Posted By Posting
Jul 22, 2008
Cooper was born 12/19/07. Birth weight: 7lbs10oz. Weight as of 2/11: 8lbs9oz. 6/23: 14lbs12oz! Struggling again 12mo: 18lbs. Breast Fed exclusively, on strict elimination diet until Dec 08. MSPI as well as other food intolerances Diagnosed w/ GER at 5 days following barium swallow. Choking with apnea spells. Ftt. dx w/ Laryngomalacia following brochoscopy 1/29. Aspiration. apnea monitor until 5mo. pH probe 1/29 showed severe reflux. Sandifers Syndrome. lbrady and tackycardia. echo and EKG 2/18: Came back normal! Swallow study 2/29: some NG reflux. Unexplained seizure 4/1. Negative CF sweat test 4/4! EGD 11/19: reflux damage in esophagus. pH probe 11/19, reflux improved. Safe foods: pears, apples, peas, rice, small amounts of chicken, potatoes, and carrots.
Currently drinking Elecare vanilla 30cal/oz and breastmilk.
Meds: Nexium 10mg 2x daily. Carafate as needed, miralaxx as needed, probiotics daily
Sorry I'vebeen mia, trying to keep up w/ my busy boy.
Sorry guys I haven't posted lately. i have been reading but was unable to reply. Not enough time! Cooper is everywhere these days. It is so tiring, but so much fun. He is doing well. He is teething again I believe, which is not fun. We missed his second dose of prevacid yesterday and it made for a tough night. This made me a little sad b/c I feel like he's probably not going to be ready to go off meds as soon as I'd hoped. We had some feeding issues for a few days, tongue thrusting, turning his head, but that seems to be better now. Do you think it could be the teeth? I'm going to try and be better about posting guys!
Jul 22, 2008
Mom (Danie) to Adam (9-4-03) & Nate (3-7-07) Nate was diagnosed with silent AR at 2 months old. He was on neocate, prevacid 30mg per day and couldn't start solids till he was almost 8 months old. He started cow's milk at 14 months and is currently off all meds!! So far so good :) PIC: Disney trip 2008. Nate didn't know Piglet was there, he didn't like the characters too much.
Don't be gets busy as they get older. Don't worry too much about him not getting off the meds when you had hoped, the weaning process is different for all of our lo's. Teething still causes Nate to have flare ups and not eat. I had to use mylanta the other has been a month since I used it. Take care and thanks for the update :)
Jul 22, 2008
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Yes, it probably is the teeth. I love your new picture!!!! Cooper's smile is so big and you are so beautiful!!! I'm with Danie, don't apologize for not being around, it's busy when we have kids! -Sarah
Jul 22, 2008
Kelly, mom of two boys with GERD. John (born 11/03) was on 40mg Nexium til 15 mos old. Second son Brian (born 05/07) started on Zantac. Now on 22.5 mg Prevacid Solutabs plus Carafate 0.5 ml 1 x day
Brian is still on meds at 14 mos because he has had so many problems with his ears that the GI said to wait til that's resolved before we wean. My older ds wasn't weaned til 14 or 15 mos. I am in no hurry to take him off. Sorry about the teething. Brian had a tough time with that too but he got all his teeth incl his 1 yr molars before he turned one so we are done for awhile.
Jul 22, 2008
seamus' mama
Seamus was born 7/6/07, one month early with Silent Reflux. Zantac since 3 weeks old, currently taking herbs and probiotics.
Great to hear the latest..Teeth can really make them do funny things with their tongues and heads..Might as well just blame it on teething and move on..Have a good day !
Jul 22, 2008
amber f
I love your new pic too! I'm with Sarah and Danie~ Don't apologize. It gets so busy somethimes around here too:)
Jul 22, 2008
Coyle Eagan. One Year Old. Doing well on Cow's Milk flavored with juice :) Drinking two bottles of Go&Grow daily. Eating solids better but still have rough days. No More Silent Reflux-that I can hear anyway.. but puking again. Zantac 2ML 2X daily.
sounds like teeth. coyle does not do well while teething. he's cutting his top eye teeth and his reflux is out of control, sleep in the toilet, won't eat much aside from cheerios. drinkign hsi bottle okay. i've heard even kiddos w/o reflux will refuse solids while teething. hope it passes soon!
Jul 22, 2008
Tracey, mom to Katie diagnosed with GERD at 3 week.
Love the pic! He is one happy baby!
Check with your
doctor first!