Posted By Posting
Jul 24, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Jazzy's GI appoint.....not good
Jazz saw the GI yesterday and she has only gained 2 lbs since Feb. She is now 20.5lbs at 18 months and is dropping off the charts again (sigh) She is going to be scoped in the next 10-14 days and the GI thinks it's either EE, celiacs or Sucrase deficiency. At this pojunt I just want a diagnoses and medication that will make her feel like a normal healthy, PAIN free baby...KWIM? Also, I decided that on Tuesday I will stop BFing since she only BF fro nap and sleep. We'll see how that goes! I'm sure we'll be even more sleep deprived if possible. Thanks for all your sopport!
Jul 24, 2008
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so sorry she's not gaining well. We totally understand the "wanting a diagnosis" thing. that's much better than not knowing what's going on.

For the bfeeding...if you can, I would drop the nap for several days then do the bedtime. JMO

Jul 24, 2008
Jennifer - 1st time mom. Lauren (6/1/07) diagnosed 9/07 with GER at 3 1/2 months. Prevacid 7.5 mg in the am. Currently drinking whole milk and eating great!!
No longer aspirating! Yippee!
Picture: Why would Lauren play with the hundreds of dollars worth of toys scattered in my living room?!?! When she could play in a box! Estimated move date: Oct. 3rd!
Sorry to hear that the appointment did not bring good news. Hopefully the dropping of Bfeeding will go easier than you think! (trying to be positive :) I hope the scope brings you answers and that Jazzy will be feeling better soon.
Jul 24, 2008
amber f
I hope you get some answers soon. Good luck with the bfing.
Jul 24, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
I agree w/ maggiemom try dropping one at a time. I hope you can get some answers with these tests. keep us posted!
Jul 24, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Hopefully the scope will point you in the right direction - I know it's been such a long road for her. Good luck with the weaning!
Jul 24, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Sorry her appt. didn't bring good news. Totally kwym about wanting a diagnosis; we just want our kids happy and healthy! I agree to drop one feeding at a time and see how that goes, jmo.
Jul 24, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
sorry to hear about the appt. weight gain. i'll be thinking of you both for the scope.
Jul 24, 2008
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Uggghhh. This may soudn awful, but I hope it is food allergies causing some inflammation like Sebastian has. I AM PRAYING IT IS NOT EE, BUT I DON'T THINK IT IS. I bet it is not Celiacs, either, unless you have a family history. My new allergist said in some lightly veiled terms that GIs are quick to label what they can't explain Celiacs. Our GI was so convinced (despite negative tests and no family history) that Bassy had Celiacs that she tried to forc eme to cancel our allergist appt. If she has been eating anything lately or in the past that didn't agree with her, her body could just be totally out of whack. Let me know how it goes, please! Hugs to Jazzy!!
Jul 25, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
Oh, I'm sorry that the appt. wasn't soo uplifting. I really hope the scope gives you some understanding of whats going on w her. It is so frustrating to see your babe in pain but not knowing what to do..Good luck with the weaning! I fear weaning because I think it's going to be really challenging. I would love to hear how it goes for you. I hope that you will be able to catch naps during the transition! Good luck!
Jul 25, 2008
mom to Mila 2-20-2007
and Robby 4-22-2004
Mila is on Peptamen JR 30 cal by NG tube. Open Heart Surgery 2/08/08. Captopril, Zantac, Losec, Lasix.
I'm so sorry honey! I hope the scope goes well.
Check with your
doctor first!