to get on that soap box :-(

So the pedi agreed there is no reason Aubrey should not be saying things like, drink or cup or up or please, the easy things, when she can say: Here ya go, I did it, Thank you, bless you, circle, Hi Doggie/Dixie, putting words together. She gave me the numbers to a couple of other places and wants her eval for speech therapy and PT through them. I am good with that.

I also expressed my concern about the right foot still turning in and she said it could be something called a femeral (sp) something (can't remember her words) but basicaly that is how her thigh (ha!) bone is formed and it usually works itself out by 5 or 6. Bracing will not help (OT already said this) b/c she will just walk w/ the brace the same way.

It was confirmed we are at the beginning of her cutting her 2 yr molars, but we still have a long road. GREAT (with sarcastic tone)! The bottom 2 are turning a bit white and a little swollen. As far as her sucking on the puppy and her teeth bowing out she wants us to get back to the dentist and ask if we need to break this habit soon or if it can wait a bit. It can start interfering w/ articulation. Being the nature of what she sucks on it will be HARD to break the habit, but I suppose we will figure it out. So we will get back to the dentist soon, which they are past due anyhow.

I think that about sums it up. It was a miserable appt and I was sweating by the time we left. The 2 shots I am sure really did her in. Sorry for such a long update. J

Jul 29, 2008
emmakins
Wendy
daughter Emma born 7/25/07
I hope the new PT/therapy works out. how frustrating. yeah molars - those are the last right? we still only have 5 teeth total. You have so much to deal with - i really hope things get better for you. - wendy
Jul 29, 2008
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
Sorry it was a tough appointment! It sucks when they've just been there and had a painful time and then have to go back. I hate all those shots, too...why can't they come up with one combined one, or some other kind of way to deliver it? it sounds at least like your pedi is at least somewhat knowledgeable about development, which is a plus. I found out that there really are not very many classes that doctors have to take on child development, so apparently if you find one who knows what they're doing you're lucky! I hope you get a better therapist, I would be irritated with the first one too!
Jul 29, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Oh, I am so sorry the apt was dreadful for Aubrey but it sounds like you have a good pedi who listens.

Ava had problems with the shape of both of her leg bones (from being squished against her sister). It looked pretty bad when she was little and they reassured me that it would work it's way out. You can not even tell anymore!!! They told me that the more walking she did the more quickly it would straighten out. Thankfully she is the wild runner of the group, LOL!

Sorry about the teething... those molars are rough. I think the older they get the more of a cow they have about it too. At least that is how my kids were. Stock up on the tylenol and ibuprophen now. ;)

Again... I am so sorry your ECI people are frustrating you. We were REALLY blessed in that dept. I will be praying you will find someone like we did, someone who will be the perfect fit for Aubrey! God bless!
Jul 29, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Our girls are practically the same size :)

Jen, Mags can't say ANY of that. Should I be concerned again? I mean, the lady that came before told me I could have her reevaluated. Any way, I don't wanna get onto Mags.

Morgan's feet used to worry me and Maggie's left one does a little. Maybe A is past the worrisome part and now it's just a matter of "time". I don't know....Sounds like your ped is better than mine, lol. I'm gonna switch drs in the same office soon.

Jul 29, 2008
lauren'smom
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
I am sorry that ECI has not worked out well for you...We run into some PT's an OT's like that in the public school system from time to time too. They are very good at looking busy and shuffling papers around, when in fact they aren't doing much of anything.

UGGG, there are 2 year molars too? Lauren STILL only has 3 teeth and she's 14 months old and one of the 3 is a molar and that thing nearly killed us all coming in! I don't envy you especially if the bottom 2 are coming in at the same time.

I am so sorry that Aubrey wasn't more cooperative at the appointment too. I have done the wrestle the baby just so you can hear the doctor...I was sweaty too! Hopefully, she'll sleep well tonight! I hope you're feeling good/better also!

Jul 29, 2008
nicholas'smom
Sorry to hear about the molars. Can totally relate. My 19 month old is in the middle of like 5-6 teeth all coming in at once....ughh. poor baby. Nicholas still doesn't sleep through the night and now occasionally, Nathan wakes because of the pain. He also has a nice rash around his mouth from chewing on his fingers! He is also getting speech therapy (but for speech delay). Good news on that front though as he said his first word in a long time, "truck" (Not "mommy"). His first word was "kitty" at 12 months, but we got rid of our cat. Think he got back at me by not tallking and not saying "mommy"-just kidding. Best of luck.
Jul 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Sounds like she is growing well. sorry the appt. was miserable. Poor thing. I must she she is soooo adorable. Love the new picture.

i understand issues with ECI. Our county is so messed up that if I wanted ECI I would have had to wait for several months. So, I drive 40min. one way to take Coy to PT. don't want to wait, kwim.

as far as speech, my mother swears that my bro barely talked until he was 2. did a lot of grunting. he also walked on his tip-toes. he's a 28 yr old fit runner who is a computer/electrical engineer. so maybe she figures she'd rather say the hard things since the easy things are necessary??

sorry about the teething. coy is 10 mo. and has 8. i don't remember what sleep is.

whats a puppy? a binkie?
Jul 30, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
emi has the same thing her right foot turns in. i was told it too was something she would grow out of and braces would not work. i found getting her to wear shoes, not sandals, helps her not trips as much. good luck with the molars- we are there too...
Check with your
doctor first!