Posted By Posting
Jul 29, 2008
buzzowens
New to the Forum-Bay Area, CA
Hi. My husband and I are new to this forum. Our son was diagnosed with acid reflux about 2 weeks ago because he had sudden inconsolable crying, bad sleeping (or none at all) and he was swallowing funny and seemed to be in pain every time he ate. We are really looking to hear your stories and maybe find other people in the Bay Area here in CA who might be going through the same thing. I stay home with Jack and am really looking to connect with someone else who is having rough days and nights. My neighbors are amazing but don't understand what its like to be consoling an otherwise healthy baby 24/7. I can't wait to hear from some of you!
Jul 29, 2008
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Hi and welcome! You've come to just the right place...the parents here are amazing and helped get us through some really bad days. There are several moms on here from CA - I think a few even in the Bay Area. I see that you're bfing - good job...it's not easy to bf a refluxer! Have you eliminated anything from your diet? I was unable to have milk or anything spicy without causing a flare for my daughter. Some moms have to do an elimination diet (which can be found on the Dr. Sears site). Is he on any meds yet?
Jul 29, 2008
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Weclome to the site, but so sorry you had to find us!!! ;-) We've all gone though the insane screaming and constant fight for serenity and enjoying our kids, so feel free to vent, ask questions, or just connect with someone who "get's it." I agree with halley's mom for the elim diet - seems to do really well for some kids, though some need a strict hypoallergenic formula. Is your lo on any meds yet? They can take a while to kick in (2-4 weeks for most PPI's), and some of us have gone through a number of different ones to find what works. We're here for you!
Jul 29, 2008
amber f
I'm from MN and I do daycare out of my home. I have 3 kiddos. My youngest is why I am here. This place has helped me so much. I have made some great friend here too. It is nice to meet you and I'm sorry that your son has reflux. But Welcome to the forum. Feel free to ask as many ?s as you need to.
Jul 29, 2008
buzzowens
thanks
thank you so much for responding. Jack is on Axid, he was on 1ml for a while and then we up'ed him up to 1.5ml. It seems to make him sort of speed. he won't sleep during the day and has a hard time falling asleep and stay asleep. We have to still swaddle him so that he can get some rest at night and yesterday i was so desperate, I swaddled him for a nap. i felt so bad. he seems to be happy now but we have to hold him a lot and he gets bored with his toys. he also already knows how to roll over in both directions (tummy to back and back to tummy) so he rolls around like crazy and likes to be on his tummy. i am bfing and he likes both breasts every time i feed him every 2 and a half hours. i tried the half as much twice as often method and he was miserable. he always had food on his tummy and it made him uncomfortable. which is of course opposite of everything i read but it works for him. i just hope there is relief for us in the future, more importantly for him i hope he feels better. i also feel guilty, a little isolated and like i miss our old son. this is our first child
Jul 29, 2008
amber f
I know what you mean with the swaddling. I swaddled my son until last month when he was 9 months old!! You do what works and you don't look back;)
Jul 29, 2008
stickybean
Hi Jenn My dd was born one month after your ds. (april 11) She also has silent reflux. The swallowing funny, gulping, and strange sounds all sound familiar. She was DX 5 days old with S.R. and apnea. Her apnea started when she was 3 days old during feeding. She would turn blue due to her choking on her reflux. Welcome to the club..... if you need any help just post! Jacky
Jul 29, 2008
stickybean
oh and we still swaddle joslyn at night. We only leave her arms out.
Jul 29, 2008
buzzowens
swaddling
thanks for the swaddling advice. my husband and i felt like we were damaging him by swaddling him at almost 5 months. we have 2 miracle blankets we use but he is getting a little big for them. what do you use to swaddle?
Jul 29, 2008
stickybean
we use a reg baby blanket. She loves to be held close and tight. She is our snuggle bug!
Jul 29, 2008
buzzowens
stickybean, i read your profile and my heart sank when you wrote about your little one turning blue. my husband and i are also trying to keep breast feeding and use little meds. i feel like his Axid has helped but also that the Axid makes him crazy, a little agressive and he NEVER sleeps. what techniques are you using for feeding? how about for sleeping? do you have a nap schedule? he is doing good at night in his swaddle, about 6-8 hours straight, but the saytime is another story.
Jul 29, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Welcome to PAGER!
Hi! Welcome to PAGER! I actually grew up in the Bay Area. :) I live in AR now. (Long story...LOL).

Sorry your little guy is dealing with acid reflux. I know how hard it can be. Our girls LOVED to be swaddled too. I ended up having to buy a bigger blanket that had some stretch in it when they outgrew the swaddling ones. Those worked ok.

My girls also liked the swing (as long as it was not to wild and not right after eating). It was helpful on the super crabby days.

Have you tried the elimination diet for breastfeeding to see if it might help? One of the moms here has had some good success with it for her little boy.

If you ever need another reflux mom to chat with send me an e-mail and I'd be happy to give you a call. :)

RackleyFive@cox.net

~Jen
Jul 29, 2008
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.

Hi and welcome! We are in the Sacramento area and there are a few other moms from the No. Cal area. Sorry that Jack isn't doing well; we are all in similar boats, canoes, rafts.....

One of our neighbors understands (well 2 because my parents live down the street) but even our friends don't know how to respond. They will send me an email asking how Katie is doing and when I am honest I don't hear from them for weeks. They also will invite me out to lunch and don't understand that I can't tell them whether I can go or not until that day and I see how Katie is doing. This forum has been a Godsend to me because there are others who are going through what you are going through and actually have answers that are helpful!

