Posted By Posting
Jul 23, 2008
Sharon, Mom to Elyse, 17 mos (15 mos adjusted-preemie). Zantac/Elecare. History of: Respiratory Distress Syndrome with ventilation/CPAP/cannula, tpn, n/g tube, PDA, jaundice, apnea, bradycardia/tachycardia, severe anemia, blood transfusion, reflux, Sandifer's Syndrome, intestinal malrotation, hemangiomas, MSPI, feeding issues. ICU inpatient 53 days! 2 surgeries, 2 UGIs, barium enema, pH probe, endoscopy. Developmentally on target now! PIC: Yobaby Beard
grrrr re: milk (Elyse)
Yesterday morning i posted that she seemed to be okay on the milk that DH gave her the night before. Spoke too soon, she pooed 3x yesterday and has a rash like I have never seen before....all over her entire bottom. She drank only a sip or 2 yesterday, and was up most of the night crying and refluxing and spitting up. Guess we wait some more.
Jul 23, 2008
Mathias Johann - 12/14/05 - GERD, Hypotonia, Sensory Processing Disorder, Dyspraxia; Stopped silently aspirating at 20 months :)
First partial seizure on 7/2; First Endoscopy on 7/16; results: bile reflux gastritis.
New Meds: Zegerid & Carafate
Allergic to dairy
Oh Bummer!!! I hope she feels better soon!
Jul 23, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Uuuggghhh-so sorry to hear this. I was hoping it would work for you. We will be giving milk a try in a month or so. I LOVE the new pic!!!
Jul 23, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Too bad! I was hoping that she would do well!
Jul 23, 2008
Mom to Eddie 1/07 and Nicholas 6/08. Eddie allergic and refluxer now on cow's milk!!!! Nicholas also a refluxer on prevacid and breast milk. Mom on elimination diet AGAIN!!
Aww poor Elyse and mommy. Eddie did baD few months ago, Tried again a month ago and got the runs and a rash from whole milk. This week though I have been giving him an ounce of the lactose free 2% and he has done well so there is hope.
Jul 23, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sorry it didn't go well. How is she doing otherwise. is she drinking ok?
Jul 23, 2008
Poor baby.. and parents. Hope she feels better soon!
Jul 23, 2008
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
That's a bummer!!! Hopefully the next intro will go better.
Jul 24, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Oh man...I didn't want to read this!! I was crossing my fingers that it was going to all work out. Now...this is just what I have experienced...whole milk did that to both of my boys. I know Elyse needs all the calories and fat from the whole milk BUT, the 2% is a little easier on their systems. Have you maybe thought about (next time you trial of course) trying 2%? Some dr's are all for it (like mine) but some are not (especially in smaller kiddos) I hope she gets it all out soon!!
Jul 24, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
ah man, sorry to hear that! hows she feelign today?
Check with your
doctor first!