Have you tried to make his room as dark as night? I bought black out curtains for Katie's room as she would wake up after 30 minutes and then refuse to nap the rest of the day. Her room is very dark and cool and I have a fan running for white noise because she is such a light sleeper. The black out curtains are great and I recommend them to everyone! You can get them at Wal-Mart for around 20 dollars so they are not too horribly expensive although I would have paid more because they are sooooo worth it!

Jul 29, 2008
buzzowens
i have been breastfeeding non stop today. he latches on and stays on for almost an hour, sleeping and eating the whole time. i feel like he is just comforted by being next to me and i'm afraid it will become a habit. is it hard to do the elimination diet?? i am a little worried i won't be able to do it...does that make me a bad mom? i will try the blackout shades for sure. i know it works well at night for the room to stay dark into the morning but i will try it for naps also. thank you all for responding. my husband and i were starting to feel a little isolated even from our close neighbors and family. they all want to offer advice about what i should and should not eat or that i should stop breastfeeding ASAP. everything is so confusing and when you are tired and feeling vulnerable, you will listen to everything. i guess we want to know there is light at the end of the tunnel...
Jul 29, 2008
nicholas'smom
Welcome. I too am fairly new to the site. I have found it incredibley helpful-lots of good advice and so nice to have others to talk to in similar situations. Our little one was first diagnosed with colic and reflux and now we wonder if it wasn't all just pain from medical conditions. Seems once we got him on a better medication, his crying and pain gestures improved (not all gone yet though). Best advice I can give so far is to be an advocate for your child(If you think he is in pain or something is wrong, persue it until you are comfortable with the answers and results), research everything (meds, side effects, medical conditions) and ask everyone hear any questions you may have no matter how silly they may seem-you may be surprised what you can find out. Hope you find what you are looking for here (as well as someone close to you) and hope you and your little one are doing better in no time!
Jul 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
Hi and welcome. My 10 month old has silent reflux as well. IMHO it is worse than "reflux" because they hold it in and swallow back down again-doubling the damage. Ours too is on Axid (aka Zantac) and since he's been on it @ 2 mo. i too notice that it makes him 'wired'. I just figured out this past week that it goes away after a few weeks until i get a new bottle and then it starts again. The stuff loses its potency and also doesn't work as well. so, you might want to ask for a 2 week supply. also, i've started giving 3/4 of his daily dose after his morning nap {10 a.m.} because that gives me 3 hours of wake time for him to burn it off. then if he's really bad @ night i just give him a little bit instead of 1/2 dose. kwim?

did this all start when you intro'd rice cereal? the docs tyr to get you to start solids so soon when they dont even need it. and solids actually worsen reflux in many, many cases. it does in ours but @ 10 mo. old he really, really wants to eat but we don't do many foods even @ his age. i'd consider stopping the rice cereal and continue bf exclussively until 6-7 mo. how much does he weigh? mine was extremely preemie (4 lbs) and i was told that i was not producing enough milk for him so the nicu nurses kept giving him bottles. i dried up-of course- so we went to formula. he's been much better since i switched him to hypoallergenic . as far as the elimination diet molly can help you with that one. she's very admirable.

as far as the isolation and the other SAHM mom's I totally understand. the neighbor across the street has the easiest baby-no issues, and is a chunk (22 lbs compared to my 16 lb ftt kiddo) and i really don't like to listen to her complain about anything since she has it so easy. it is hard not to feel jealous sometimes that there child is not in PAIN... anyways, i have good girlfirends who do understand. just take what people say with a grain of salt and know that you are doing your best for your child. the isolation gets better after a few months-trust me :)
Jul 29, 2008
mom2coy
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
oh, and the sleeping. well.... mine still doesn't sleep well. he has 8 teeth too though!! my best suggestion is to take naps. please do it. i waited so long to start (when he was about 8 mo. old) because I was so nervous all the time. as far as a schedule..a good one for a 4 mo. old is: 6-7 wake & BF, 1.5 o 2 hours later nap time. wake & BF, 2 or so (maybe you can stretch it to 2.5 hours) nap, wake and BF, at his age he probably needs that third nap too between 4:30 and 5:00 or 5:00 and 5:30 or so. bedtime @ 7 or 7:30. feedings on demand @ night. the naps will get better, then worse, then better as they go thru periods.
Jul 30, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Welcome from near the Bay Area!
I'm down in Santa Cruz. Where are you? I am up in SF several times per month, also, as my husband works there.

I'm so sorry you and your little one are having a tough time. We went through months of inconsolable crying and clawing, spitting up, choking, apnea, on and on, and only recently managed to get our pediatrician to take it all seriously because DS was growing well and meeting his developmental milestones. It can be incredibly frustrating when people don't understand what you're going through -- but you won't have that problem here!!!

I still BF almost exclusively, as DS is slow to take to solids and only has four teeth. I also did the elimination diet early on. You are not a bad mom if you can't stick with it! It can be hard if you have to keep a lot of things out of your diet, but sometimes your little one just needs a bit of time to mature and you can add things in, so don't despair and feel like you will have to be on for your entire breastfeeding life...

Feel free to email me at cristina@mothersupportnetwork.com anytime, and maybe if we are not far from each other, we can meet up sometime!

Jul 30, 2008
leslie suh
Bay Area GERD Mom
I am a GERD mom in the East Bay - Alamo. My daughter is 9 yrs old and was only diagnosed last year despite difficulties since birth! By the time she was diagnosed, I was on the verge of "losing it" and she had damage done to her esophagus from years of untreated GERD. What part of the bay are you in? I am just finding my way through the GERD/DGE issues and would love to learn from other moms.
Check with your
doctor first!